Questions from a newly re-diagnosed UC sufferer

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Golfer98
New Member


Date Joined May 2008
Total Posts : 2
   Posted 5/4/2008 11:57 AM (GMT -6)   
I was diagnosed years ago and was never told about flare ups or that you go in remission and it can come back.  I don't have a family doctor for 3 years and we are on a very long waiting list.  My bladder got me into a specialist.  I also have Intersitial Cystitis which has to do with your bladder.  I had a colonoscopy in late November and was diagnosed with accute left sided colitis and put on asacol 400mg 3 at 3 times a day.  I went back in Jan and still was having problems so he increased it to 4 at 4 times a day.  He didn''t say when to come back and I have pills until July or how quick the pills work or how long I would be on them.  I was in Florida for 10 weeks which he knew.  I am 42 and I was wondering if you get bloated with it and if the pills are suppose to help the bloating.  Also a lot of info says you loose weight with it and I haven't.  I run to the bathroom several times and day and night time can be really bad and infers with sleep.  I also don't eat as much especially if I know I won't be at home near a bathroom.  I would appreciate any help or suggestions.  I also have migraines and a hiatus hernia treated with medication.  I also have a lot of other pain in my body and my chiropractor thought maybe a might have fibromalagia years ago but my doctor didn't say except once I went to a doctor for rheumatoid arthritis because my blood count was high but he said I didn't have rh and wasn't friendly or helpful. Thanks.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/4/2008 1:42 PM (GMT -6)   
Golfer, ulcerative colitis is a chronic autoimmune disease which currently can be cured only by surgical removal of the colon. Most GI specialists recommend you stay on medication for life. Asacol is the first drug used most of the time. Bloating can be a problem for some with UC, I'll let those who deal with that give you suggestions.

Asacol is one of a group of medications known as 5-ASA's; others in this group include Lialda, Colazal and Pentasa. They sometimes take a month or so to become fully effective. After that, your colon still needs to heal so you may have symptoms for a while. Your colon usually heals from the "proximal" (closest to the mouth) to the "distal" (closest to the rectum.) Rectal inflammation is called proctitis and can be stubbornly persistent.

Normally with new medication and a new diagnosis, doctors here in the US will see you every six to twelve weeks until you are stable. Your post leads me to believe you not be in the US, so perhaps some of our members from other countries will be able to offer advice.

At least 20% of people with UC do not experience decreased appetite or weight loss; consider yourself lucky to be in this group. If your symptoms are not controlled on your current maximum dosage of Asacol, I'd suggest calling the specialist and trying to get an appointment. Asacol doesn't work for everyone, and there are a lot of other medication choices. Steroid drugs such as prednisone or prednisolone can be used for short periods to induce remission, but should not be used long-term. Other 5-ASA's may work better. Then there are medications that help suppress the immune system which is causing the problems. So it's well worth it to see the doctor again.

In the meantime, avoid taking NSAID pain relievers such as aspirin, ibuprofen, naproxen, etc. They can cause GI bleeding and cause you more problems. If at all possible, stick to acetamenophen for pain relief. You may want to start on a good probiotic, too, to replace the good bacteria your gut loses because of the UC. You can get a good one at any health food store and most pharmacies. For more information, try searching on this site for "probiotics."

I'm sorry your UC has come back, but very glad you found us. I think you'll find the folks here supportive and helpful. Welcome to HealingWell.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Golfer98
New Member


Date Joined May 2008
Total Posts : 2
   Posted 5/6/2008 10:03 PM (GMT -6)   
Thanks Judilyn;  Every bit of information helps and is greatly appreciated.  I don''t go near any ibrophen products and thanks for suggesting the herbal suggestions.  Mary
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