pregnancy, flare, cortifoam 1-2 x a day entocort 3mg 3 x a day for 2 weeks

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 5/2/2008 5:17 PM (GMT -6)   
just wondering if anyone has had any experience while pregnant dealing with a flare and treating it with two types of steroids and colazol.  any side effects?  i just want to be prepared and not worried about the baby.  thanks!
3x3 colazol a day
1000 mg canasa bedtime


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 5/2/2008 5:27 PM (GMT -6)   
I'm 5 months pregnant and have been flaring since day 1. I've been using the Rowasa enemas as well as the hydrocortisone and the cortifoam. I was on prednisone for a while, but tapered off (I just CAN NOT take the side effects). I don't think I'll get this flare under control during this pregnancy. I've come to peace with that. Good luck!!
Diagnosed in 2007, but had bowel issues for years

Sulfasalazine - 4 pills 2x a day

Hospitalized for 9 days in Feb 2008 (IV steroid)

Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)

Hydrocortisone and Rowasa enemas when needed (which is usually ALWAYS!)


JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 5/2/2008 5:50 PM (GMT -6)   
that is a bummer.  how do you leave the house?  that is what i struggle with most of all b/c of the urgency.  i hope thishelps.  i'm sorry yours isn't getting under control.  glad that everything is going well with the pregnancy though!  hang in there!

3x3 colazol a day
1000 mg canasa bedtime
3 entocort a day
1-2 cortifoam enemas as needed
prenatal vitamin


tums
Regular Member


Date Joined Apr 2008
Total Posts : 128
   Posted 5/3/2008 7:24 AM (GMT -6)   
I was on prednisone tablets and enemas throughout my pregnancy with my second child and he was born absolutely perfect and healthy. I laugh though because he is a completely different build to my 1st son (much bigger, maybe although those steroids that I took) although I was assured by my doctor that very little of the steroids passes to the baby and was perfectly safe. Hope you get your flare under control soon pregnancy should be enjoyed and I can remember when I was going through it with a flare it wasn't very enjoyable at all.
32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 50mg started 4/08
Steroids 40mg per day


JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 5/3/2008 9:34 AM (GMT -6)   
thats great to hear.  i can't wait to feel better.  i really want to enjoy being pregnant, but feeling so bad makes it really hard!  I'm glad to hear your baby boy came out ok, hope the same happens with our little girl!  thanks again, it really helps talking to people that have been there!

3x3 colazol a day
1000 mg canasa bedtime
3 entocort a day
1-2 cortifoam enemas as needed
prenatal vitamin


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/3/2008 12:15 PM (GMT -6)   
Just over 15 yrs ago when I was pregnant with my son I used cortifoam with no issues at all....it's safe, especially compared to oral steroids.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/3/2008 4:17 PM (GMT -6)   
my daugther is almost 1.
w/ her pg, i used pred, and she is just fine. i did flare through the entire pg tho. But, i STILL enjoyed my pg!!! im a big believer that it is what u make of it...it is an amazing thing that should not be enjoyed to it's fullest! I delt w/ preterm labor, complete bedrest, early delivery, ect w/ both my pg's and i made it a point everyday to stop and enjoy the fact that i had a LIFE inside me!!!

Good luck, i hope that u can get this flare under control and can leave the house soon!!!! shannon

**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 5/3/2008 4:28 PM (GMT -6)   
I had a friend, with UC, and when she was thinking about getting pregnant, she had a doctor say, "How dare you be so selfish and want to have a baby with your disease!" I can't even imagine what I would have said to him! This pregnancy has been VERY rough, but I don't regret it one bit.
Diagnosed in Jan 2007, but had bowel issues for years

Sulfasalazine - 4 pills 2x a day

Hospitalized for 9 days in Feb 2008 (IV steroid)

Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)

Hydrocortisone and Rowasa enemas when needed (which is usually ALWAYS!)


daniella510
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/3/2008 5:46 PM (GMT -6)   

JEG - do you mind my asking if you were flaring when you went into the pregnancy or did the flare kick up after you had already conceived? 

I would like to try for a baby this year and have heard conflicting arguments about the state of UC and pregnancy.  Thank you!


__________________________
Danielle
25/F
Dx: UC in 1997 at 14 with pan colitis, but it hasn't been that far up since.
Meds: Asacol (400mg x12 daily)
         6mp (50mg from Aug06 to Dec07)
         Prednisone (20mg currently tapering)
         Multivitamin
         Fish Oil
         Culturelle probiotic


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 5/3/2008 6:00 PM (GMT -6)   
I'm not JEG, but I can tell you that I was flaring when I conceived, but I don't know if that makes any difference. I had a bad flare when I was pregnant with my son, but did not conceive him during a flare. I think it really depends on the person.
Diagnosed in Jan 2007, but had bowel issues for years

Sulfasalazine - 4 pills 2x a day

Hospitalized for 9 days in Feb 2008 (IV steroid)

Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)

Hydrocortisone and Rowasa enemas when needed (which is usually ALWAYS!)


