I have had a very hard time finding meds that works 100%. I am close, but not there. When I am in remission, it usually only lasts about two months. It's been that way for most of the 7 years that I have had ulcerative proctitis. I have tried steroids with no help, and I couldn't take the side-effects even if they did help.
So, I am going to start keeping a food diary. My question is, when do you all typically notice a worsening in symptoms after eating an irritating food? How long does it take after removing the food for the symptoms to go away/lessen.
I still have a little blood and mucus in my BM's - twice a day. I have never had diarrhea, so I can't go on that. I can only go on the amount of the blood and mucus.
I am taking 3 Lialda a day and one Canasa a day. I am going to a new GI over the summer. Since my symptoms are so mild, they don't impact my life, it's been hard for me to get on board with taking immunosuppresive drugs. However, the emotional strain of this disease CONSUMED my twenties. I have just turned thirty (yuck), and I am DETERMINED that it won't be that way from here on out, so it the immunosuppresive drugs is what it takes, then I guess I will give in. I mean, I know that I will have flares from time to time, but if it would mean more than two months of remission at a time, then I would try it.
However, I am going to try the food diary since I have a few months before I get in to see the new GI.
Anyway, thanks for thoughts and comments!