Tapering off Pred, and on Asacol - I have questions

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amille2
New Member


Date Joined May 2008
Total Posts : 1
   Posted 5/9/2008 1:49 PM (GMT -7)   
Diagnoed with UC (pancolitis) in early April. Admitted to hospital for 3 days, started on Prednisone. Now down to 25 mg / Day, in addition to 2.4 grams of Asacol a day. Will be done with Prednisone the first week in June. I have been doing great. Can I continue to be hopeful that when I am off the prednisone, Asacol will continue to do the job ?????

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/9/2008 2:18 PM (GMT -7)   
For the majority of people that's how it works. Don't let yourself be discouraged by some of the things you read here. People who have more difficult colons to control are far more likely to be on this board than others. People who respond well to the most usual treatment aren't here because they're out living their lives. Hopefully you will be one of them!

Welcome to HealingWell, amille2.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 5/9/2008 6:13 PM (GMT -7)   
My only advise is CONTINUE to take your meds no matter how good you start to feel. It's easy, especially when you are first diagnosed, to miss doses once your symptoms subside. Good luck once your off the prednisone!
Diagnosed in Jan 2007, but had bowel issues for years
I've been on Asacol (no help) and Prednisone (60mg was the most)
Currently taking Sulfasalazine - 4 pills 2x a day
Hospitalized for 9 days in Feb 2008 (IV steroid)
Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)
Hydrocortisone and Rowasa enemas when needed (which is usually ALWAYS!)
20 weeks pregnant and counting . . . . . .
Prenatal Vitamin and 5 mg Folic Acid
150mg Zantac twice a day (for acid reflux and nausea)


mmccaus
Regular Member


Date Joined Apr 2008
Total Posts : 20
   Posted 5/10/2008 5:27 PM (GMT -7)   
Yes, I agree. If you seem to be responding well, then it should be fine once you are off the prednisone. With my initial diagnosis, I wasn't even put on oral prednisone, just occasional steroid enemas and sulfasalazine (asacol - mesalamine wasn't around then). I had very good maintenance with just those drugs and ultimately a 15 year remission with no meds.
M, 44, SF, CA
ulcerative proctitis diagnosed in 1989, active 3 years, but controlled with Sulfasalazine and cortisone enemas
15 year remission off all meds 1992-2007
ulcerative colitis returned May 2007, no remission since
concurrent infections at diagnosis: c-diff, cmv colitis, both treated and negative
meds: asacol, 4-3x/day
started remicade 4/22/08


mmccaus
Regular Member


Date Joined Apr 2008
Total Posts : 20
   Posted 5/10/2008 5:31 PM (GMT -7)   
Forgot to add: Congratulations too for getting tapered off Prednisone. It's my goal to stay off prednisone forever. I had such trouble with side effects when I took it for almost 6 months last year.
M, 44, SF, CA
ulcerative proctitis diagnosed in 1989, active 3 years, but controlled with Sulfasalazine and cortisone enemas
15 year remission off all meds 1992-2007
ulcerative colitis returned May 2007, no remission since
concurrent infections at diagnosis: c-diff, cmv colitis, both treated and negative
meds: asacol, 4-3x/day
started remicade 4/22/08


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 5/12/2008 11:29 AM (GMT -7)   
That is how it has always worked for me. I use a short course of Prednisone during a flare, and the Asacol maintains the remission after that. Stress is the major trigger for my UC, so the Asacol works after the Pred up until the next big stressful event in my life.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)

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