Paulie, your mom's stool pattern and pain are similar to what I had, except I was going much more than that. The pain is a sign of rectal inflammation. Cortifoam or a steroid enema will often ease that, although with severe inflammation Cortifoam is usually much easier to tolerate. Once the inflammation is under control, she may want to try the Rowasa enemas to help heal the rectal area.
I'm glad she's tapering the Prednisone, this is not a drug for long-term use. In that area, your mom's GI sounds right on target.
I've been on Remicade for two years now. I started feeling better after the second infusion, but that's variable. Some feel better with the first, others not until the fifth. Hopefully it will help her as much as it has some of the rest of us.
One thing she may want to add to her regimen is a good probiotic to replace the good bacteria in the colon. Most doctors won't suggest these, but almost all of us take them. You can get a good mixture at any pharmacy or health store.
So, continue the Remicade and Asacol, consider asking about
rectal medications (probably Cortifoam) and add a probiotic. Hopefully that will bring her back into remission. Remember that it will take some time for the colon to heal completely even after the flare is controlled.
Welcome to HealingWell. I'm really sorry your mom has this Darned Disease, but glad you found this site. People here are very helpful and supportive.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.