princesscolon....it seems maybe there's something else going on as well? Is your UC thorughout your entire colon?
There's always someone who doesn't respond to meds or supplements, and if pred is your only med, I would think that options regarding that should be discussed with the doc.
Have you had your thyroid checked our follicle stimulating hormones, etc to see if any hormones are out of whack? Many women find their symptoms are definitely stimulated by hormones.
You have so much going on at the same time....your coping skills are definitely taking a beating.
Never underestimate the power of a good cry. It helps!
Have you totally gone through food sensitivity testing, etc?
Have you tried any inulin based stool bulkers? it's a prebiotic, but it produces butyrate which is supposed to help heal the lining of the colon...there were others talking about
butyrate a long while ago...just wondering if fibre supplements might be helpful. The reason is that if you're taking probiotics but no prebiotics..they won't be helpful to you because there's nothing for them to feed on.
Just throwing out ideas....
Since you've been on humira...have you shown any improvement?
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!