Real or Quack? Stephen William's on IBD

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:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 5/14/2008 1:40 AM (GMT -6)   
This guy got my address from The Road to UC Learning by Shire labs thing that was posted about here awhile ago. I created a 'profile' to see what it was all abt and put a junk mail acount down. Anyone heard of him or is he just another someone out there with unproven, unfounded claims?
 
The message:
 
Hi,
I suffered from UC and crohns for 5 years but today i live without it and i have been free of symptoms for 2 years.
I''ve written what has been called, "a useful book in overcoming Crohn's" by Dr. Kevin Hogan.
It was written jointly with a doctor. I'm currently preparing the book for E Book release and would love for you to read it at no cost today in exchange for your comments and possibly an endorsement.
The book will be released to the public for $47 in about two weeks.
Contact me by email at .......@aol.com and i'll send you a copy.
Many thanks, Stephen Williams.
 
-------
I googled his name and found this site
 
 
 
 
 
 
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


quincy
Elite Member


Date Joined May 2003
Total Posts : 30854
   Posted 5/14/2008 12:41 PM (GMT -6)   
Hi..I'm assuming he had Crohn's Colitis...but it sounds better when he says he had both.

One thing he mentions that's interesting is to not focus on the disease itself....a good point.

He doesn't mention the word cure. A good thing, because there isn't one.

The cause......???? Take what you will of it.

Take information that makes sense and throw the rest out of the window.

Medications for IBD are important....not all are equal...there are options. Don't know if he's suggesting for them to be discontinued.

We all get to the point where we find the balance to better health....he's still living with CD, but hasn't got symptoms. Symptoms are subjective....

Let us know how it goes for you.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/14/2008 5:15 PM (GMT -6)   
He's selling something. I always take anything a salesman says with a healthy scoop of skepticism.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 5/14/2008 5:45 PM (GMT -6)   

I agree with Judy...

Think about it, if you discovered a cure for colitis, IBS or Crohns today would you spend weeks and months working on a book for profit or would you give the info. out freely?

Something doesn't sound right to me, people are always trying to take advantage of people like us.

nono

NBT

 


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30854
   Posted 5/15/2008 2:54 AM (GMT -6)   
Taking advantage and wanting the results promised go hand in hand....if the demand is there, business will be brisk.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


njguy69
Regular Member


Date Joined Jul 2006
Total Posts : 276
   Posted 5/15/2008 5:19 AM (GMT -6)   
The only people taking advantage of us are the drug companies, if you don't see that then your delusional. I'll be the first one to read that book.
aka. uc veteran

Asacol - four a day
6 MP - 1 tab. a day
Remicade - every eight weeks.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/15/2008 7:34 AM (GMT -6)   
Ha, Ha, Ha!!!!! Nice one, extremefit. It never fails to amaze me- so many people on here voice their concern about long-term use of meds for UC.....then you glance at their sigs & there are about a dozen other meds for all sorts of "conditions"! Emotional, physical, whatever.... The fact that people even take painkillers for UC amazes me! Re. Stephen Williams- nah, I'm not interested in reading the book.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/15/2008 7:50 AM (GMT -6)   
NuffinButtTrouble said...
I agree with Judy...

Think about it, if you discovered a cure for colitis, IBS or Crohns today would you spend weeks and months working on a book for profit or would you give the info. out freely?

Something doesn't sound right to me, people are always trying to take advantage of people like us.

[img]/community/emoticons/nono.gif[/img]

NBT


Seriously. $47 for a book? I don't think I would buy it even if it claimed to cure UC. I feel ripped off when I am paying that much for college books! Maybe I would sit in Barnes and Noble and read it for free for a bit, haha. I think if someone suffered from UC/Crohn's and really found something that honestly helped, they wouldn't be charging that much for the knowledge. That just raises a red flag for me, but then again I suppose everything about this disease is expensive.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/15/2008 7:51 AM (GMT -6)   
Good morning. Please remember this is a support forum. People have differing beliefs, values and hopes. While we may not agree with them, we still need to remain respectful of their right to have them. If you don't agree with what someone said, but feel you can't respond without getting personal, please refrain from responding. It's great to see different ideas, but not so nice when it turns into name-calling and derision.

