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UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 4/25/2008 7:39 PM (GMT -7)   
Start next week.

Did you inject yourself the first time or have Dr. help?

Thanks,

UCD
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/25/2008 8:19 PM (GMT -7)   
I had the nurse do it for me, I had 4 injections, 2 in thighs, 2 in stomach. Walgreens gave me 2 shots and 2 pens which at first I was angry about, then I thought about it and figured, ok then I get to see which one I "like" better. I thought the syringes were less painful. I heard the pen takes longer, but to me it seemed to take the same amount of time. I went with the intention of watching the nurse inject me so I would be ready for the next time, but it burned so much, I totally wimped out and did not watch at all. I also didn't numb the injection sites and I did the 2nd time and that did help with the pain.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 4/26/2008 5:17 AM (GMT -7)   
Thanks. Has it impacted your symptoms yet? My biggest issues are arthritis related and joint pain. Rheumy was able to get Humira prescribed for me.

Thanks!

:)
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 4/26/2008 7:11 AM (GMT -7)   
It has helped me stop having D and the bleeding has decreased a lot almost immediately. I've been having more leg pains lately, but I don't think they are joint pains. I saw a quicker response with Humira then Remicade. I have reactions at the injection sites and my rheumy said it's ok as long as my throat doesnt close up.... yay.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08, Flagyl 750 mgs started 4/2/08, Humira started 4/4/08


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 4/26/2008 7:36 AM (GMT -7)   
I have had recent success with Humira, too, but just had my dose increased to weekly, to try and get me to remission finally.

I would recommend having someone else administer the shots for you, especially for the loading doses when you are getting multiple shots at once. The burn is intense, and I think I would not be able to hold the pen in place for the full 10 seconds. It helps to have someone firmly but gently do it for you. My doctor administered them for the first month, and once he even did not hold the pen firmly, and when I winced, some of the medication leaked out. MyHumira.com also has an option where they will send a nurse to your home to teach you to administer it.

Now that I have a few months experience with it, it is less painful. Definitely take the pens out of the refrigerator 30-60 minutes before to bring to room temp, and ice the injection sites for 15 minutes prior. My husband gives me the shots, I still would have difficulty doing it myself.

My experience was that while I saw nearly immediate results with Remicade, it took me 4 weeks to see results with Humira (which is exactly what the fine print reads, incidentally), so don't get despondent if it takes a while to kick in. I have no more D, no more cramping, and much less urgency, although I am still seeing approx 6 stools daily. Progress though, so I'll take it.

Best of luck -- hope you have good results!
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Entocort, and Remicade
On Humira since 1/08 with promising results, but can't get below 5mg Prednisone
Take Tylenol #3 as needed when not in close proximity to a bathroom.
Currently on 40mg Prednisone again since mid-March flare, ack
4/9/08 Humira dose increased to 40mg/week, Start slow Pred taper

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