UGH they dont GET IT!!! (vent)

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sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 4/25/2008 5:54 PM (GMT -6)   
I was talking to my mother online. I told her this: Today my lunch break from work ended at 2. Well my hubby and I were having financial problems so I had to deposit some cash and savings bonds to help us out. The bonds had my name on it so I had to be the one to deposit it... I meant to leave at 1:30 to do this, but had 2 bms before I went so left at 1:45 instead. So I get there, hand the lady my stuff, and then ask if there's a bathroom because my stomach was going crazy. She said no..I told her I had a stomach disease and she still said no that's where the vaults are, but if you want to go somewhere I'll process everything and then you can come back.
 
SO I struggled just to get to my car .. felt like if I just got to my car before I had a bm I'd be fine... but I got to Rite Aid and to the bathroom without one fortunately. Went to the bathroom... there was blood for the first time since october. I freaked.
 
So I told her this...and that I had a hamburger and rice for lunch...and that my hubby grilled the burgers..  she goes on a rant about.. YOU HAVE TO EAT RIGHT BLAHBLAHBLAH. her exact words actually kara kara kara, STOP ****ING EATING THE WRONG FOODS, it just irratates me that your husband cant GET THAT, geeez, sorry to go off on a rant but you 2 dont have any money or insurance and you CANT AFFORD to get sick again, ok, im done 
 
Thanks mom.. that helps. She continues to rant about red meat.. I told her hamburgers dont hurt me... just steak and stuff, but she still doesn't believe that certain foods hurt diff people. Anyways, we go at it and she still is all about the food and she in her exact words says...  ok, you know what, lets agree on this, dont tell me about your intestine woes anymore until you do the "program" 100% all the time and then if you have issues i will talk about it with you. i know this is harsh but you know what you have to do and how you have to do it and you seem to push the limits with it all the time and then whine about the stomach aches, blood, urges etc. im just tired of worrying about you, my nerves cant take it, please just eat the right way 100% of the time, eat on time, small amts, blah blah blah
 
I'm like MOM ITS NOT ALL about FOOD... and HOW would she know what I'm eating anyways... other than that hamburger. I've been eating good!! Whatever... I told her its about stress too... but she doesn't believe thats a big part of it.
 
I GIVE UP ON PEOPLE THAT DONT HAVE THIS DISEASE TRYING TO UNDERSTAND AND TELL ME HOW TO MAINTAIN IT
 
sorry guys for how long this is.. i just have no one else to scream this at
Kara, 20
Diagnosed with Ulcerative Colitis March, 07
-Left sided all the way up
-Was on Colazal..it didn't do anything for me. Had horrible flare up...been on lialda and pred since. Seems to be working!
Medications: Colazal 3 pills 3x a day
                   Prednisone
                  Lialda - 2 pills in the morning w/ food. Proctofoam once before bed


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/25/2008 7:06 PM (GMT -6)   
Vent away! Vent away!! I do agree that no one will truly understand what we go through...at least in my life I know no one will ever really get it. You hang in there! We are here if you need us.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 4/25/2008 7:24 PM (GMT -6)   
I can totally relate! My parents constantly bug me about what I eat and when I'm at home, everything is monitored. When I'm not in a flare, it doesn't matter what I eat! And when I'm in a flare, anything and everything will upset it!
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa (caused side effects)
Digestive Advantage (Crohn's & Colitis), 2 pills/day
Calcium chews
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/25/2008 8:22 PM (GMT -6)   
If I am doing good then all of a sudden start flaring - my hubby is the first to ask, "What did you eat??" So vent away all you want, I'm sure we can all relate!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/25/2008 10:26 PM (GMT -6)   
Isn't it funny how so many people want it to be our fault? We ate the wrong thing, or didn't take the right supplements, or took them at the wrong time, or got ourselves in too much stress. Really, what they're trying to do is convince themselves that if they do everything just right, it won't happen to them.

