Posted 5/4/2008 5:31 PM (GMT -6)
I did so at judilyn's request to not inflame the situation any more.
Forum Co-moderator
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Posted 5/5/2008 6:43 PM (GMT -6)
I feel I should post a response here for two reasons.

1. If it had not been for Quincy preaching (yes I know she does it a lot) about rectal meds, then I may have not been able to deal with my last flare so quickly. I'm really glad that it's plastered all over the forums because had it not been I may have just dismissed it as I have learned to with a lot of posts on here.

2. I'm quite open to the possibility that UC may be related to levels of seratonin and may be influenced by mood and or anti depressants. However, stress and depression are two completely different issues and I only seem to get depressed after I start flaring (due to obvious reasons).

I will also add that I genuinely believe that medical research is only one pathway to curing UC. It's a disease that has soooo many treatment options, it's quite obvious that people are only just beginning to understand the condition (in my opinion oral 5-asa medications are a joke). I'm pretty much willing to try anything to live symptom free, be it herbal, medical, psychological, exercise.. But I'm not willing to take drugs which are potential more damaging than the condition.

Things like Low Dose Naltrexone are next on my list, if that doesn't work then I'll move on the food elimination diets and allergy testing. I reckon it could take best part of 10 years to try all the current options, and what with all the exciting new drugs entering the market in the next 5 years (plus potential new treatments such as stem cell therapy), I'll still be at it long after that. Of course there are also more depressing pathways my disease could lead me, but like everyone else who has avoided surgery so far, I try not to think about them....
DX with UC Jan 07
Currently taking Colazide (allergic to Asacol and Pentasa) 6 a day
Also taking VSL3 X1 a day

Posted 5/5/2008 8:26 PM (GMT -6)
Jerry Garcia said...
2. I'm quite open to the possibility that UC may be related to levels of seratonin and may be influenced by mood and or anti depressants. However, stress and depression are two completely different issues and I only seem to get depressed after I start flaring (due to obvious reasons).
Jerry, I'm not quoting your post to highlight anything "wrong."  And my response below is not really directed toward anything you said.
 
I post articles like this on here to get people's comments, if I don't often make myself clear as to what "the point" is, it's because I often don't know - if I did I'd be publishing for a medical journal.  I also want to show people that the medical and psychiatric community by no means have a complete or even reasonable conception of why things go wrong, or how to make them better. 
 
So I'm prone to being misunderstood, for instance, with this article I was in no way endorsing antidepressant meds, and now that I think about it a little more, an article like this could well have been sponsored by a company making anti-depressants, who knows.
 
One thing I am certainly not saying is that UC is caused (or even initially triggered) by Stress.  That is just not my view.  And this is another reason I post articles like the one above.  Because I want people (maybe people who are trying to figure out UC after diagnosis) to question the use of the term "stress" and how it is so ambiguous it's not funny, and not scientific.  For those of us who believe this magical "S" word triggers our flares, (which implies that one way of treatment is to improve coping skills) we might do well to realize that this idea of stress might be indistinguishale from the release of adrenalin, cortisol, higher blood pressure, etc.  And it could interact with UC by any matter of means, through vascular action, proteins, anything. 
 
There is a whole field of science on the enteric nervous system.  It could well end up being a brain in our guts.
 
So instead of me wearing myself out getting misunderstood, and splitting hairs with people who probably wouldn't even disagree with me if they understood what I was saying and why I was saying it, possibly fighting ghosts, I'll summarize my whole point of all this blabber and then I wont post about it here anymore.  I'll just post here for actual every day questions about UC management.
 
The thing I've been trying to communicate is opening people's minds to the idea of:
 
1.  UC disease process --> physiological anxiety etc
 
instead of anxiety --> UC disease process
 
I am also quite sure that having UC can cause one to be anxious or depressed as well.
 
To me these posts are intellectual discussions.  I am certainly not trying to forcibly deconstruct someone's personal worldviews or beliefs, or force anyone to change the concept of the world they've formed to understand and cope with UC.
 
 
And why am I so interested in beating a dead horse?  Well, part of me thinks that they might find better treatments for people suffering from any variety of mental illness by "thinking outside of the box" and seeing how things (like the enteric nervous system) effect the mind.
 
But I guess I should enroll in a masters program or just quit the idea altogether.
 
 
Thank You 
 
 

Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 

Posted 5/5/2008 9:16 PM (GMT -6)
Doors,
According to DSM-IVTR medical illness is an Axis III dx, therefore all dxs is weighted by GMC in such a case. Key in "IBD impaired Serotonin Binding" on JSTOR or in Expanded Academic ASAP, if you have access for more info about this subject.
Navy
[color=cyan>Forum Co-moderator - Crohn's Disease</FONT>
<FONT]We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
[/color][color=green>Praise][/color][color=blue>Make]
<FONT color=red>All suggestions/options/opinions are caveated with please consult with your local health care provider...[/color]

Post Edited (MMMNAVY) : 5/5/2008 8:56:09 PM (GMT-6)

Posted 5/5/2008 9:49 PM (GMT -6)
That's fine, but I'm not talking about evaluating someone for legal or insurance coverage purposes.
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 

Posted 5/5/2008 11:46 PM (GMT -6)
doors12....after watching Dexter last night I thought of you. In a good way, of course.....wondering if any psychopaths or sociopaths ever have UC?

