Wow, how horrific for you!! I guess there's some "relief" knowing what it is...hopefully you'll be able to find out exactly what the cause is.
What doctor diagnosed you...a neurologist?
I've had jaw/face/ear/head pain all at the same time, only occasionaly. Fortunately, the chiropractor helps. I can only imagine the level you're having to deal with....
Hope yo're able to get some relief....would accupuncture help?
What tests did you have to determine diagnosis?
Hang tough...don't wish for UC....it can come soon enough after all this discress. Mind you, narcotics and antibiotics may help keep some symptoms at bay.
Keep us posted.
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!