Welcome to Healingwell! Sorry you had to find us, but glad you did. There's lots of knowledge and support - both important to dealing with UC.
This is a difficult disease to explain to others. Basically what I start with is that people know about
ulcers in their stomachs - yours are in your colon. The last explanation I used was that my colon was really raw - like it had "road rash" from a bad bike accident and was really sore. This really got the point across and the person I explained it to cringed.
As you get to know how the disease effects you, you'll find it easier to tell people about
Does your school have a nurse? What about
a health teacher? Or ANY teacher you're comfortable talking to! Most teachers are concerned for YOUR well being and if you told them would try to help you in any way they can. I know that kids are tough to deal with and most haven't developed empathy, so it makes it hard to tell them you have issues that make bloody D fly out your bum.
You're not alone out there - and there's usually someone here :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status: Flaring :(
40mg pred, Asacol 12 per day, Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio