I had poseted about this a couple of months back, and now have actually tried it and wanted to get the information back out there...
I had a really bad string of horrible reactions to medications...prednisone, remicade, 6mp...and ultimately felt the medication was making me feel more sick (because of the side effects) than I really was. I decided to come off all medications for a while...except my asacol. My doctor also recommended this:
I also wanted to alert you to something you could do that might be helpful AND has no toxicity. There is recent interest in a compound called "Phosphatidyl choline". This is an important component of cell membranes and of the mucus that covers the colon. In health food stores, they often sell "Lecithin" which is made up of phosphatidylcholine and some other compounds. If you check on line, there are numerous web sites that sell phosphatidylcholine - but they vary in the purity of the compound. Many of them sell compounds that contain 30-35% phosphatidylcholine, others sell a more pure (90%) compound. It now is a common supplement taken by people for all kinds of things.
Recently, an important article was published in the Annals of Internal Medicine (2007; 147:603-610). This study looked at patients with ulcerative colitis who could not be tapered off steroids. The patients were randomized to take phosphatidylcholine 2 grams per day or placebo. After 12 weeks, 80% of the patients given phosphatidylcholine were off steroids compared with only 10 % of patients given placebo.
You might consider taking this as a vitamin supplement. There are no downsides - it is extremely safe. There are many websites that sell it. But, one site that sells pure PC is www.phoschol.com. On that site, the pills contain 900 mg of pure phosphatidylcholine, so you would take 2-3 pills per day.
I went to the website and ordered the pills...have been taking 2 a day for at least 2 months...no flares...no blood...maybe 2 BM's a day. I could just be in a "good pahse," but I am hoping that this is helping and I will not flare again soon!! I am running out of medications taht work for me!
Hope this is helpful to someone...i really would suggest trying it, or at least researching it.