The thrilling story so far:
I exited the Abatacept trial as, although it did help me get from 50mg of pred down to 0, it was unable to do much more then that at the dosage it was provided and the frequency in which it was administered. I and my GI then signed up to the Golimumab trial. A monoclonal antibody that blocks TNF-a.
Prelim work was done. This included a chest x-ray, a few pints of blood, tb scratch test, a urine and poop test, and last but not least, a flexi-sig, all of which I passed and got phone call Monday 28th April to let me know all was good to go.
So, up to the present:
Well, yesterday (1st of May) at 8am, I turned up at the hospital to complete the final samples required to begin this trial. Had to do another heap of bloods and a stool sample. Once that was done, just had to sit back and wait for the drug (or placebo) to arrive.
12:30 in the afternoon, the "mystery liquid" arrives and I get taken to the infusion room. Off we go!
Ok, so they fed me lunch while I was receiving my infusion, so that was rather nice. Roast chicken with vegies, covered in lovely salty gravy! Yumm
Then the post infusion observation started - can anyone say "marathon"? So yes, 3 hours later, and after another set of post infusion blood tests, its all done and off I go home.
At the time I am writing this, its been exactly 24 hours since the infusion observations finished and I walked out of the hospital.
Maybe I am dreaming and its just wishful thinking, but by body has been rather well behaved today... Ah well, not gunna say anything till I am sure.
Will post again on Tuesday 6th of May... My GI recons I will have a pretty good idea if its working by then...
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
- 28yo male, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
- 2xColazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
- 1xteaspoon of Metamucil 3 times a day;
- 1xBIOCeuticals UltraBiotic 45 per day + 1xSB FlorActiv per day.