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Anyone else in your family suffer from UC?

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Ulcerative Colitis
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Posted 5/6/2008 7:51 AM (GMT -7)
Hi, I ask this question because both myself and my brother have it (although he has now had surgery). He was diagnosed at the age of 25 and myself at 26. My gran also has it, diagnosed about age 35 and had active disease for 10 years then nothing until about 3 years ago when she had a flare and now takes asacol, she is now 86 and my cousin also has it she caught c-difficile 3 years ago and now has UC diagnosed at age 41. So my question is this are there others who have family members with the disease or is it just my family that have got a faulty gene.

 

32 year old female

UC diagnosed 2001

Asacol 6 per day

Azathioprine 50mg started 4/08

Steroids 40mg per day

Posted 5/6/2008 8:13 AM (GMT -7)
No, no one in my family has it but we do have a lot of auto immune diseases floating around. I was the lucky one to end up with UC :(
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou

Posted 5/6/2008 8:18 AM (GMT -7)
My mom and my brother were both experiencing similar symptoms but when checked, my mother was diagnosed with IBS. They are still uncertain as to what my brother has, if anything.
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG 4 times per day
Daily Vitamin for Women and Folic Acid

Posted 5/6/2008 8:52 AM (GMT -7)
My Aunt has it. I think there are quite a few in my family with auto immune diseases though. I am leaning towards maybe there is a gene that makes one suceptable to auto immune and we got this instead of something else. My Mom has rheumatoid arthritis so at least I can talk to her about some of the different medicines.
Jessica 26/F On Entorcout again...
dicyclomine 10Mg before meals/bed
Citalopram 10 MG
Asacol 4pills /three times a day(from 2 pills/ three times a day)
Culturelle once daily
Tried (Entorcort EC 9ml/day and Prednisone)

Posted 5/6/2008 8:58 AM (GMT -7)
My Mom had it, she got an ostomy 20 years ago.
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission

UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07

Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.

Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08

Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.

Posted 5/6/2008 9:04 AM (GMT -7)
Uncle has UC. Brother had Hirschsprung's disease at birth.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed

Posted 5/6/2008 9:14 AM (GMT -7)
My great grandmother had Uc or CD - not sure which since back then it didn't have a name. My mother had CD and I have UC. So I think it's herditary for the women in my family to have it.

 @--->--SHERRY--<---@

Moderator for Allergies/Asthma and Co-moderator for UC

~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair

~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections

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Posted 5/6/2008 10:04 AM (GMT -7)
My daughter may have it, yet to be diagnosed. Nobody else in my family has any history of IBD.
 

Dx:  UC Proctitis 2006

Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.

Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped.

Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 

Added: tumeric and probiotics.

Posted 5/6/2008 11:43 AM (GMT -7)
Just one other person in my family... my aunt (father's sister).
Proud new mom of a beautiful baby boy!

Current Medications:

- Asacol (4 pills, 3x per day)

- Rowasa (1 enema daily, as needed)

- Folic Acid (1 mg, 1x per day)

- Calcium (600 mg, 2x per day)

- Prenatal Vitamin (1x per day)

Posted 5/6/2008 12:47 PM (GMT -7)
my mom and my nephew(sp)
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

Posted 5/6/2008 1:42 PM (GMT -7)

My gram had uc back in the 60s. She had her colon removed

and went on to lead a very normal life.

I just wish the family had talked about it more.

Started Remicade in April. Have had my 2nd dose last week.

Prednisone 10mg

Posted 5/6/2008 1:54 PM (GMT -7)

No one in my family has any autoimmune disease. I won the jackpot, apparently. Graves disease, reactive airway, UC and whatever the heck it is that's giving me roving severe muscle pains this week. Lucky me!

yeah
Judy

 

Moderate to severe left-sided UC (21 cm) diagnosed 2001.

Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine

Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.

Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.

 

Co-Moderator UC Forum

Please remember to consult your health care provider when making health-related decisions.

