Met with a surgeon yesterday

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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 5/13/2008 5:34 PM (GMT -7)   
We met with a surgeon yesterday.  He was very easy to talk to. He has all Bratcat's records, asked lots of questions, explained lots. We also met 2 nurses. All told us to call or email if we have more questions (which we are compiling). He offered to see if one of his patients would be willing to talk to us. (I asked to find one who is a teenager like Bratcat.) 
He does feel that she would do well with surgery. But he isn't rushing for a decision. If she were to have it, it would be better to have it during the summer. More time to recuperate and get used to the change before going back to school. She missed 9 weeks last year and almost 16 weeks this year (2 separate flares). Amazingly she is still an honor student. But next year is her senior year.
Bratcat, her dad, and I are about 50-50 on the surgery. She is not completely wowed at the thought of removing her colon but she definitely doesn't want to worry about flares (and can't stand being on prednisone). It is looking like she is steroid dependent.  Hopefully the Remicade will work (3rd treatment next Tuesday).
In the meantime, she is back to school for about 1/2 the day.  She has her junior prom next Thursday. Finally found a dress that looks great on her (and she feels great in). Had to settle for her 3rd choice of color (the others were out of stock) but she'll jazz it up with some knockout jewelry.
By the way, her brother (he calls himself nonamejames) had the camera endoscopy last week. He goes back to the doctor in early June so we will see what he says. He started 6-mp. So far, he feels fine.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 50 mg prednisone
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 5/13/2008 5:38 PM (GMT -7)   
It sounds like you found a nice surgeon. That would be great if you could talk to a patient that was similar in age to your daughter. I am sorry she is having to deal w/ this at such a young age. That is awesome that she is an honor student!! Keep us posted.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/13/2008 6:42 PM (GMT -7)   
Bennie, as much as Bratcat has been sick this year, I can certainly understand why you and she would be considering surgery. Her quality of life might improve dramatically. I'll be thinking of you as you make this difficult decision.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 5/13/2008 7:34 PM (GMT -7)   
Good luck making the decision! That's awesome that she's an honors student even after being sick so much. I could not even imagine how I would have handled high school with UC!
Tell bratcat to have a good time at prom!
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa (caused side effects), Proctofoam
Digestive Advantage (Crohn's & Colitis), 2 pills/day
Calcium chews
 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 5/14/2008 1:55 PM (GMT -7)   
Fingers Are Crossed For You during this difficult time. :) Good luck.
Jenn 26/female
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG 4 times per day
Daily Vitamin for Women and Folic Acid


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/15/2008 4:02 AM (GMT -7)   
Bennie, we have been with you and Bratcat thru out most of her ordeal and I think many of us feel as if Bratcat is our honorary daughter! :) I know that you, bratcat and your hubby will make the right decision. It sounds to me that she would benefit greatly from the surgery. And she has age on her side meaning she will heal much more quickly then us older folks! However too, surgery is never an easy thing to do either nor manage afterwards. But whatever you decide - we are all here for you and Bratcat.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/15/2008 5:33 AM (GMT -7)   
Good luck and wish Bratcat good luck as well. I'm sure you all will make the right decision. And who knows, maybe the Remicade will start working and she won't even need it? But I know what it's like going through High School so sick and it is very difficult, and I don't blame her for thinking about surgery!

I work in an OR now and occasionally we have people come in for colostomies and ileostomies and what not, my coworkers told me the other day that when it's not too busy I can actually go in the OR and watch the surgery so I can't wait for one to come through that I can actually see, especially if the patient has UC or Crohn's. I've always wanted to see in person what it looks like to have the surgery done.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 

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