Nicole, most people with UC at any given time are in remission and living normal lives. It's just that when people are in flare and struggling, they're much more likely to come here for support and information. So you do get a skewed view of things.
As to why we don't just all have surgery, I'm sure there are lots of reasons. Surgery is final and can't be undone, so we tend to chase remission and have surgery when we just get sick of chasing. The more we're in remission, the less we think about
surgery. There really aren't any "useless" organs in our bodies, even the tonsils and appendix have a function. So removing the colon can be fraught with its own problems, even though it does cure the UC by removing the colon.
I've had UC for about
seven years now, and have worked at a highly responsible professional job throughout. Sometimes it was hard, but it was something I wasn't willing to give up. I assure you, if I hadn't been able to continue working I'd have had surgery.
Everyone's disease course is different, everyone's perception of how they feel is different, everyone has different priorities and needs in their life. Most of us are able to meet those most of the time. For the past two years, I've been able to do whatever I want and haven't had to think much about
the UC. So don't be discouraged or depressed; if what you're reading here is overwhelming for you, you can always take a break and come back later. Remember that most people come here when they're at their worst.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.