UC-friendly Vacation Spots

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UC spouse
Regular Member


Date Joined Feb 2008
Total Posts : 70
   Posted 5/9/2008 1:22 AM (GMT -6)   
My husband and I are planning a vacation with our one year old. This is our first vacation after my husband was diagnosed with pancolitis.

I was wondering do you all have any suggestions for a good vacation spot for people with UC...a place where my husband will be relaxed and not have to stress over bathroom availability. Also, we really wanted to go the beach(which might be challenging now)...any suggestions of places would greatly be appreciated. Thanks!
Husband diagnosed with pancolitis in May 2007 at the age of 31

Predisone 40 mg for two months-every time weaned off, symptoms came back, Mesalamine(substitute for Rowesa)enema for 21 days-didn't see results in 14 days so stopped taking it, symptoms seemed to get slightly worse.
Xifaxan-on and off
Current meds. : Humira, Colazal 12/day, Probiotic-Align, Fish Oil
Has never gone into remission


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 5/9/2008 6:17 AM (GMT -6)   
Where are you located? We go Charleston every year. We stay at a resort right on the beach. There are bathrooms right off the pool and the houses/condos/hotel are a short walking distance from anywhere you are.

If you do go to the beach find somewhere that has a public access. Most of the beaches in Charleston have a changing station, bathrooms, etc. Super convenient when we don't go the resort route.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/9/2008 7:09 AM (GMT -6)   
OOOOhhh..... 51 more days and I'll be back in Jamaica with a 7 month pregnant wife!
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 5/9/2008 7:09 AM (GMT -6)   
I think a resort or a place like Club Med is good. The nice thing about an all-inclusive resort like Club Med is that there are a ton of food choices at the buffets and lots of bathrooms around. I know that the all-inclusive resorts are pricey, but I love the idea of never having to pay for anything once you are there!

A resort on a beach is probably better than just going someplace where you can access the beach. I would definitely feel more comfortable knowing that I can quickly get back to the hotel when I want.

Beach vacations are magically healing! Sounds like a great idea!
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.
Alternative treatments I have had success with: Acupuncture, Hypnotherapy


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/9/2008 7:23 AM (GMT -6)   
I can't really comment on a good place to visit other then what the others have suggested. I just wanted to chime in and share a story. A few years ago I went to Missouri on vacation with my hubby and kids. As soon as I hit the road, all my symptoms seem to stop. In fact, my Uc behaved itself UNTIL we were at a park and I THOUGHT about it. It was almost like a mind needed to remind my body that it was ill! lol But after that one incident, I never thought of it again and had a great time - well except for the sunburn and chigger bites that is! So who knows...maybe your hubby will be in great form when he gets there and will have no worries!


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 5/9/2008 8:32 AM (GMT -6)   
I find that while on vacation I have fewer problems. The extra rest (make sure to plan for this) and relaxation are great. I'm not saying things completely go away, but I do have fewer problems.

Just a reminder - make sure to pack extra meds! Including those you may not use every day - Es and Sups.

I hope you find a great vacation spot!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
30mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/9/2008 8:58 AM (GMT -6)   

will be on a plane in 21 hours going to the Domincan Republic.   yeah   I am staying at the Melia Caribe in Punta Cana.  I am currently in remission, but when I have to go, I have to go 1 to 2 times a day.

I have some cipro that I did not finish and bringing kaopectate and drinking and brushing w/bottled water.

I had no problems in Aruba 2 times, but I was not flaring for either of those.

I am leaving work at 2pm today and already I am just staring at the clock!!!!! 


Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
Pre-Diabetic from Prednisone use - Low carb/sugar diet & exercise.


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 5/9/2008 9:03 AM (GMT -6)   
Before UC I loved to travel backpack style. I backpacked all over the Philippines, Thailand and Hong Kong on 3 separate trips that lasted 4 or 5 weeks each. Because of UC I am no longer able to do that. My last major trip was a Caribbean cruise out of Miami. Cruises aren’t really my style but it was very UC friendly with washrooms every ware. You don’t have to get off at every stop if you don’t want to. You can always go to your cabin if you are not feeling well. We are going on an Alaskan cruise this July. If you like beeches many of the Caribbean cruises stop at Islands with very nice beeches.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
 


Mackster
Veteran Member


Date Joined May 2007
Total Posts : 768
   Posted 5/9/2008 9:50 AM (GMT -6)   

It's strange that (for a lot of people) UC symptoms can magically disappear!

Which I suppose lends credence to the psychological connections with this disease.

Personally, I have experienced a marked reduction in BM's/blood/discomfort when I'm travelling or on a vacation.  Generally in a sunny 'resort' environment.

Would be nice to be able to afford a permanent holiday!


