Is anyone's loved ones trying to push you to go back to work?

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JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 659
   Posted 5/1/2008 11:44 PM (GMT -7)   
Hi Everybody,
I haven't posted in some time. But I still read the posts from everyone.
My issue is, I've been on disability now for 3 1/2 yrs because of my
UC. The problem is my partner and a few other family memebers try to push me to go back to work. Its been stressing me out to no end. Being stressed about it is not helping me get better and it just makes matters worse in the UC area.
My partner also has UC and works. I worked till I was 32 and couldnt do it anymore. I just got tired of trying to keep up with work and not call in
sick all the time.
Any advice on what I can say to get them to stop hounding me on this? 
Its been upsetting me quite a bit lately.
 
Thanks for any advice. I really appreciate it
Donna
 
~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Pentasa 2x4 a day
Lexapro ~ 20 mgs daily for sanity  :-)
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/2/2008 5:59 AM (GMT -7)   
I don't have any advice for you other then to say how sad it is that you have had to go on disability for UC. I know in my case disability would have killed me emotionally. As with any debilitating disease I think it's hard for some people to grasp how affected one can be, especially if you look good on the outside which most UCers do. I wish you well and hope you can gain remission and return to a better quality of life.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 5/2/2008 6:23 AM (GMT -7)   
Just tell them "thanks for your input". Are you in remission? Do you miss work? What about trying a low stress part-time job, are you open to that? If not, be honest with your loved ones & tell them to stop bothering you about it. Does your GI agree with your decision to go on disability? If so, you could always use that as a back-up, you know "My doctor doesn't feel working is the best thing for me to do right now."

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 5/2/2008 6:26 AM (GMT -7)   
Is there a job you can do from home?  I don't know what your background is, but that may get them off your back.  Or even working towards a job you can do at home.  I don't really understand the problem they have with you getting disability.  Your doctor had to sign off on that, is that not enough evidence that you need to be on disability???  If you and your partner can make ends meet without you going back to work, what is the problem?  It all comes down to what is best for you, your health is the priority, and you know what is best for you.  I wish you the best of luck and try not to stress..it will all work out. 
 
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 5/2/2008 6:35 AM (GMT -7)   
I haven't worked in a long time.

I started to flare just as my last semester in college was beininning. I was student teaching with just a small flare going on (60-70hrs a week nonstop) as soon as it was over my flare turned for the worst. I was at my worst two weeks before my college graduation (feb 07). Since I have gotten my degree to teach i have only been able to sub part time and now i am not even doing that. I coulndn't teach while flaring. There is no way to run out of a classroom full of 12 yr old to go potty for 10 minutes.

My husband has b een super understanding but i can see how it eats at him. I hope to be able to find a full time job soon (now that remicade is beginning to work...slowly) Mostly i hope to repay my husband's patience and generosity. I'm beginning to realixe that i may never have my dream job that took me ten years of school to achieve due to UC. I worked so hard to become a teacher but can't see how that is going to happen anytime soon. I'm actully thinking of getting a job at starbucks since they give benifits to part time employees and get my masters in library science. It's not bein an enlgish teacher but it is stillworking with kids and books.

My husband doesn't push but there are arguments tthat i know stem from his feelings that i am doing nothing. I get nothing done before noon becuase i am mostly in the bathroom. It's tough on me but i know that it has to be harder on him becuase he is left with all the stress of paying bills.

I don't really have advice on what to say. I'm sorry your in this postition.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 150mg Imuran, no more pred after two years!!!!
Prontonix once daily for acid reflux, zofran twice daily for nausea
Remicade started 3/1/08...just had 3rd infusion


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/2/2008 7:03 AM (GMT -7)   
Kelly, have you considered doing tutoring after school? That's usually a good time of the day for us. Or I have a friend who makes extra money working for Sylvan Learning Centers three evenings a week. When you're ready to go back, you might consider something more regular than subbing, so you can see how you do with a routine. Facing a whole new room of 12 year-olds every day when I went to work would be enough to send me into a flare!

Donna, if you can't work, you can't. It's probably as frustrating for you as it is for everyone else. I don't know how I would have coped if I'd had to go on disability, because it would have been like giving up the last vestige of myself. So I kept working, then came home and rested. My husband uncomplainingly took on all the work around the house. All you can do is explain and thank them for their support.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 5/2/2008 7:06 AM (GMT -7)   
Usually when I work, I get worse. I would just tell them that and that your health comes first. Don't let them make you feel bad. Some people just do not understand how hard it can be having UC and they never will. Don't let them get to you. They don't have to be the ones with the flare-ups and living your life so it's easy for them to say stuff. I would tell them that they are stressing you out by saying that, you have been having a hard time with your health and you would appreciate if they would stop with their comments.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 5/2/2008 7:32 AM (GMT -7)   
Judilyn, I would love to but when i get a job i need benefits. Most of the tutoring places are part time without benefits. Eventually I will be in a school. It's what i have always wanted but for the moment i need bene's and money. And to give my hubby a chance to find a job he loves. He is in insurance now. He took it to get me through school. In my mind it's his turn. he has spent 5 yrs unhappy so i could follow my dream. I will do what I need to to help him find his.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 150mg Imuran, no more pred after two years!!!!
Prontonix once daily for acid reflux, zofran twice daily for nausea
Remicade started 3/1/08...just had 3rd infusion


tums
Regular Member


Date Joined Apr 2008
Total Posts : 128
   Posted 5/2/2008 9:38 AM (GMT -7)   
I get stressed out about work not the work itself but letting everyone down when I call in sick - hate that!. I have had UC for 6 years and had a flare up each year apart from one year and guess what that was the year that I gave up work after the birth of my son. Maybe just a coincidence but if so a big one.

32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 50mg started 4/08
Steroids 40mg per day


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/3/2008 1:22 PM (GMT -7)   
Kelly - your post made me smile. My husband is in insurance (and hates it) and I am in school. I told him he can't look for a new job till I graduate. He has amazing benefits and makes good money. Id laugh if our husbands worked in the same place.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 5/3/2008 3:38 PM (GMT -7)   
It can't be. My husband makes horrible money and has horrible inusrance! But its the best we have at the moment. Although we will never switch our home or auto from where he is now. Its just the health inusrance that sucks.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 150mg Imuran, no more pred after two years!!!!
Prontonix once daily for acid reflux, zofran twice daily for nausea
Remicade started 3/1/08...just had 3rd infusion


JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 659
   Posted 5/3/2008 8:12 PM (GMT -7)   
Thank you everyone for you advise and help.
I have told them when I am ready I will go back.
The thing is they see me as being some what ok not working but thats
because I'm not as stressed out. I still have flare ups a lot. The
thing is my partner blames my last boss for putting me in this situation again.
My last boss was not a pleasure to work with. I'd say more but I can't on
here.
If I could find a stay at home job beleive I would but they are very hard
to come by. If I tried a part time job I'd be making a lot less than on disability too so I'm kinda stuck.
~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Pentasa 2x4 a day
Lexapro ~ 20 mgs daily for sanity  :-)
 

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