Pseudopolyps Question

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Jules77
New Member


Date Joined Mar 2005
Total Posts : 13
   Posted 4/30/2008 9:52 AM (GMT -6)   
Hi,
 
I have had UC for about 8 years now and had my 2nd colonosopy yesterday.  My colon was full of pseudopolyps.  I'm freaked out!  I had a super bad flare during a very stressful pregnancy which I ended up losing the baby because of placenta problems and my flare is now gone.  I've only had about 3 flares ever which seem to come on when I'm super super stressed.  He wants me to go back in for another colonoscopy in a year to monitor.  I've heard of people talking about taking the colon out when they get these?  Can someone help me?  What happens when they take out your entire colon?  What are the risks for that?  Can you live a normal life?  Can you live a normal life with a colon that has lots of these pseudopolyps?  I guess I have just have a lot of questions and anxiety about all of this.  I started with just left sided UC and now it's my entire colon.  I should mention that I'm not in a flare at all right now and have no symptons....  I'm 31 years old and am so scared about the future. Any advice would be so helpful!!!!!!!!  Thanks!

barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 474
   Posted 4/30/2008 10:15 AM (GMT -6)   
Sorry I dont have any answers for your question - but I would also like to hear the answer.  I also have lots of peudopolyps. And am equally worried...
Abatacept Trial since Feb 2008 (Induction Period)
Back on Pred - 3mg - Steroid Dependent :-(
Azathioprine 175mg
Colazide x3
Actonel 35mg, EPA Fish Oils
Predfoam Enema - Had to stop as not allowed during trial
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
 


UMDTerp2001
Regular Member


Date Joined Sep 2006
Total Posts : 246
   Posted 4/30/2008 10:18 AM (GMT -6)   
I mentioned this in my recent post about my colonoscopy and Eva Lou made some good comments. I'd also be interested to get more information from the experienced folks on the boards regarding this topic.
 
 
__________________________________________________________________________________
- 29 y/o male residing in Northern VA
- Currently in remission
- Indeterminate UC diagnosis April, 2006 - symptoms came on sudden and resulted in year long battle to get things under control - still testing for Crohns
- Approx 8 mths into ordeal a very painful fistula formed - now stable but not completely healed
- Completed 3rd pred taper on 4/13/07 - tapered from early Jan 07 -- mid-April 07 after being hospitalized from a bad flare with anemia & joint pain
- During Apr-May 07 suffered through 2 mth long migraine
- Joint pain has mostly cleared up but does flare up now and then 
- 4 Colazal/day,  daily multivitamin, Fish oil & Primal Defense Probiotics 2x/day
 
 


darlene
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/30/2008 10:21 AM (GMT -6)   
Hi Jules 77, I'm 59 years old and had uc most of my adult life.   2years ago I had my large intestines removed because of polyps. (Precancerous ones) I did not have to have this operation, but I was advise to. So I did. But every  case is differant.If you decide against it, make sure you have a colonoscopy on a reg. basis every 6 or 12 months to keep things in check. By the way having no lg. bowel does not deter me from doing anything. I dont have to worry about messing myself anymore with the uc.ha ha yeah

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/30/2008 10:32 AM (GMT -6)   
I did not have polyps but had my colon and rectum removed because of refractive UC. I had a jpouch constructed 7 years ago. I live a very normal and full life. I regularly hike, do long distance hikes (100-200 miles), backpack, and cycle. My lack of colon or rectum does not prevent me from doing anything. Sure, life is different without a colon but the sacrifices have been worth it to me. You might meet others who have had surgery for polyps at www.j-pouch.org

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 4/30/2008 12:28 PM (GMT -6)   
again, pseudopolyps & polyps are two entirely different conditions. Pseudopolyps are a type of scar tissue caused by inflammation, polyps are changes in the cellular structure due to precancerous tissue. Rwead UMDTerps post about his recent colonoscopy- I did post my info & experience with pseudopolyps. I truly think the decision to remove a colon due to pseudopolyps is based on the individuals willingness to accept a low rate of colon cancer detection. Maybe when we're all in our 50's, we will have to get the darned things removed, but now, when we're feeling fine & consider ourselves to be in remission??? nah...... But a lengthy talk with your GI should really help.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


Jules77
New Member


Date Joined Mar 2005
Total Posts : 13
   Posted 4/30/2008 1:11 PM (GMT -6)   
Eva Lou - Thanks for the info! I'm waiting for the biopsy results to come back but the Dr was pretty sure that is was just the pseudopolyps. I don't have any other symptons right now and I've only had 4 flares in my 8 years with this and they only last about a month each. I'm not even on any meds right now but he said that I should be to stay in remission. We are going to talk more at my follow up appt in a few weeks. He just said my colon was full of these pseudopolyps. What is the risk with these? Is it in cancer detection? Can they still find cancer? Can these ever go away on there own? Thanks!

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 4/30/2008 1:28 PM (GMT -6)   
The only risk is cancer detection- the way my GI explained it, was that when they see polyps, they remove them to avoid the possibility of cancer developing. With numerous pseudopolyps, there is no way to tell them apart from a true adenamatous (sp-???) polyp, which often develops into cancer. So, by removing the colon they remove all the polyps & therefore all the caner risk. I think the ability to find cancer becomes problematic when one has hundreds of pseudopolyps. I don't think they ever go away on their own, because it is like a scar. Apparently they're fairly common in IBD & rarely develop into cancer. So to me, it seems like a matter of personal peace of mind- do I risk possible undetected colon cancer? Or do I get the whole thing out & say the heck with it? After going thru the mental back & forth of surgery 2x over, I've decided to risk it, personally. I have an appt. with my GI in a couple months, a regular follow-up & I plan to talk more with him then about cancer screening, the pseudopolyps, etc. Good luck with your biopsy results!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/30/2008 10:05 PM (GMT -6)   
Here's a link to the other post:
http://www.healingwell.com/community/default.aspx?f=38&m=1112236
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
30mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


snickers0506
Regular Member


Date Joined May 2008
Total Posts : 63
   Posted 5/2/2008 9:38 AM (GMT -6)   
My last colonoscopy showed numerous pseudopolyps and when I questioned my GI doc, he said they are nothing to be concerned about and that he just needs to take more time when he does my colonoscopies because he has to be careful not to miss anything that could be cancerous.  Never once mentioned removing my colon or anything.  Totally not a big deal so please don't worry.  Also I have to have one every year, no biggie and it also show no sighns what so ever of active disease.
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