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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 4/29/2008 3:27 PM (GMT -6)   
Bratcat is still not in remission. But she has been making progress over the past few weeks. She never had a big bleeding problem. This might be TMI but at the worst, she saw a little on the poop (not much) and usually just the first wipe with TP.  On the TP it would be a very small amount like just as a cut almost stops bleeding. Today she had her 3 or so bathroom trips in the morning. All over a period of hours. Nothing extraordinary. Then on her 3rd trip she saw blood when she wiped. Saw blood in the toilet. Saw blood when she wiped again (and again).  Took a hydrocortisone enema (and she took a nap). She just went to the bathroom now (only to pee) and checked when she wiped. She still has a bit of blood. Not as much but this is the first time that she has seen blood like that.
 
She had her 2nd Remicade infusion last Tuesday. She lowered her prednisone on Wednesday. She had been seeing a very small amount of blood when she went to the bathroom off and on since the weekend before the 2nd Remicade.  She felt pretty good after the 1st infusion. This last one didn't seem to do anything great.
 
I did speak with the nurse practioner today but she wanted to talk to the doctor first. I won't hear from them until the morning.
 
I was just wondering if anyone had any ideas. She doesn't seem to have a hemmorhoid (at least she has no pain). It seems it's 2 steps forward and one step back. She was planning to go back to school part time this week but so far that hasn't happened. Will try again tomorrow.
 
Sorry again if this is too much information. I figured you have heard and seen it all. Thanks for any input in advance.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 50 mg prednisone
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 4/29/2008 4:38 PM (GMT -6)   
Sounds like a internal hemmorhoid or anal fissure. The blood is bright red and you're seeing a little even when she's only urinating and not having a bowel movement? It's possible to have internal hemmies without pain.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 4/29/2008 5:15 PM (GMT -6)   
I ALWAYS have a a little bright red blood on my toilet tissue after a bm. I think its just a sign of the rectum being inflamed?
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG 4 times per day
Prednisone 5MG 3 per day for next 10 days
Daily Vitamin for Women and Folic Acid


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 4/29/2008 6:32 PM (GMT -6)   

Pooie, the little bit of blood on the TP is not too worrisome. She knows she is still flaring. Today she saw a bit more (maybe 1 inch spot) and again when she didn't have a bowel movement. That bothered her.

Princesa, if it is an internal hemmy, how do you find out? How is it treated?


--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 50 mg prednisone
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/29/2008 7:28 PM (GMT -6)   
Sounds like a hemi or fissure. I'll see actual drops of blood in the toilet when mine act up - at least I THINK that's what it is... I apply A&D ointment to soothe that area.

Let us know what the doc says.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
30mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/29/2008 7:40 PM (GMT -6)   
I believe I have an internal hemmie and mine normally doesn't hurt either. It sort of itches and burns though when it acts up. I bleed with mine but it's usually on the TP or the stool. The only time I have had blood drip in the bowl is when I was flaring. It's alarming how much even just one drop of blood can seem to be a lot - it's sort of a shock. Yes, obviously she is flaring and it's good you called the doc. How often does she use the enemas?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


bluepurl
Regular Member


Date Joined Feb 2008
Total Posts : 56
   Posted 4/29/2008 8:04 PM (GMT -6)   
this might be TMI as well, but I have an internal hemmie and it doesn't give me pain, but does leave blood on the tp and stool. they can develop from frequently going, and mine is the lowest grade, so there's not really a treatment for it unless it gets worse, even though I think it looks pretty bad as it is! Straining even a little seems to encourage more blood. They found mine while I was out for my colonoscopy, but they could probably check during a regular exam.

Good luck, you guys are real troopers!
Get me a box of kittens, stat!
28 year old Jersey Girl
Asacol x 12, nulev x 4, generic rowasa at night
Thought it was IBS since 2002. Diagnosed left-sided UC 4/08. Starting SCD after Passover. Determined to get into remission before paintball season ends


Alycacc
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 6/13/2008 1:14 PM (GMT -6)   
I visited my dr. the other day and he said he's not concerned about the bleeding...i thought that was strange...why would he be concerned? What does long-term bleeding mean?

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/13/2008 1:26 PM (GMT -6)   
Long-term bleeding means you have ulcerations, hemmorhoids or fissures that aren't responding to treatment... which is not good. If it goes on long enough, you can become anemic.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


Alycacc
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 6/14/2008 8:56 PM (GMT -6)   
Thank you Princesa for your reply! I asked my dr. why he wasn't concerned and he said that my blood counts were high and iron level is really good. What I do get nervous about is the colitis worsening or getting perforations...
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