That was my life 7 years ago. I opted for j-pouch surgery and have never regretted my decision. My drug choices ran out at 6mp, this was before Remicade became an option. If you aren't willing to try Remicade your only option is surgery. It will give you your life back. It sounds as if you have compromised your life for UC for too long.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free