Remission may mean something different for everyone, but in my opinion, remission does mean symptom-free. I have never had any symptoms while in remission.
I find three things rather interesting/disconcerting about
your Doctor's comments:
(1) Edema = Swelling/Inflammation. If he found edema, he found inflammation. How can you have inflammation and be in remission? The inflammation is likely what is causing your symptoms. Just because no ulcers are present does not mean that you are in remission. The inflammation has to be gone as well.
(2) He told you that you won't need another colonoscopy for 5 years. My GI has always advised a scope every 4 years if you have had UC for less than 10 years. When you hit the 10 year mark, he advises a scope every year in order to keep an eye out for dysplasia. I'm not sure how long you have had UC, but I find 5 years to be too long between scopes regardless.
(3) He told you to follow up with your family Dr. I am shocked that a GI would not want to see you for maintenance visits. My GI sees me every 6 months... whether in remission or flare. I don't like that this Dr. just pawned you off an a family Dr. that likely does not have the requisite depth of knowledge about
How do you feel about
getting a second opinion from a different GI? If it were me, would be inclined to do so. I think you are right to question his diagnosis.
Proud new mom of a beautiful baby boy!
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)