what sssssssssssssup?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 4/28/2008 2:57 AM (GMT -6)   
I've been having a lot of mucus and gas for a few weeks now. I have gas urgency i.e. a need to get to toilet to pass gas as opposed to stool. My BM are really good. Have about 1 or 2 per day. At best normal, at worst mushy. However I can also have between 2-4 gas and mucus attacks.
My doctor has run blood tests and everything is normal. CRP and Sed Rate even below normal levels, iron levels are excellent, WBC excellent, platelet levels are fine. There is no evidence from the bloods that I am in or am moving towards a flare. Yet I have these gas and mucus attacks that are similar to being in a flare.
 
I'm wondering is there anything else going on that the bloods are missing. My doctor has referred me back to my GI for some more guesses!
 
Thanks,
 
D
 
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


mimbot
Regular Member


Date Joined Apr 2008
Total Posts : 22
   Posted 4/28/2008 3:13 AM (GMT -6)   
Blimey your symptoms are mirroring mine at the minute, i can't gat my head aroung it either! I keep thinking i'm on the verge of a flare, then nothing happens, only lots of gas and mucus. my bm's not very regular at the minute, in fact i'm struggling to go at all, i spoke to my doctor this morning, sh's given me something to help me go now, i feel like i'm on a merry go round, trips to hospital then docs then hospital again. if your doctors do find anything, please keep in touch as i'm at my wits end with this as i'm off to majorca in less than 2 weeks and worried how i will be there as last years holiday was ruined by a major flare! thanks miriam x

love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 4/28/2008 6:02 AM (GMT -6)   
That are my preflare symptoms. I usually start with the gas, then the mucous, then the urgency, blood, D, etc, etc.
 
 
Dx:  UC Proctitis 2006
 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.
 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering.
 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 
Added: tumeric and probiotics.
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 4/28/2008 7:24 AM (GMT -6)   
yes, those are my pre-flare symptoms too. How much Asacol do you take a day? You may need to discuss upping your dosage w/GI if you are not at the max dose or possibly take some rectal meds....

Maybe if this is flare you can stop it now???
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 10mg 1xday (taper 5mg a week from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalpril 20mg 1xday, Fursomide 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 4/28/2008 7:27 AM (GMT -6)   
My doc is not convinced that this is driven by the immune system. He said after 3 weeks a flare could not be masked by bloods. There would have to be some evidence. He said "there may be something else going on". Brilliant doc, I've been telloing you that for the last 12 months.
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30377
   Posted 4/28/2008 8:18 AM (GMT -6)   
Start your rectal meds anyway. You're starting to flare...and even if there is "something else going on"...you will probably flare anyway.
 
Weird...My doc never takes blood tests to "tell" me if I'm in a flare or not....listen to your body.
 
Did your doc take stool samples or at least take a look-see?
 
 
quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 4/28/2008 8:21:11 AM (GMT-6)


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 4/28/2008 8:42 AM (GMT -6)   
I remain on oral and rectacl meds. But with all due respect Qunicy we'll let my doctor or GI decide whether or not I'm beginning to flare. As of now there is no evidence of a flare so I'm not rushing around and getting myself upset that a flare is imminent. Also my body doesn't feel like its moving towards an immune related flare. And even if there is something else going there is nothing to suggest that a flare will also be probable.

Rather I'd prefer that my doc and GI worked out why I have a host of digestive symtoms that they've been ignoring for 12 months and now only dawning on them that there could be some other problem "going on" - GERD, lactose intolerance,IBS or whatever.

I feel frustrated by the one track mind of my health practioneers. Everything is symptom driven so any complaint I made over the last 12 months was labelled UC - related and duly tossed to file.
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 4/28/2008 9:36 AM (GMT -6)   
sorry to hear that Damo, even my GI who I once thought was not really good, has been very good even at addressing other health issues, such as my gall bladder, when I told him he began to take action immediately by setting me up for a sonogram and treating the issue seriously. Can you find a Doc who will listen to you and not make you wait 12 months to decide that there may be something else wrong?

I suggest checking out the GERD board here, I had something affecting me lately and went there and I think I found the answer at least I found that I am not alone and will bring up at my next appt w/GI.

Also, IMO - I wouldn't discount the gas and mucous not being UC related, when that would happen to me I always felt fine just gassy and would get some mucous, you may have other stuff that is not UC and should be dx'd as something else. I am not saying not to listen to your Doc's, I am just saying don't rule it out completely.

I was undiagnosed by several Dr.'s for 7 years about my kidney disease (my GI was the one who finally had me tested correctly). I am very lucky that my kidney disease is MCD and not FSGS otherwise after having it for that long I would probably have very low kidney function at this point and be close to a transplant and/or dialysis. You know your body best, keep searching for your answers!!!
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 4/28/2008 10:19 AM (GMT -6)   
Yes I'm just worried that there is something else MAJOR going on. I know that having 1 immune condition increases the chances of having another. I've tried the GERD, IBS boards here over the last 12 months and gotten some good tips and good advice but when I go back to my doctor its stone-wall "UC related".I still feel my doctor has not taken these other symptoms seriously. I'm tired of being told "its UC related" when (at least in this case) theres no signs that the body is exhibiting inflammation. Though I think my doctor finally woke up this morning.

Mind you having your doctor say "Wow that's funny" and scratch his head when hes reading your blood tests wldnt make you mega confident!!!!!!
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 4/28/2008 10:52 AM (GMT -6)   
yeah, that would shake my confidence!!!! My old primary Dr. told me that my UC was from eating Wow potato chips w/olestra in them, I could not possibly have UC even though my mother did....I am so glad I do not have her any more and in my journey w/my cankles over the past 7 years, I had been told that I was basically an idiot by Dr's., one took one look at my shoes (yeah they were a little to fancy and high heeled that day, most days I wear flat comfy shoes) but was like it's your shoes that are causing it and treated me as though I was a dumb blond wasting his time and really made me second guess myself and feel stupid about seeking treatment and hesitate to keep on searching.

