I went off my meds because I was in remission and just got tired of taking all the pills. I enjoyed over 10 years of remission without meds except for a minor blip (D after dinner maybe once a month or so) My last flare started over 2 years ago and took me 2 years to get back into remission. when first diagnosed I was told I had lower left sided colitis, now I am told that 3/4 of my colon is involved. I'm kind of kicking myself for going off my meds. Would the UC have spread to 3/4 of my colon if I stayed on the meds????? Not sure if I would do it again. In remission again, THANK GOD!! Never thought I'd get there again. The past 2 years have been hell, alot worse than when first diagnosed. I do consider myself to pretty lucky though. I have never been hospitalized because of the UC, and after reading alot of posts here, so many people have it soooooooooo much worse than I do. I wish everyone could enjoy a long remission..............I can't say "I know how you feel" about
taking all the meds, because I was only on azulfidine (6 - 8 pills a day) and folic acid before I stopped the meds, and I got sick of taking them. I'm sick of taking my meds now, but I just tell myself to stop the whining, suck it up and do what you got to do. Good Luck, please think it over ALOT before stopping your meds.
*******Donna*******
diagnosed with uc 27 years ago. Enojoyed 10 - 12 year remission (approximately 10 of those years without any meds)
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema every 4th night, will try to spread it out more. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
In remission since Jan 2008, can't believe it.............