daniella510
Regular Member


Date Joined Apr 2008
Total Posts : 48
   Posted 5/3/2008 6:08 PM (GMT -6)   
Thank you for filling me in!  You don't know how helpful it is to have you ladies on here to bounce things off of regarding pregnancy - it is just a wonderful yet scary idea to me b/c of UC. Anyways, I think you are right on how it just depends on the person and the pregnancy.  I'm just trying to get a feel for how many women enter a pregnancy not in a flare, but then do flare... maybe b/c of all the rest of the changes that their bodies go through it kicks on the UC

__________________________
Danielle
25/F
Dx: UC in 1997 at 14 with pan colitis, but it hasn't been that far up since.
Meds: Asacol (400mg x12 daily)
         6mp (50mg from Aug06 to Dec07)
         Prednisone (20mg currently tapering)
         Multivitamin
         Fish Oil
         Culturelle probiotic


JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 5/3/2008 7:05 PM (GMT -6)   
From everything my dr.'s told me when I found out I was pregnant, 1/3 of women get better, 1/3 women stay the same, 1/3 women worsen.  I was in remission since I was diagnosed in 12/06.  I conceived in 12/07 and the flare began 4/08.  So I went a good 4 mos. with no symptoms, in fact my normally crazy stomach was feeling incredible.  Unfortunately, I had some anxiety issues and skipped my colazol a few times (well more than a few) and wound right back up where I started in 11/06.  My doc had put me on canasa at first.  1000mg suppository at night to control the flare but I was on that for 16 days with little relief (plus I've developed a hemi which made the constant D and blood even worse and more painful to deal with).  When I went back to the dr. with no relief he put me on cortifoam 2 x a day and entocort 3 pills a day for two weeks and then taper...This is my first experience with steroids and I have only been on them for a day and a half, but already I'm feeling some relief.  I was hesitant to go on them because of side effects and so on to my baby and myself, but after weighing the risks of the medicine and the risk of the continued flare, the medicine is the right choice for me.  I'm already feeling better (a little, I'm trying to be optimistic).  I'm keeping a journal now and writing down every single thing I can remember for when this flare began b/c to me it seemed like it came on overnight and i was in urgently in the bathroom 10 x a day, but looking back there were things that should have tipped me off and now that I am aware of that, I know for next time (we want to have another child someday, this is our first) what to look for and I'll go on meds right away.  As long as you don't flare having a baby is just as normal as someone who doesn't have uc.  And for that lady who's dr. said she was selfish for wanting to have a child, you're doctor is an idiot and i think having a child is the most unselfish thing a person can do.  Have your baby you'll be grea!  Even if you do flare, hopefully you can get it under control!  Good luck!  Thanks to everyone for your posts and answers.  I love this website, it's been so helpful this last month. 

3x3 colazol a day
1000 mg canasa bedtime
3 entocort a day
1-2 cortifoam enemas as needed
prenatal vitamin


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/3/2008 8:25 PM (GMT -6)   
I was in complete remission for ONE YEAR on 6mp when i concieved. I flared right away, however, we did injectables to get pg, so either hormones or stress of fertility drugs may have played a role for me...

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/3/2008 10:16 PM (GMT -6)   
Flares can be different from one to the next and so can pregnacies, my 2 pregnancies were very similar but I was in labour for 14 hrs with my first and 45 minutes with my second.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


aquafly79
Regular Member


Date Joined Aug 2007
Total Posts : 317
   Posted 5/5/2008 4:00 PM (GMT -6)   

Hi Ladies,

Just to add on to everything already posted, I am pretty sure I was flaring when I concieved in 2/06, and was fine until my 2nd trimester, which was hellish. Pred. helped a lot, but the side effects were NOT fun, and my Dr. predicted correctly I would go into remission in my 3rd trimester--something about changing hormones. My daughter was and is completely healthy, though the big 'but' to mention here is post-partum flaring. I was good with just Asacol(Ha! Those were the days!) until my daughter was about 4 months old and began to flare on and off for several months, went back on pred., became steriod dependent and ended up going on Imuran and Canasa/mesalamine enemas which helped me immensely and continue to today. From reading many posts on many sites, apparently this is somewhat common, with all the physical and emotional stressors a baby can bring on. Now I am contemplating another pregnancy (on Imuran), which is a whole other topic...

 


aquafly79
 
Diagnosed with UC in 2004
Had flares all through pregnancy last year, and current flare on and off for about 6 months, Imuran helped me get off Pred. and get into remission!!
Currently on Lialda, Imuran 75mg,
prenatal vitamin(taking for folic acid and other nutrients), calcium, and Bifidus Balance FOS probiotics.
Mesalamine enemas as needed...
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 15, 2018 2:46 PM (GMT -6)
There are a total of 2,981,723 posts in 326,923 threads.
View Active Threads


Who's Online
This forum has 161775 registered members. Please welcome our newest member, Doccal.
391 Guest(s), 5 Registered Member(s) are currently online.  Details
Steph6n, GoBucks, looking4acure, Mickey Childress, LLLLX