probiotics and imunosuppressants

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Regular Member

Date Joined Nov 2007
Total Posts : 390
   Posted 5/11/2008 7:52 AM (GMT -6)   
i am intersted in the vsl i'm reading about here, do they make people feel better or are they a better form of probiotic?
someone just told me that if you're on one of the immunomodulators it is contrary to take a probiotic-my daugter is on 6mp and takes culturelle
has anyone heard this ? thanks
Mom to 19 year old daughter diagnosed 11/07.
colazal 3 x4 daily
proctofoam 3x daily/1-2xdaily
mesalamine enema 1x daily
culturelle probiotic 1 daily
chewable vitamin
hydrocortisone enema at bed time 6mp50
xifaxan antibiotic 400mg 2x day

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 5/11/2008 8:12 AM (GMT -6)   
Good morning, PLEASE. There's absolutely no reason to stop probiotics while on immunosuppressants. The bacteria in the probiotics are the beneficial kind, the ones our disease tends to strip out of our colons. So we're merely replacing what the disease takes away.

Different people respond to different probiotics. VSL#3 is often discussed because there has been research done with that specific preparation showing benefits in IBD. It works great for some. When I tried it, I got two months of bloating and gassiness. I'm now taking Primidophilus Reuteri, and it has been the best one for me.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 5/11/2008 12:07 PM (GMT -6)   

Here's a link you can read regarding VSL3 and bowel disease research...


The link loads in kinda whacky so just scroll to the top of the page when it's loaded in.



My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Mar 2008
Total Posts : 678
   Posted 5/11/2008 12:48 PM (GMT -6)   
I've been taking VSL#3 for about a month now. I haven't had any pain since taking it. Urgency and the # of BM's has also improved. I think it's worth a shot.
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any more meds for now. Trying a holistic approach.

Regular Member

Date Joined Apr 2008
Total Posts : 53
   Posted 5/11/2008 1:06 PM (GMT -6)   
My son started about a week ago, at the same time he also takes advantage digestive for colitis, iron pill (he had not energy).
He takes A/D and Iron +4 Asacol in the morning with BF.
about 1 hour before Dinner (his big meal) he drinks VSL#3.
His diet consist of eggs, chicken, brown rice, whole wheat bread and whole wheat pasta, some cooked veg.
Yesterday I made him tapioca with oat-drink, chopped up date instead of sugar.
No refine sugar or flour.
I have to say, in one week there is an improvement, I hope it will continue.
VSL#3 I believe makes a different, I wish it would be cheaper.

hannah's mom
New Member

Date Joined Feb 2008
Total Posts : 5
   Posted 5/18/2008 7:47 PM (GMT -6)   
My daughter has u.c. I have done research on your question a few months back. i can't recall the article that i read but it was in a publication from johns hopkins. it did state that you should refrain from taking probiotics if your immune system is at all comprimised. it stated that there is a slight chance of contracting an infection. if you google probiotics and immunosuppresants you may find the article. sorry that i can't give specifics. i opted not to start her on the probiotics until we get her off of the 6MP. no need to complicate the situation.
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