What should I ask the doc

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

my3suns
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 4/29/2008 5:18 PM (GMT -7)   
I have to see the GI doc on Thursday.  I am not very good at asking question when I see the doctor, so could someone advise me as to what I should ask him.  I was diagnosed in September 2006 w/ ulcerative proctitis.  I took canasa for about a year and a half - it stopped working.  I had my 2nd colonoscopy in February where it was determined that I have pancolitis.  I am now on Lialda and Rowasa, but they don't seem to be helping.  I began taking them about a month ago.  I am worried that I am not on the right meds, as they are not doing any good, I feel like crap all the time, I am extremely fatigued.  I'm not shy, I just really don't know what is key to ask.
 
Thanks!
my3suns
 
Diagnosed with UC in September of 2006
My current meds are Rowasa and Lialda
Current state - Flaring


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/29/2008 6:32 PM (GMT -7)   
I think you listed the main things:

You're worried about meds and how to know if they are working
You still feel awful - be sure to state what your chief complaints are
You have extreme fatigue

I'd add - what is the doc's treatment plan for you?

Things to make sure you know when you go in: how many bms you have per day and list of all meds and supplements you are on.

I like to have it all written down or typed out on a sheet - then I can just hand it to the nurse and the doc can review things before he comes in - and it's RIGHT THERE in front of him when we're talking.

Best of luck!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
30mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


my3suns
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 4/29/2008 7:23 PM (GMT -7)   
Thank you dakotagirl for the advice. I think it is a great idea to have everything written for the doctor. That will probably keep me on track. I think tomorrow I will write down all of my symptoms as well. I always minimize how I am feeling when I get in front of the doctor. I don't know why, but I do it everytime. If I have it written down I won't be able to do that.

Thanks again!
my3suns
 
Diagnosed with Ulcerative Proctitis in September of 2006
Canasa
Diagnosed with Pancolitis in April 2008
My current meds are Rowasa and Lialda
Current state - Flaring


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 4/30/2008 4:00 AM (GMT -7)   
Hi. I think it's a great idea to always go to the doctor's office prepared with questions or notes. I tend to forget everything when I'm there!

In addition to what dakotagirl wrote, you could also add these questions:

If the Rowasa isn't working, should you try a different rectal med? Would it be worth trying something with steroids just for the short term to try to get a boost to feeling better?

Would any kind of supplements help your body heal and/or help your general energy level?

Should you know by now if the Lialda is working? How long does it take to work?

Also, I always write myself a note to get prescriptions so that I don't have to call and ask for refills.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.
Alternative treatments I have had success with: Acupuncture, Hypnotherapy


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/30/2008 12:05 PM (GMT -7)   
Yes - don't minimize symptoms! (But don't over play them either.) My last PCP gave me a lecture about not thinking everything was my UC - I tended to downplay symptoms and blame everything on the UC. She set me straight!

I keep a Word document that I update before every appt. Helps me to keep things straight!

Let us know how your appt goes.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
30mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


my3suns
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 4/30/2008 3:01 PM (GMT -7)   
I'm not a person who likes to put a lot of attention on myself, which I guess carries over when I go to the doctor. I just don't like things to be about me. I know when I go to the doctor I have to talk more and discuss what is going on, but I just end up minimizing what is going on. Right now though, I am so frustrated and tired of feeling bad that I want to make sure that i talk about the right things so we can start down the correct road to remission.
my3suns
 
Diagnosed with Ulcerative Proctitis in September of 2006
Canasa
Diagnosed with Pancolitis in April 2008
My current meds are Rowasa and Lialda
Current state - Flaring


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 4/30/2008 3:26 PM (GMT -7)   
Definitely take a list. I always have my sticky note w/ questions handy when I go in. Let us know how it goes!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/1/2008 6:58 AM (GMT -7)   
I'm the same way - or was anyway. I hated the focus being on me at the doctors. But in these past few years, I've gotten to the point in which I'm sort of objective when I am describing my symptoms to the doc. I used to be embarassed by it and would turn red so I had to keep reminding myself that I'm talking to a doctor that specializes in this stuff! So now, when I go in there I bring a list of what is bothering me. Because sometimes something that was bothering me a few months ago isn't such a big deal as the day of the appt so I would play it off or just not mention it. Until it would happen again - then I would slap myself in the forehead and ask now why didn't I bring that up to the doc??? So never down play your symptoms and always keep track of things that are bothering you. A good doc will listen to you and offer advice or help you.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, February 17, 2018 6:25 PM (GMT -7)
There are a total of 2,930,343 posts in 321,519 threads.
View Active Threads


Who's Online
This forum has 160273 registered members. Please welcome our newest member, ewizer.
380 Guest(s), 5 Registered Member(s) are currently online.  Details
Monty64, BabsBunny, Garion, FLBeachgal, hops123