I'm still trying to figure this DD out! Any insight is greatly appreciated! (Sorry for the length of this message, but I wanted to provide a complete picture. I'm basically interested in whether any of you have experienced something similar.
Here are my symptoms & history:
Pred stopped flare, ended taper 2/16.
9 weeks symptom free on 2 lialda/day, had a couple of days of bleeding,
then ate red meat, had normal flare (for me), went on pred 20 mg's, canasa at night, upped to 4 lialda/day.
stopped pred after 1 week (4/30), cold turkey. (I can't stand the side effects)
flare had ended.
5/1- no blood, 5/2 no blood, 5/3 blood, 5/4 blood, 5/5 no blood, 5/6 blood and worst flare ever (I ate 1/4 lb of pepperoni and some doritos the night before- very stupid!), 5/7 no blood, 5/8 & 9 blood.
So, my questions are:
~Is it normal to have symptom-free days between days of bleeding & flaring? I've never experienced this before.
~My stomach has been cramped for several days. It feels empty, but eating doesn't help and now my right side hurts pretty noticably, which I've not experienced before. It's not like the cramps that I normally get. I spoke to the nurse at my GI's & told her. The doc will probably call back later today, but this concerns me. Is this something I should be concerned about or just another symptom of this DD?
~(In addition for the past month, my breasts have been hurting me., I had a mamo and ultrasound. It was negative. Can this be another symptom of UC? Have any of you experienced weird pains like this?
My appt. w/the naturopath is next Tuesday. I'll let ya know what it was like!
You guys are great. I always appreciate your comments. Thanks!
Not sure of my dx- currently UC, but with skip lesions. Bloodwork is inconclusive for UC & Crohn's. Colonoscopy shows ulceration in terminal ileum and descending colon
Lialda upped to 4/day,Canasa at night as needed
seriously considering Rowasa, hoping to switch meds to Asacol