I've been having a heck of a time with my back these last 6 months or so but I have a history of back pain going all the way to my late teens. I got a diagnosis of sacroiliitis last November. I've had numerous tests including a ton of bloodwork, MRI, xrays, EMG - you name I have had it. NO ONE can tell me where my pain is coming from. NO ONE can tell me why I can't stand, walk or sit without being in pain. It's not just my SI joint but my lower back and upper back as well that hurts. I'm 38 years old and I feel as if I am 80! I can barely get out of bed in the mornings let alone do active things with my family.
After my appointment from hades 3 weeks ago (which I posted my vent about on here), I called my primary to see if she can refer me out to another rheumy. Unfortunately, there are only TWO rheumy's within my network (I have an HMO) and they are in the same office. I am thinking that I have the beginnings of some sort of arthritis in my spine. And I am going in tomorrow to have my blood drawn to check for a certain marker (HLA-B27). Well anyway, my primary said that even if I do have arthritis that there isn't anything they can do about it. But I told the lady (the receptionist was the go between me and the doc), that if I have a certain type of arthritis and I start on a medication that maybe it can slow down the progression. But the whole phone call left me in tears because I feel as if no one can tell me anything. I can't but help feel as if I am going to be in a wheel chair soon and not even KNOW why!
So here is my dilema. I am thinking about going outside my familiar network to a larger and better hospital. One that has a great reputation here in Michigan (Beaumont of Royal Oak). But if I was do that, I would have to give up my GI. The same GI that I have been with for the past 12 or 13 years. My GI doesn't go to this hospital. So what would you do? Would you give up your GI whom you love in order to find another doctor who may or may not be able to help you with your back problems? Has anyone had something similiar happen to them?
Any advice you can give me would be greatly appreciated. I'm becoming quite depressed and I am so confused.