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 5/9/2008 4:26 PM (GMT -6)   
I went on an Alaskan cruise before I got UC. It would be perfect. When you are on board you are always close to your room with a "private" bathroom. It was very affordable and if your diet isn't too restrictive then you will love the food. We went with princess cruises and no one I was with had any complainants. And watching the whales on deck in a big blanket with hot chocolate and Baileys was wonderful. You can chose what you do at port and avoid the ones with out bathrooms. You can take the train instead of dog sledding. okay now I want to go on vacation...
Jessica 26/F On Entorcout again...
dicyclomine 10Mg before meals/bed
Citalopram 10 MG
Asacol 4pills /three times a day(from 2 pills/ three times a day)
Culturelle once daily
Tried (Entorcort EC 9ml/day and Prednisone)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/9/2008 7:59 PM (GMT -6)   
I love cruising too. We went to Bermuda. We even did a kayak excursion because we took a boat to get to where we were going to kayak and that boat had a bathroom on board. We were never more than a 5 minute paddle from the boat. I almost didn't go on the Kayak trip because I had horrable D that morning. Almost in tears I asked the guide if we could apply our deposit onto the next days trip because I wasn't feeling well. She must have somehow known because she whispered "does it help that the boat has a bathroom and will be with the kayakers?" I almost hugged her. I ended up needing it too. Some poor lady used it after me. Sorry lady! The water we were kayaking in was crystal clear and we all had glass bottom kayaks. If I had an accident that would have been BAD!
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 5/9/2008 8:09 PM (GMT -6)   
We went on a cruise with 4 other friends to the Bahamas this past October. My UC was the last thing on my mind. I barely had any issues. My husband and I went on a 1 hour jet ski sight seeing tour without a second thought. Seems like when I am away from home my UC seems better. I'm looking forward to our 1 week beach house vacation coming up in 2 weeks! All my In-laws will be there but there are tons of bathrooms...
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse
Not taking any more meds for now. Trying a holistic approach.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4417
   Posted 5/9/2008 8:25 PM (GMT -6)   
I don't really have any suggestions to add to the above, but wanted to say I'm also trying to figure out a possible vacation for this summer. I really, really want to go on a road trip to Colorado (about a day's drive from where I live). I'm not flaring very bad right now at all, and the driving part doesn't worry me much, but I want to go hiking and camp for at least a few days while I'm there (away from a camp site, just out in nature) and that part of it scares me! I never liked going to the bathroom outside even before UC, even going number 1. Now, I can't imagine taking a crap outside, which I've never done before, and possibly having to do it 5 times a day! But I don't want UC to control my life, so I think I may just have to get over it.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/9/2008 8:45 PM (GMT -6)   
Sara - I hike a lot too. If you find a spot where you are hidden well I suggest taking the pants and panties all the way off. Way less likely to make a mess that way. Always have your feet uphill from your butt. If you do it the other way the turds (or squirts) will be rolling down to your feet.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4417
   Posted 5/9/2008 9:19 PM (GMT -6)   
Thanks for the tips, Fitzy! I'm always scared of bugs getting down there, too, when I'm crouching down. I shudder just thinking about it.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/9/2008 9:24 PM (GMT -6)   
Just be careful of any poison Ivy or Oak Sara! :) I love hiking too though I haven't done it in a long time. Also camping - though my last camping trip I was flaring badly and even while on vacation, it didn't help :(
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4417
   Posted 5/9/2008 9:55 PM (GMT -6)   
Oh yeah! I'll definitely want to look out for that. Definitely would not be fun to get that "down there." =)
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


UC spouse
Regular Member


Date Joined Feb 2008
Total Posts : 70
   Posted 5/13/2008 5:21 PM (GMT -6)   
Thanks guys for the great suggestions! Cruise might not work since I get seasick eyes

What do you guys think about an all inclusive vacation at Cancun? Anybody know about the bathrooms there?

Also, i noticed a lot of you mentioned that your UC symptoms seem to disappear when you got out of town. That's interesting, b/c recently, my husband was in Amsterdam and Scotland for work and he said his symptoms were almost gone. Then when he got back...so were his symptoms confused Could it be the pollution? We live in Houston, Tx. He said they're very laid-back in Europe...could that be a reason...the environment? Or maybe it's just his wife tongue
Husband diagnosed with pancolitis in May 2007 at the age of 31

Predisone 40 mg for two months-every time weaned off, symptoms came back, Mesalamine(substitute for Rowesa)enema for 21 days-didn't see results in 14 days so stopped taking it, symptoms seemed to get slightly worse.
Xifaxan-on and off
Current meds. : Humira, Colazal 12/day, Probiotic-Align, Fish Oil
Has never gone into remission


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/13/2008 8:23 PM (GMT -6)   
Don't rule out cruises b/c of getting sea sick. I grew up on boats and never got sea sick, my husband ALWAYS got sea sick. We went on a cruise, he felt FINE, I felt a little icky the first night. They had dramamine at the front desk and it worked great. I only felt a little sea sick laying in bed. You barely feel the ship move at all.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 

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