Thanks for the clarification...

I'm wondering if the etc in your theory finishes as:

UC disease process --> physiological anxiety ---> cognitive anxiety ---> emotional anxiety --?

What would the etc be?

Having the tendency of depression/anxiety in one's genetics would and could definitely be brought out to an exacerbated or noticable level via UC, making it seem that UC caused it?

By UC disease process do you mean once it's established and its symptoms afterward brought on my anxiety/depression?

I find that stress, be it very subjective, has different purposes....certainly some events in our lives where we feel we have no control in a very deep sense could have UC quickly out of control?

It would be great to have actual feedback from you so that I could "finally" understand what you're meaning.

I'm interested in the psychopath/UC/autoimmune thing.

quiny
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 5/6/2008 9:35 AM (GMT -6)
JerryGarcia said...
I feel I should post a response here for two reasons.

1. If it had not been for Quincy preaching (yes I know she does it a lot) about rectal meds, then I may have not been able to deal with my last flare so quickly. I'm really glad that it's plastered all over the forums because had it not been I may have just dismissed it as I have learned to with a lot of posts on here.

 

Me too, thanks Quincy.
 
I do believe there may be something to this research.  I have found since I got my first symptoms of UC, I have not been myself, even in remission.  I have been depressed and tired.  Whether that be a contributing factor to getting UC or it be one of the symptoms, not sure, but would like to know one way or another.  Depression can be caused by hormone levels (seems UC is also, especially for women), perhaps there is a connection, who knows, what is there to loose.
 
 
Dx:  UC Proctitis 2006
 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.
 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped.
 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 
Added: tumeric and probiotics.
 
 

Posted 5/6/2008 10:28 AM (GMT -6)
I have to agree with you love4cats.. I have been in a flare since March and have been thinking about my emotions and other feelings. I certainly do not feel like my old cheerful self... I can't wait to get back to work.. I think that it may help take me outta this hole. I feel very tired.. exhausted actually and very sad. I certainly think that stress does not help UC any but I don't think it causes it either. During this flare I find that any type of stress makes my abdominal pains worsen. However, when I was in remission and was under stress, I didn't find it had any effect on me.
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG 4 times per day
Daily Vitamin for Women and Folic Acid

Posted 5/6/2008 11:19 AM (GMT -6)
This has gone pretty much way over my head, but there are definitely some interesting ideas being brought up by Doors. One thing which might never be understood, is what causes diseases such as UC and MS to flare up and go into remission. My mother had MS and was diagnosed in her early 20's but went into permanent remission after child birth. There just seems to be no science to explain cases like that.
DX with UC Jan 07
Currently taking Colazide (allergic to Asacol and Pentasa) 6 a day
Also taking VSL3 X1 a day

Posted 5/6/2008 2:38 PM (GMT -6)
JC....it's usually the other way regarding MS. The other possibility is that she was misdiagnosed?

Are you an only child?

The do consider MS an autoimmune disease, and there have been a few UCers with the diagnosis of MS as well.

A hefty price to pay when the body goes awry.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 5/6/2008 4:54 PM (GMT -6)
Yea I'm an only child, why do you ask?

I suppose she could have been misdiagnosed, but my grandfather (on her side of the family) had spondilitis so I guess it would make some sense (at least from a genetic perspective) if she did have MS.
DX with UC Jan 07
Currently taking Colazide (allergic to Asacol and Pentasa) 6 a day
Also taking VSL3 X1 a day

Posted 5/6/2008 4:59 PM (GMT -6)
Hi..it's probably better she only had one child, for pregnancy seems to most often cause more serious relapse.


If you had a sibling, I was going to enquire about his/her health situation.

Thanks for responding.
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 5/7/2008 4:05 PM (GMT -6)
Has anyone noticed extreme mood changes on Entorcort? Been on 9mg for a month now and first I noticed I became very hyper, then weepy/sad over random stuff, and now I feel uneasy. Thanks.

Jason
Posted 5/11/2008 6:52 PM (GMT -6)
It is a steroid, so you have to be careful with it. There is a post about steroid induced psychosis, but it is a much higher amount.

http://www.healingwell.com/community/default.aspx?f=10&m=1119905
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 5/11/2008 5:58:54 PM (GMT-6)

Posted 5/11/2008 7:02 PM (GMT -6)
I am very interested in mental and hormonal effects on UC. I think it plays a big role.
33 yr old male. UC for 14 years. 5mg pred (tapering off), 12 pills Asacol per day, Dicyclomine (for cramps), 0.5 - 1mg Atavan per day (anxiety), Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!)

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