Posted 5/6/2008 1:55 PM (GMT -7)
Just me. Although my family's from a village in India (I'm first generation American) and maybe someone did have it but just wasn't diagnosed.
Female, Age 19, Dx w/ UC August 2007

Seasonal allergies

9 Asacol/day, 1000 mg Canasa (caused side effects)

Digestive Advantage (Crohn's & Colitis), 2 pills/day

Calcium chews

Posted 5/6/2008 2:12 PM (GMT -7)
Dad has it, though it hasn't really bothered him for the past 20 years.
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Prednisone 2.5 (trying to taper-started at 60mg 6/1/07)
Multivitamin, B complex vit., fish oil, calcium, fiber supplement, probiotic, adrenal support

Posted 5/6/2008 2:17 PM (GMT -7)
my nephew has it.
Diagnosed July 2005 with Pancolitis

Asacol 4 tabs 3 times daily

Pro-Bio

Forvia

calcium

Diosmin(for leg and vein support)

http://mysite.verizon.net/vzewor6c 


Posted 5/6/2008 2:51 PM (GMT -7)
Uncle on my father's side.
Diagnosed with ulcerative colitis spring 1999.

 

Maintenance dose sulfasalazine.

Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.

 

 

Posted 5/7/2008 4:36 PM (GMT -7)
My mother has it and my son-yet to be confermed.

Posted 5/7/2008 6:53 PM (GMT -7)
My bro has CD and I have UC. His symptoms were very severe and after a decade of steroids is in remission with Imuran, Remicade, and Lialda. My symptoms are much more mild.
Posted 5/7/2008 7:06 PM (GMT -7)
No one else has it in my family.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day

Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning

Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv

Posted 5/7/2008 7:41 PM (GMT -7)
My cousin has Crohn's and my grandfather was booted out of the army for "disentry", so we don't know exactly what he had, but we're guessing it was either Colitis or Crohn's.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.

Posted 5/8/2008 7:15 AM (GMT -7)
no one but me.
TamTam10

Diagnosed with Pan Colitis 2004 (age 23).

Asacol 12 per day

Prednisone, off 2006

6mp 75mg per day (got off becuase I am starting Remicade)

Canasa when needed

Remicade second infusion Aug 21st

Posted 5/8/2008 8:04 AM (GMT -7)
I had a cousin die from colon cancer due to polyps when he was 48. I have about 4 cousins with mild symptoms and now their children are experiencing mild symptoms. My brother's daughter has mild UC. My mother has diverticulitis.
Ulcerative Colitis diagnosed 1996.
Asacol, Rowasa, Elavil, probiotics, Fisol Enteric-Coated Fish Oil, multi vitamins. Hate Prednisone and it hates me too!

Posted 5/8/2008 8:07 AM (GMT -7)
My Aunt and my first cousin.
Dx: with Crohns in 10-2003 then changed to Ulcerative Colitis 1-2007

Proctocolectomy with Ileostomy June 19th 2007 - Doing great.

Prednisone 60 mg (currently tapering by 10 a week until zero), 6MP 125 mg po qd, Pentasa 500 mg 3 po tid, Calcium 400 mg with D tid, Iron po tid, Vit C po tid, Tylenol #3 prn, Multivitamin, Remicade - Quit working, Asacol, Colozal, Abatacept Study

Posted 5/8/2008 10:50 AM (GMT -7)
My brother has it. We were both diagnosed around 16-17.
21 Year Old College Student
Diagnosed UC December 2002
Remicade since December 2006
Colozal, Imuran, Prednisone

Posted 5/8/2008 3:10 PM (GMT -7)
Hi Boardies,

Interesting question. It's one my GI asked me too.

I'm from a large family and 2 of the sisters have been diagnosed with UC. She's just coming off an ugly flare requiring her second round of steroids.

She's 8 years younger than I am and had a good run in remission without medication before it returned.

It just stinks how it ALWAYS comes back!

Rot Gut
Left Side UC diagnosed in 1988 while pregnant with twins
Colazal, Aciphex, Rowasa, Canasa for the UC
Celebrex, injectable Methotrexate and Folic Acid for Colitic Arthropathy

Rot Gut is newly certified as a MICROSOFT Professional.
Will that be for here or to go?

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