How is it that doctor's can be so smart and yet they can botch someone's life like this and expect us to follow their lead?
Doctors are not superhuman. They make mistakes, too. And there are alot of crummy docs out there. Crohn's and UC are often misdiagnosed or one mistaken for the other. My diagnosis came into question again after I'd supposedly had UC for several years and was experiencing atypical symptoms. IBD is often not as clear cut as we'd like it to be.
That said, second opinions are always a good idea, especially if you're facing a major decision like having your colon removed. If ever you feel you aren't getting adequate care from a doctor - and the fact that he doesn't even deign to examine you is a pretty good sign you aren't - it's up to you to seek it elsewhere. Medicaid complicates matters, but I can't help but think you should have a patient advocate or someone to whom you can present your concerns and your desire to be seen by a different doctor.
If I've learned anything through the course of having UC, it's we must all educate ourselves and stand up for our rights to receive quality care and freedom to make our own treatment decisions.
Doctors, meds and finanical issues aside, I'd also advise you to look into natural supplements and dietary therapies that could help you get your condition under control so that you might possibly avoid costly surgery and immunosuppresants. Just another option to consider. Lifestyle and dietary modifications cost you little or nothing and can have very positive results, in my experience.
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.