I am now 3 months into the trial - and had my sigmoidoscopy today to see if there had been any improvement in my UC.
I was expecting only marginal improvement but it has been dramatic. I cannot believe it.
In February I had severe UC with mayo score of 10. Today, the report said mild with a score of 1. So, I am thrilled.
On Monday, I enter stage 2 of the trial and get re-randomized. Slightly worried that I may get placebo this time, but I am praying that I don't.
I am still experiencing side effects - back pains are bad, but bearable.
I can also now start to come off steroids, which I have been on for 5 years....
I will write back after Mondays infusion and whether I think it is placebo or not :)
Abatacept Trial since Feb 2008 (Induction Period)
Back on Pred - 3mg - Steroid Dependent :-(
Actonel 35mg, EPA Fish Oils
Predfoam Enema - Had to stop as not allowed during trial
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks (Stopped working)
Aloe Vera Lily of the Desert Juice Gave me the worst D !
Primadophilus Reuteri Probiotic