Thanks, and have a great day.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/15/2008 7:53 AM (GMT -6)   
xtremefit said...
The only people taking advantage of us are the drug companies, if you don't see that then your delusional. I'll be the first one to read that book.


Well, I certainly wouldn't say they're the only ones but of course they are a big offender. But there are plenty of people out there selling e-books and other material saying they found what will fix us forever, and that's exactly what the pharmaceutical companies do. "We found the new drug that will really work! Now pay us an arm and a leg if you want to feel better". It's all the same. They're all just sales people looking to make a profit off of someone else's unfortunate circumstances.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/15/2008 8:03 AM (GMT -6)   
Eva Lou said...
Ha, Ha, Ha!!!!! Nice one, extremefit. It never fails to amaze me- so many people on here voice their concern about long-term use of meds for UC.....then you glance at their sigs & there are about a dozen other meds for all sorts of "conditions"! Emotional, physical, whatever.... The fact that people even take painkillers for UC amazes me! Re. Stephen Williams- nah, I'm not interested in reading the book.


I don't really understand this comment. Just because someone is concerned about what the long term effects may be, doesn't mean they shouldn't be taking medication. I think we're all a little concerned about what these drugs could really be doing to us, but we're resigned to the fact that we have a chronic condition that isn't going to go away or improve without medication.
For someone who's taking quite a few different medications, two of which that might realistically have some very serious long term effects, I don't understand why you're mocking others who do the same??? Or maybe I just misread your tone??
As for painkillers, I personally have never taken them for my UC because I am just afraid to ask for them, but if someone else can manage their pain with them, then what is wrong with that? Just because someone's case of UC might be worse than ours, that is no reason to degrade them for resorting to something to ease the pain.

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/15/2008 10:31 AM (GMT -6)   
I think you misread my tone- I'm not mocking or degrading anyone's choice of drugs, just stating a fact.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


slim18996
Regular Member


Date Joined Apr 2008
Total Posts : 99
   Posted 5/15/2008 2:32 PM (GMT -6)   
:) said...
Anyone heard of him or is he just another someone out there with unproven, unfounded claims?
 
The message:
 
I''ve written what has been called, "a useful book in overcoming Crohn's" by Dr. Kevin Hogan.
I can't say that I have heard "of" him but the way it is presented is eerily familiar to many sites and e-mails I have gotten in my search for information on UC in the last five years.  His marketing skills are good.  He points out that he has pretty much had a copulation of all of our worst problems.  He states a few times that he was told he would loose parts of his bowel, which I would guess (and it is only a guess) that is the one shared fear most of us have.  He states that he was told by doctors that diet had no affect, something that is strongly debated among all of us  He then pointed out he was 36 at the time, more then likely right in the age group of many of us on the board (30 - 40), again just a guess.
 
He states that he has jointly written a book  and names a doctor as author.  Do a search for the good Doctor.  The sites I came up with seems to have the good doctor helping others find the quick sell of their customers, not treating diseases (others include a dermatoligist and a dentist but the main one is a motivational speaker).  The science of Influence doesn't seem to have any real healing qualities if this is the same Doctor.  Here is a quote from the main page, you be the judge:
We learned a lot about the relationship of how people "feel about products, services and people" and the mental shortcuts they use to buy.
Now, I cannot say that that is the doctor he is speaking of, but trying to market a book for $47, he has a "good" understanding of "ALL" IBD symptoms and concerns and then a search of the good doctor revealing a website about a program to train you how to market your product effectively to your customers.  You be the judge.
 
Just my two cent worth, John
  • Diagnosed with UC 2003 (but had sympoms as far back as1993)
  • Hospitalized 3/08 for sepsis, 7 days ICU due to complication brought on by prolonged use of steroids
  • Current status = flair (no remission in five years)
  • Prednisone 40 mgs
  • Asacol 1200mg three times a day
  • Protonix 40 mg twice a day
  • Levbid 0.375 twice a day
  • Calcium 600 mg


njguy69
Regular Member


Date Joined Jul 2006
Total Posts : 276
   Posted 5/16/2008 5:32 AM (GMT -6)   
Eva Lou said...
I think you misread my tone- I'm not mocking or degrading anyone's choice of drugs, just stating a fact.


What fact is that? You must be flourided and aspartamed up, if you trust the Government or major food and drug company. You have to lay off of that stuff. Just ordered my book today. yeah scool
aka. uc veteran

Asacol - four a day
6 MP - 1 tab. a day
Remicade - every eight weeks.

