Colonoscopy, how often ??

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Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 4/27/2008 8:09 AM (GMT -6)   
Just wondering how often we should have colonoscopy's done?? I hear different things all the time. When I was first diagnosed via colonoscopy I was told yearly... then when I asked about it a year later I was told not to worry about it since I wasn't having any symptoms. I asked a different doctor, and was told every 5-10 years. Now that I have symptoms, I am told that I may have one done unless the symptoms clear up in the next month and then I won't have one done.

??

confused.
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG 4 times per day
Prednisone 5MG 3 per day for next 10 days
Daily Vitamin for Women and Folic Acid


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/27/2008 8:16 AM (GMT -6)   
My doc does every two years then every year after ten years with UC. I'm not sure whether he's doing them closer together because my mom had colon cancer (but not IBD.)
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
The information I share on this forum is based only on my own experience and study. It is important to consult your health care provider when making health-related decisions.


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 4/27/2008 9:36 AM (GMT -6)   
my doc says every year when having problems.  once every 3-5 years after having UC for 10 or more years, when things are quiet.(remission)

*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 10 - 12 year remission (approximately 10 of those years without any meds)
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema every 4th night, will try to spread it out more. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
 
In remission since Jan 2008, can't believe it.............


quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
   Posted 4/27/2008 10:40 AM (GMT -6)   
I have one every 3 years....all things are clear regarding cancer. If I were to be having problems that were out of the ordinary and not being helped by meds, my GI would probably do another one before the normal time.

I've had 7 c-scopes in the 19 years so far.
One at diagnosis, one after the first year and then one every 3 years.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 4/27/2008 11:53 AM (GMT -6)   
I go once a year
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 4/27/2008 11:58 AM (GMT -6)   
I asked my GI recently (I've been in Remicade remission for a year and a half) and he said eight years from now.
I might have one just to set my mind at ease in the next year or two. It just seems like a good idea.
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day - Probiotic twice daily - Methotrexate 3 pills once a week - Actonel once a week
Calcium supp. - 1 mg Folic Acid daily - Omega-3 once daily
13th Remicade infusion End of April


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 4/27/2008 12:42 PM (GMT -6)   
My docs insist on yearly.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 4/27/2008 2:26 PM (GMT -6)   
every 2 years unless your having problems.

I just had one last month and we're going ot do another 1 after 1 year of remicade to see the progress
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 4/27/2008 6:31 PM (GMT -6)   
Thanks all... :O)

Another question too.....

If you have a colonoscopy during a flare can the procedure and/or prep make the flare any worse ??
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG 4 times per day
Prednisone 5MG 3 per day for next 10 days
Daily Vitamin for Women and Folic Acid


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/27/2008 7:01 PM (GMT -6)   
It all depends on the doc for the most part on how often colonoscopies should be done...and yes, it can worsen or even bring on a flare when getting a colonoscopy but the risk isn't necessarily really high and it's still better to get scoped than not.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
   Posted 4/27/2008 9:24 PM (GMT -6)   
agreed. I only had a flare be exacerbeted by the clean-out...the first two times I was already flaring so it didn't matter. Other times I wasn't flaring.

Best to have it than not.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 4/28/2008 10:33 AM (GMT -6)   
well, now that I have pancolitis and have had UC for 8 years I have to go yearly now.
I forget which one my GI said was why I had to go yearly???

my understanding (could be wrong) that you have colonoscopies every 5 years (or if you have a bad flare earlier) up to 10 years (so you go two times in 10 yrs) then you go every two years after that.

Uuugh, the worst part for me is the prep, I hate that, I get so nauseated and hurl!! I think I like the phosfo soda the best (the least amt to drink) I am going to see if I can do that for my next one. The miralax stuff made me barf!
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/28/2008 6:48 PM (GMT -6)   
During my recent hospitalization I asked the doc about this.

He said unless you're having problems that are not being resolved by regular treatment methods - resistant flare - colonoscopies should be done at the 10 year mark and then yearly (maybe every two) after that for cancer screening.

Each GI I have had usually has his own opinion - except this one and the last one whom I really liked - they both seem to have the same opinion.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
30mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 4/28/2008 8:09 PM (GMT -6)   
Thank you all... very helpful !! :O)
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG 4 times per day
Prednisone 5MG 3 per day for next 10 days
Daily Vitamin for Women and Folic Acid


Mrsarcasm
Regular Member


Date Joined Oct 2003
Total Posts : 80
   Posted 4/28/2008 8:16 PM (GMT -6)   
I have been going every year to 18 months
___________________________________________________
 
Asacol - 6 pills
Rowassa Enema- 1 nightly
Probiotic - 1 daily
Multi Vitiam - 1 daily
Vitiam C - 500mg daily
Prednisone - 30mg, 25mg, 20mg

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