Ok, got used to having UC... dx'd today with Shingles... UGH!

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ChancesAre
Regular Member


Date Joined Nov 2005
Total Posts : 146
   Posted 5/2/2008 9:30 PM (GMT -6)   
Warning... this is a poor me pity party.  The good news is that it won't last long (the pity party)... hopefully.
 
On 10/31/05 I was dx'd with UC... started that night on Asacol.  I must be the poster child for responding well to Asacol because within a week I was able to go out of the house and took my DH to lunch for his b'day.  *Knocking on wood*... since then I've had very minor irritations, but no flares. 
 
So, today I go to my doctor because I have an extremely painful rash around my eye, and up into my scalp.  No itching, just intense bursts of pain periodically.  I guess my "punishment" for responding so well to the Asacol is to get Shingles.  Started meds today and finally had to resort to Prednisone.  With the UC I've been able to avoid the Pred, now I'm on 60mg a day.  I had finally gotten my act together and had lost 28 lbs since late December.  I really don't want to re-gain the weight!
 
Anyway, thanks for hearing me out.  I need to vent and get my frustration out so that I can begin moving on.  I know this is more about the Shingles than UC, but didn't see a forum directed at Shingles.  And, in the grand scheme of things, it could be worse!
 
~Eve
~Eve~
 
  UC Diagnosed 10/31/05
Proctosigmoiditis
2400 mg Asacol
 
 Daily vitamin, iron, flax seed oil, emu oil, calcium
 
Not thrilled with the diagnosis, but grateful to finally know what it is and learning how to treat it.


Roopkirani
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 5/2/2008 9:45 PM (GMT -6)   
Hi Eve,

Sorry to hear that you've developed shingles. It's certainly not a fun thing to have at all. :(
24, Female
Dx: Pan-colitis, December 2000
Current Meds: 75 mg 6MP daily (since September 2001)
Previous Meds: Asacol, Prednisone (for moderate to severe flares)
Supplements: Omega 3, Multivitamin, Probiotic (HMF Forte), Green tea


ChancesAre
Regular Member


Date Joined Nov 2005
Total Posts : 146
   Posted 5/2/2008 9:51 PM (GMT -6)   
Thanks for the kind words Roopkirani.  Looking at the humorous side of things, I guess I'm also ticked that I was going to dye my hair and now I'll have to wait for a bit.  Dang, and I'd just worked up the nerve to dye it.

~Eve~
 
  UC Diagnosed 10/31/05
Proctosigmoiditis
2400 mg Asacol
 
 Daily vitamin, iron, flax seed oil, emu oil, calcium
 
Not thrilled with the diagnosis, but grateful to finally know what it is and learning how to treat it.


Roopkirani
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 5/3/2008 9:35 AM (GMT -6)   
haha - I suppose the dye will have to be placed on hold for a bit.

How is the nerve pain? Lessened since starting the meds?
24, Female
Dx: Pan-colitis, December 2000
Current Meds: 75 mg 6MP daily (since September 2001)
Previous Meds: Asacol, Prednisone (for moderate to severe flares)
Supplements: Omega 3, Multivitamin, Probiotic (HMF Forte), Green tea


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/3/2008 10:01 AM (GMT -6)   
I've never had shingles but I hear they can be quite painful. So sorry you have this! Yeah, it seems when one thing goes well something else swoops in and takes it's place. :(
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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quincy
Elite Member


Date Joined May 2003
Total Posts : 30686
   Posted 5/3/2008 1:38 PM (GMT -6)   
Hi...I've never had them, but do know people who have and I wouldn't want to go through it regardless.

I'm not getting the punishment regarding Asacol/shingles punishment...nothing has to do with the other.

I'm wondering why you aren't also on an antiviral....is that not a treatment for Shingles?

Remember that any changes in bms, etc could be a sign of a flare....you should consider (strongly) to have some rectal meds on hand to deal with them firstly.

I hope your path to recovery is short.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 5/3/2008 4:59 PM (GMT -6)   

You need to get on a antiviral like YESTERDAY!!!, Valtrex is often prescribed. My husband had shingles on his face in November. If you get on an antiviral with in the 1st 48 hours of diagnoses it lessons the outbreak significantly! I don't want to scare you but what is to follow is not going to be fun sad Soon your skin will start to blister, huge blisters. They will pop and leave huge scabs. Try not to mess with them they will heal and fall off and probably not leave any scars. My husband is now dealing with postherpetic neuralgia. The shingles are gone but the intense pain has not left. Typically they can do nerve blocks, but since shingles on the face runs along the nerve that stems from the brain they cannot do a nerve block. PLEASE call your Doc and get on a antiviral asap. Again..I don't want to scare you, but we had no idea what we were in for. You also have to watch your vision very carefully. If you notice and blurring get to a eye doctor asap. Shingles that involve the eye can cause blindness. My husband and I found this particularly humorous since his eye that was involved was completely swollen shut....kinda hard to tell if there was and blurred vision eyes

 

Good luck, hopefully yours will only be mild


Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 5/3/2008 6:04 PM (GMT -6)   
I, too, wonder why you've been put on Prednisone for shingles-- which is a viral inflammation. A relative of mine had it & took Zovirax, as I recall, on doctor's Rx. Shingles is an outbreak of herpes that remains in one's body after chicken pox-- usually it stays dormant the rest of a person's life, but some people are unlucky for whatever reason & later get shingles. Pursue the antiviral treatment ASAP! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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