Post Edited (xtremefit) : 5/16/2008 4:38:56 AM (GMT-6)


njguy69
Regular Member


Date Joined Jul 2006
Total Posts : 276
   Posted 5/16/2008 5:47 AM (GMT -6)   
Eva Lou said...
Ha, Ha, Ha!!!!! Nice one, extremefit. It never fails to amaze me- so many people on here voice their concern about long-term use of meds for UC.....then you glance at their sigs & there are about a dozen other meds for all sorts of "conditions"! Emotional, physical, whatever.... The fact that people even take painkillers for UC amazes me! Re. Stephen Williams- nah, I'm not interested in reading the book.


Yeah, it was a nice one. yeah Like I have a choice with this man-made illness and their 'treatments'. eyes Oh, Kevin Trudeau is a good read! I highly recommend it! cool
aka. uc veteran

Asacol - four a day
6 MP - 1 tab. a day
Remicade - every eight weeks.

Post Edited (xtremefit) : 5/16/2008 4:51:16 AM (GMT-6)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/16/2008 7:53 AM (GMT -6)   
evalou said...
then you glance at their sigs & there are about a dozen other meds for all sorts of "conditions"! Emotional, physical, whatever.... The fact that people even take painkillers for UC amazes me!
  This is the fact I was stating- that many people take many different drugs for their UC, and/or other conditions, while bemoaning the possible side effects. I don't know what you're talking about, trusting the govt. and drug companies...I agree with you, drug companies are taking advantage of us. Plus, I avoid artificial sweeteners at all costs, they're gross. Fluoride...I dunno, I think our water was fluoridated when I was a kid, not sure. And I do use fluoride toothpaste, so...
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/16/2008 9:09 AM (GMT -6)   

Well, I suppose you could go on and on with a list of companies trying to take advantage of us all; not only in the pharmacuetical industry -- we are all familiar with the gas prices we are paying let alone everything else that has gone up in price.

I'm going to say let's just get back on the support wagon for each other, and off the government/pharmacuetical industry rip off topic.


Carol

Remicade - will have my 21st infusion on April 17.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 5/16/2008 10:02 AM (GMT -6)   
Eva Lou said...
Ha, Ha, Ha!!!!! Nice one, extremefit. It never fails to amaze me- so many people on here voice their concern about long-term use of meds for UC.....then you glance at their sigs & there are about a dozen other meds for all sorts of "conditions"! Emotional, physical, whatever.... The fact that people even take painkillers for UC amazes me! Re. Stephen Williams- nah, I'm not interested in reading the book.

  Do you have a problem with people taking pain meds?  Everyone experiences pain and this disease in different ways, that was rude.  Some people take meds for emotional issues, and that is their decision, I don't know why you would make fun of these things...
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 5/16/2008 9:16 PM (GMT -6)   
Eva Lou said...
The fact that people even take painkillers for UC amazes me!
Um, why would that amaze you? Maybe you're one of the lucky ones who has never experienced severe pain with your flares, but there are many of us, myself included, for which debilitating pain was the worst thing about being in a flare. I couldn't even walk and could barely stand up b/c it hurt so much when I first got this. I thought I was going to die. I hope you never get to that point where you need to take painkillers for your UC.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/17/2008 6:43 AM (GMT -6)   
Alright, drop it already! I posted that I was not mocking or degrading anyone's choice of drugs- do I need to repeat myself? Plus, this is so far off topic it's ridiculous. And frankly, yes, I do have a problem with taking pain meds for UC- as well as anxiety meds for UC. As far as "my" UC goes- it's been bad, I've been hospitalized, I've been bedridden for weeks, & very, very ill at times. And I've also been in varying states of "remission" at times. So I think I've experienced pretty much the whole range of UC symptoms, pain included. If you guys want to argue about choice of UC meds, start a new thread.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 5/17/2008 6:50 AM (GMT -6)   
WHOA everyone needs to think about their tone and words before you post. I believe that at least two other moderators have left warnings on this thread. Be respectful of this site, of the mods and most importantly each other.

No more warnings or we will have Peter lock this thread.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/17/2008 6:52 AM (GMT -6)   
sorry- I'm not trying to be rude, just trying to point out that this has gone on long enough.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 

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