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Posted 5/7/2008 9:07 PM (GMT -6)
Hello, I am from the Fibro, Depression, and A/P Forums! (sometimes more!) But, I had to say, I feel right at home on this forum as well. I dont...or havent been diagnosed with UC. I have heard of it, but never gave it much thought. But, after reading today, I feel like I fit right in. I have been having problems for about 2-3 years now. I am only 16 now, but I remember a few summers ago, it was in July, I was outside and got a really bad lower stomach cramp so I ran inside to the bathroom. That was the first time there was ever blood. I remember being so scared and thinking I was going to die.

I didnt die...but I have lived with it. I was to scared to say anything. (and it would take all day to explain that I dont talk to my parents about things, and we ARENT close so thats not an option) But, it went away after that. A few months later, it happened again. But, it would go away again. the first time I got the stomach cramps, it seemed there was more blood but it would linger for a few days and be less...then it would mysteriously go away...

I am going through that right now, and have been for a few days now.... I guess you guys call it a flare, like my fibro flares... But, even now it comes and goes approximately every few months it seems. It scares me when first time there is blood...but I just tell myself it will go away, and it does.

Aside from that, I get alot of stomach cramps. I have trouble sometimes with BM. I read the tread about comforty toilet seats! That is so me! But, also, I have this thing about getting up early. Anytime I get up early, it makes me have to go to the bathroom and I get cramps. Only when I get up early...it goes away, usually after a couple trips. But, I am fine later in the day. It also happens if I am awake to long. Weird, I know, but it does for some reason. And if I dont get a lot of sleep.

This proves hard because I get up early for school everyday. I can spot a bathroom a mile away! I have to know where they all are..and I refuse to go anywhere if I am not 100% sure I will be able to go to a restroom ASAP if needed.

It really scares me now that I have been reading. For so long I have just dealt with it. I was afraid of what it was. I just told myself I would take care of it when I was old enough to go to the doctor by myself. But, it has become such a problem...I just happened to read up on UC tonight and as soon as I started reading, it sounded exactly like me...

I am scared of it though. I was always afraid to say anything because of the tests necessary. I just freak out. So, I am not sure what I can do about it. I cant talk to my parents about it, nor my doctor. And, THIS is something I have never told anyone so....

Is there anything I can do to help myself? Any advice?

"Healing is an energy phenomenon. Hope is another word for Healing.
"Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
"Sometimes it is best to forget what you feel and remember what you deserve"
"Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."

Posted 5/8/2008 2:51 AM (GMT -6)
Hi....well, the only way to know and get a proper diagnosis is to get yourself to tell your parents, see your doctor and be referred to a gastroenterologist as soon as possible..

Considering all you're dealing with......guessing it's UC doesn't make it so. There are other gastro maladies that mimic UC.

It's scary...for sure.

You can't assume how your parents or doctor will react. Rectal bleeding isn't normal. What meds are you on? Some meds can cause some of your symptoms.

How do you know you have fibro? were you diagnosed with it?

You already know what's the right route to take with this...you'll have to deal with it sooner or later.

quincy

*Heather*Status: mini flare Dec 28... tapered to every 4th night

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals/supplements 

~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally

~multi-digestive enzymes as needed ....zymactive 3 - 5x daily

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 5/8/2008 4:57 AM (GMT -6)
Tennis, you really need to see a doctor about this. Uc is not a disease to say "Oh, I'm bleeding but I'm not going to tell anyone". Uc can come with many complications and yes even dangerous ones. You won't know what you have until you tell a doctor and have the proper tests. You need to tell someone - pronto so you can get the help you need.

 @--->--SHERRY--<---@

Moderator for Allergies/Asthma and Co-moderator for UC

~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair

~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections

To help Healingwell - click here: DONATE

Posted 5/8/2008 6:46 AM (GMT -6)
Hey tennis, you are in a tough spot. You really do need to be checked out. I feel for you with your parents, but you really need to tell them. Is there someone else you can talk to, like a grandparent, aunt, uncle?? If you wait until you are 18, it could get much worse by then. Don't be scred by the tests, they really aren't that bad. I was scared to death the first time, but it was no big deal. The prep is the worst part, the actual test is a breeze, I always sleep through mine. Good luck with everything and I hope you feel better.
diagnosed with left-sided UC in 1997. (45cm)

Currently on 10mg Prednisone

12 caps of colazal    9 caps Colazal

2 rowasa enemas nightly

35, female

Posted 5/8/2008 7:07 AM (GMT -6)
Seeing a good GI for diagnosis is absolutely essential, tennis. At best, you can lose some of the anxiety by hearing it's something minor. At worst, you can have something diagnosed with a bunch of disgusting but not painful tests, and be treated so you feel better. You just can't lose, dear.

You must talk to someone who can help you with this. We can sympathize and support, but we really can't help you just by sympathizing. Please talk to your parents or your doctor, your school counselor or another adult who can help.
Judy

 

Moderate to severe left-sided UC (21 cm) diagnosed 2001.

Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine

Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.

Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.

 

Co-Moderator UC Forum

Please remember to consult your health care provider when making health-related decisions.

Posted 5/8/2008 4:16 PM (GMT -6)
I agree with everyone else. You should really try to see a doctor soon. If you can't find a GI, go to your primary care doctor and s/he should recommend one to you. Blood in the stool is not a good thing. It was two months after the bleeding started that my doctors did a blood test and found that I was severely anemic. And then I need a blood transfusion. Don't wait for things to get worse! Good luck!
Female, Age 19, Dx w/ UC August 2007

Seasonal allergies

9 Asacol/day, 1000 mg Canasa (caused side effects), Proctofoam

Digestive Advantage (Crohn's & Colitis), 2 pills/day

Calcium chews

Posted 5/8/2008 6:40 PM (GMT -6)
Thanks everyone.

It seems so easy, but I dont have a good relationship with my parents. I dont guess my parents reaction, I am just not comfortable with them, or any other family memeber.(sad, but we arent close)... I do actually talk to my school counselor, but for alot of other issues. Im not comfortable discussing this at all really. I talk to a teacher of mine whose great, but I wouldnt like to tell her... I dont assume its UC...Im only saying its a possibility. I have alot in common with it. Thats all Im saying.

I take Lyrica for my Fibro. And Atarax for my anxiety. Yes, I was dx with Fibro in early Dec. But, I have had it for over 4 years, the doctors wouldnt listen to me and only kept passing me around... I am still be passed around to different doctors... I actually dx myself... I researched it for 2 years and talked with many people and mentioned it to my doc and it clicked with him that it could be that... pretty sad, yea. Its not my meds causing symptoms, I havent been on them long and my symptoms have been going on for a while.

lemonhead, (or anyone) explain the tests. What all would happen if I told my doctor?

Thanks everyone. Take Care

"Healing is an energy phenomenon. Hope is another word for Healing.
"Cracks in the concrete are just reminders that you fall apart no matter how strong you are"
"Sometimes it is best to forget what you feel and remember what you deserve"
"Im going to smile like nothing is wrong, talk like everything is perfect, act like its all a dream, and pretend its not hurting me."

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