Vent away, you have a good reason.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 4/26/2008 8:05 AM (GMT -6)   
Aren't mothers grand? My mother's answer to everything is, "well, if you could just get the weight off." I'm like really? My colon has ulcers in it because I am overweight by 30 pounds? REALLY? Think about what you are saying!

This is also the same woman who brought a gallon of ice cream to my house the other day. I was like, umm... I am lactose intolerant, remember? Sheesh!

I love my mother, and she can be absolutely wonderful, but it is like she has some sort of block with this disease. I wasn't diagnosed until I was older and out of the house, so she has never lived with me since I have been sick. She doesn't see what I go through in a flare, and I am not a complainer, so I don't talk about it all that much. Now that I am a parent myself, I think that it must be difficult to accept that your child is sick and there is nothing you can do about it. So, I think she just blocks it out. I'm not saying whether that is right or wrong... it's just how she "deals" with it.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 4/26/2008 9:29 AM (GMT -6)   
I just need to add something to this thread. Last night, my father told me "You have to live like you don't have a disease--don't let it follow you everywhere." Well, as nice as that would be, it's really hard to do when you have to take a minimum of 9 pills/day, get cramps almost everyday, run to the bathroom a million times, see blood in the toilet almost everytime you go, become tired easily, and have to watch what you eat. ARGH

Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa (caused side effects)
Digestive Advantage (Crohn's & Colitis), 2 pills/day
Calcium chews
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/26/2008 4:23 PM (GMT -6)   
Ah! Vent away! We understand.

I saw a shirt last night or the night before on a website that said "My disabling chronic illness is more real than your imaginary medical expertise" and thought that would be a good one to show people... Or maybe keep a card with that on in my purse to hand out!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
30mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 4/26/2008 5:18 PM (GMT -6)   
You can tell your mom that I can eat whatever I want and it doesn't make my UC flare up or get worse.
 
Sorry you have to deal with that.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 4/26/2008 6:56 PM (GMT -6)   
I don't feel like anyone understands what I go through . . . . especially my husband. He's one of those people who is never sick and could set a watch to his "bathroom trips." I hate always being the one complaining or sitting around. It seems like I'm always apologizing for something that is completely out of my control. He says he's not annoyed by my never-ending miserableness, but he's a bad liar. I can tell that he wants to roll his eyes all the time.

27/F Always had bowel issues for years


Sulfasalazine- 3 pills 2x a day

[color=#0000ff>Hospitalized]


Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 4/26/2008 7:50 PM (GMT -6)   
Vent away. I have had this disease since 1962. I was lucky to have parents that were good about it, but most other people think I was "not that sick." Part of it was my own fault because I would writhe in pain in the bathroom and then come out and tell everyone that everything was fine. I simply lied to everyone because I feared anyone perceiving I was sick. I had issues with relationships because I feared telling anyone.

Currently I am lucky enough to be in 99% remission 80% of the year. And I have this friend whose husband got UC two years ago. He doesn't believe I REALLY have the disease. Or that I ever had it really bad. (I spent a month in the hospital at age 16, and lost so much blood I needed six transfusions. My worst years were from 16 to about age 38....then it started to taper off.....less flares but still intense. After menopause I became like I am now.....still get flares but much less.

But in all these 46 years I have never had anyone to really talk to about the emotional toll this disease takes on people, as well as the physical pain. So vent away. The people here get it.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 4/26/2008 9:26 PM (GMT -6)   
you know who i'm most mad at in a weird way..

Bank of America.. every other bank I've been in has restrooms as a common courtesy. I think I might change my darn bank because BOA isn't UC friendly so THERE! lol
Kara, 20
Diagnosed with Ulcerative Colitis March, 07
-Left sided all the way up
-Was on Colazal..it didn't do anything for me. Had horrible flare up...been on lialda and pred since. Seems to be working!
Medications: Colazal 3 pills 3x a day
                   Prednisone
                  Lialda - 2 pills in the morning w/ food. Proctofoam once before bed

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