Bratcat is still not in remission. But she has been making progress over the past few weeks. She never had a big bleeding problem. This might be TMI but at the worst, she saw a little on the poop (not much) and usually just the first wipe with TP. On the TP it would be a very small amount like just as a cut almost stops bleeding. Today she had her 3 or so bathroom trips in the morning. All over a period of hours. Nothing extraordinary. Then on her 3rd trip she saw blood when she wiped. Saw blood in the toilet. Saw blood when she wiped again (and again). Took a hydrocortisone enema (and she took a nap). She just went to the bathroom now (only to pee) and checked when she wiped. She still has a bit of blood. Not as much but this is the first time that she has seen blood like that.
She had her 2nd Remicade infusion last Tuesday. She lowered her prednisone on Wednesday. She had been seeing a very small amount of blood when she went to the bathroom off and on since the weekend before the 2nd Remicade. She felt pretty good after the 1st infusion. This last one didn't seem to do anything great.
I did speak with the nurse practioner today but she wanted to talk to the doctor first. I won't hear from them until the morning.
I was just wondering if anyone had any ideas. She doesn't seem to have a hemmorhoid (at least she has no pain). It seems it's 2 steps forward and one step back. She was planning to go back to school part time this week but so far that hasn't happened. Will try again tomorrow.
Sorry again if this is too much information. I figured you have heard and seen it all. Thanks for any input in advance.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 50 mg prednisone
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!