prednisone question

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wantingremission
New Member


Date Joined May 2008
Total Posts : 15
   Posted 5/9/2008 11:47 AM (GMT -6)   
hello everyone,
 
Please offer me some insight and information if possible.
 
My mom has UC, question is:
 
Has anyone experienced a bad reaction to prednisone over time? After about taking prednisone for three weeks (while tapering it down), she began to experience rectal pain. This pain got severe over time. And after a recent colonoscopy, the doc. revealed that there was severe ulceration all over the place. But never in the past did she have pain in the rectal area. Do you think this could have been caused by a bad reaction to prednisone? Initially when she began taking it, it was working really well, as as the dosage decreased, she began to have some pain. However there was still a substantial amount of "mg" that she was still taking everyday. And the rectal pain has been pretty consistent, as she is still on it and tapering down. If someone can respond with their opinion and experience, it would certainly be appreciated.
 
Thank you.
 
Paul
 
Mom is currently taking 12 asacol a day, tapering down prednisone (is currently at 40 mg a day) and began remicade treatment last week. The rectal pain is the main problem, since it is really an issue prior to having BM, during, and after.
 
Any advice?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/9/2008 1:41 PM (GMT -6)   
No, this would not have been caused by the pred, problem is she needs a good rectal med, it's just the nature of the beast for her colitis to be affecting her rectom in that way...pred is basically a booster drug meant to be used short term while waiting for maintenance drugs to kick in.

She needs to be on a good rectal med and by the sounds of how severe things are in her rectom she'll be on them for a while so I hope she'll be patient waiting for the rectal med to kick in...cortifoam has always been a life saver for me, and she'd definitely be a candidate for cortifoam at least.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 5/9/2008 2:52 PM (GMT -6)   
When you say rectal pain, is it also rectal pressure? I know that usually, once I start going, I get really bad pain and pressure. It feels like I have to constantly go. I usually have to lay on the couch and it will slowly go away after a while . . . . . sometimes hours and hours.
Diagnosed in Jan 2007, but had bowel issues for years
I've been on Asacol (no help) and Prednisone (60mg was the most)
Currently taking Sulfasalazine - 4 pills 2x a day
Hospitalized for 9 days in Feb 2008 (IV steroid)
Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)
Hydrocortisone and Rowasa enemas when needed (which is usually ALWAYS!)
20 weeks pregnant and counting . . . . . .
Prenatal Vitamin and 5 mg Folic Acid
150mg Zantac twice a day (for acid reflux and nausea)


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 5/9/2008 3:04 PM (GMT -6)   
The rectal pressure is from the inflammation in the rectum - hence the suggestions for rectal meds. The cortifoam soothes it almost instantly! I would highly suggest calling the doctor and explaining the problem and asking for something.

Rectal pressure is one of the last things to be resolved in a flare. It very uncomfortable.

Best of luck to your mom.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
 
30mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 5/9/2008 3:12 PM (GMT -6)   
I actually have a few boxes of the rectal foam. I try to use it, but it seems like I have to go immediately. I also do the Rowasa enemas at night. Do you think it's best to wait until I'm done with trips to the bathroom before I use the foam?
Diagnosed in Jan 2007, but had bowel issues for years
I've been on Asacol (no help) and Prednisone (60mg was the most)
Currently taking Sulfasalazine - 4 pills 2x a day
Hospitalized for 9 days in Feb 2008 (IV steroid)
Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)
Hydrocortisone and Rowasa enemas when needed (which is usually ALWAYS!)
20 weeks pregnant and counting . . . . . .
Prenatal Vitamin and 5 mg Folic Acid
150mg Zantac twice a day (for acid reflux and nausea)


wantingremission
New Member


Date Joined May 2008
Total Posts : 15
   Posted 5/9/2008 5:50 PM (GMT -6)   
Initially, the reason why my mom was not using a rectal med is because the pain was to severe and she didnt want to apply anything to the sensitive area. I spoke with the doctor's nurse about cortifoam, and she said that its the same thing as Canasa pretty much. We already have Canasa and havnt used it much recently because of the pain.
But I do suppose we can try it out.
 
Any suggestions, recommendations or advice?
 
Thank you.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/9/2008 6:58 PM (GMT -6)   
At this point, rectal meds are her only option, she'll likely continue to feel worse and worse if she doesn't start using it right away...if it's that bad, she should be using it twice a day...she can also rub lidocain on the applicator and on her anus to help dull the pain since it is a topical freezing ointment.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/9/2008 9:54 PM (GMT -6)   
Canasa and cortifoam are not even close to the same thing. I'm shocked a GI nurse would tell you that, she needs to check her references! Canasa is Mesalamine, the same drug that's in Asacol. It's in the 5-ASA family. Cortifoam is a steroid foam. Like oral Prednisone, it can offer quick relief from the inflammation and resulting pain.

I'm very familiar with the pain your mother is having. Sometimes I used to not be able to sit up or lie on my back because it hurt too much. I'd suggest trying again to get a script for Cortifoam - maybe talk to the doctor, not the nurse who is obviously useless. The Cortifoam usually will ease the pain and pressure quickly - within a day for some, within a few days for others. Once the pain is decreased, then add in the Canasa - maybe Cortifoam in the morning and Canasa in the evening, or the other way around.

The pain and pressure is definitely a sign of proctitis, or inflammation of the rectum. Medications taken orally don't reach that area very effectively, and that's why rectal medications can help.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/10/2008 7:05 PM (GMT -6)   
Your mom should definitely look into getting cortifoam.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


wantingremission
New Member


Date Joined May 2008
Total Posts : 15
   Posted 5/12/2008 2:28 PM (GMT -6)   

Thank you for the response. I got a prescription for the the cortifoam this morning, so we'll see how that helps. She has actually been using Canasa for a few days and we are noticing a slight/if any difference. But hopefully the cortifoam will help.

Thanks for the advice everyone, it is certainly appreciated.

Paul


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/12/2008 2:43 PM (GMT -6)   
Yeah, I had a doctor's nurse tell me that Cortifoam is the same as Canasa and that it wouldn't help my mild flare (which involved my rectum) at all. Sheesh. Sometimes I wonder where some doctors/nurses get their info and ideas...
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
10mg Lexapro (for depression/social anxiety)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
Not currently taking any colitis meds (between insurance plans and doctors) and mildly flaring. Looking into try all possible natural treatments for the time being.
 
 

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