You will find it, just hope it doesn't take too much longer and you are able to start adressing it soon!

One more thought, since you got these symptoms was it before or after taking any medications? If it started after starting certain meds (6 mos to a year) I would take a look at the side effects, not just the major side effects but all of them for instance I got kidney disease from sulfasalazine (it says Nephrotic Syndrome or Kidney Disease as a side effect). Now I did not associate my swollen ankles w/kidney disease or know what the heck Nephrotic Syndrome was, but in retrospect (easy now eh!) if I had researched every side effect listed for Sulfasalzine with edema I would have found it. I had just tried to make the sulfa - edema connection, but it's not listed like that.

Anyhow, I am not sure if that is helpful at all, I just hope I can help someone not go through what I did.

I wish there was a database of side effects where you could just type in your symptom and your meds.
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 4/28/2008 11:32 AM (GMT -6)   
damo123,

Are you taking probiotics? Just another possibility.

When probiotics are really doing their job, they are sometimes known to create gas.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 4/28/2008 12:00 PM (GMT -6)   
Yes I've started on probiotics recently...but the gas is so bad i figured surely it cldnt be from some simple non diary bacteria. Though I will admit the gas is different from the D - type gas...if such a distinction can me made!!!!!!!!!
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 4/28/2008 1:46 PM (GMT -6)   
damo - sometimes I feel the same way - like something else serious is wrong. Don't ignore your body - on a side note I decieded to try activa thinking more yogurt can't hurt:) I got really sick! I don't know if it is because it is another strain of cultures that isn't in my normal probiotic or what but I gave it 4 or 5 days and then I reliezed what was making me sick and really gassy.
Jessica 26/F On Entorcout again...
Citalopram 10 MG
Asacol 4pills /three times a day(from 2 pills/ three times a day)
Culturelle once daily
Tried (Entorcort EC 9ml/day and Prednisone)


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 4/28/2008 1:56 PM (GMT -6)   
The thing is I dnt wanna commit to Pred unless theres inflammation there that needs suppressing.

I feel really good and thats why it doesnt feel like a flare.

Its just that food now seems to be giving me tremendous gas and is not being digested properly.

Its like my digestive system isnt working. I'm wondering did my colon walls just never heal (rather than being actively inflammed). Maybe I should be looking at something like L-Glutamine.

This might sound selfish but at least if my inflammation markers were up id know its UC
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


Roopkirani
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 4/28/2008 3:08 PM (GMT -6)   
Hi Damo,

I have been experiencing the same symptoms as you only without the 1-2 bowel movements daily (instead, I'm struggling with no BM for 3-4 days followed by one day of whatever mush wants to force itself out). These symptoms are unusual to my case and have certainly boggled me over the last several weeks.

Any way, I just wanted to say that you made a comment regarding L-Glutamine and I thought it was funny because I just returned from the health food store and purchased a bottle for myself thinking the same thing as you did above. I think it's worth a shot.
24, Female
Dx: Pan-colitis, December 2000
Current Meds: 75 mg 6MP daily (since September 2001)
Previous Meds: Asacol, Prednisone (for moderate to severe flares)
Supplements: Omega 3, Multivitamin, Probiotic (HMF Forte), Green tea


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 4/28/2008 3:59 PM (GMT -6)   
Great minds think alike! I'm going to hold out with my symptoms for another 2 weeks until I visit my GI. Perhaps you might tell me how you got on with L-G over those 2 weeks if you get a chance.

Thanks,

D
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


waterdog
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 4/28/2008 6:21 PM (GMT -6)   
I do not have UC. So I do not know if this counts or not, but I had alot of gas and mucus about 11 years ago. I had a Gall Bladder issues. Once they took it out pretty much the gas went away. My doc told me it was just acid reflux, so for 2 years I lived with passing stones about once a month. Have they checked out your gall bladder?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30377
   Posted 4/28/2008 7:02 PM (GMT -6)   
did the doc at least take a look?

do you have any other pain? Does it correlate to a certain time of the day?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 4/29/2008 6:23 AM (GMT -6)   
Hi damo- I have the same symptoms as you- lots of gas, passing only mucous, anywhere from 3-6 well-formed, pretty solid bm's a day. I am feeling good! no blood at all, haven't seen any since a few months ago. I think this is the end of a flare, rather than the beginning- reason being, I'm told inflammation of the rectum is the hardest to control. I've also heard that oddly enough, gas is a symptom of rectal inflammation. Over the past few months my UC symtpoms have improved- bleeding has stopped, stools is formed, no diarrhea, sleeping longer at night, etc. I am still bothered by the urgency, & when I go, it's usually just a bit of mucous. So contrary to popular opinion, for me, this is the tail end of a flare. Look at your symptoms over the course of the past few months- have they improved? I had a colonoscopy done about 2 months ago which showed about 10" of inflammation. So I know there is still some UC action going on, but compared to past flares, it's not much & it's quite manageable. Unless your symptoms get worse, look on the bright side- you could be healing & the stubborn gas & mucous are the last to go.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, April 20, 2018 10:54 AM (GMT -6)
There are a total of 2,953,634 posts in 324,021 threads.
View Active Threads


Who's Online
This forum has 162090 registered members. Please welcome our newest member, no sleepless.
409 Guest(s), 13 Registered Member(s) are currently online.  Details
logoslidat, 3timechamp, BillyBob@388, Octobrsky13, enginerd, 4meows, InTheShop, quincy, Tim Tam, almost medfree, Tall Allen, straydog, deedee