Hi all, I am new to the forum.
I have bled every day for 20 months and have been hospitalised. It drives me crazy. Rather than diarrhoea – I often cant go at all but am in the bathroom 10-20 times a day with blood and mucus – often with accidents - and bood frequently fills toilet. When I do go it is tiny tiny stools – I guess everything is so swollen.
I am no longer working. I am tired and am struggling to keep my blood levels up – every month they get lower and lower.
None of the drugs worked and the Azathiaprine gave me serious liver problems.
I am too scared to try remicade given stories on the internet and my experience with immunosuppresants so far. Steroids do nothing at all – including the IV steroids they tried over 6 days.
We are now on to thinking about surgery – I have left sided colitis.
Anyone else with similar symptoms? I have also tried all the alternative stuff like probiotics – etc. But still not well.
Any ideas or similar experiences?