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Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 5/14/2008 10:53 AM (GMT -6)   
Did anyone not have any or much symptoms before UC? I know alot of people can experience symptoms or signs months or years before being diagnosed with UC. BUt I never had problems. Never really had too much gas, burping, constipation, Diarrhea, etc. ANd I never had pain or mucus.
I am thinking about this b/c I remember my Pre-UC days when I could consume anything in any amount at any time and never have to worry at all about my digestive system. I still find it hard to fathom how my whole system could malfunction like it did.
                                                                                         
28/M/TX (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; no blood!
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other players: food combos, enzymes, good posture, chewing more, etc.


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 5/14/2008 11:15 AM (GMT -6)   
I remember once about a year before I got my first real symptoms that I had mucous in my BM, no blood or urgency and thought it was just a virus, other than that I was very regular, no problems what so ever.

When my first real symptoms happened, it was suddenly, one morning, blood, mucous, urgency and D. Went on for months, then started to get better on its own.


 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 5/14/2008 11:20 AM (GMT -6)   
Looking back I can remember in high school having constant diarhea. I mean run as fast as you can to the potty. I didn't think anything of it at the time. I would take Imodium constantly in college b/c if d. I wish I would have realized something was wrong!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 5/14/2008 11:38 AM (GMT -6)   
As a kid, I had constipation issues and wouldn't go to the bathroom for 7 days. When I went, I did have trouble going but no blood or pain that I remember. I could eat anything with no problems. Then in High School, I would get diarrhea a lot and I carried a bottle of Kaopectate in my purse, but I never paid much attention to it till suddenly the blood started appearing and the pain was unbearable. I was 15 or so.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 5/14/2008 11:42 AM (GMT -6)   
Bratcat never had problems until mid-September 2006. Thought she had a stomach bug. Wouldn't go away after a few days. Went to the doctor (twice). Referred to GI. First colonoscopy mid-October. Diagnosed with UC. And the rest is history!

--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 50 mg prednisone
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 5/14/2008 5:20 PM (GMT -6)   
I can't remember ever really having problems. I got a lot of food posioning and stomach viruses as a child and even as a young adult. I initially had bleeding and at that time they found pre cancerous polyps but then got really sick about a year later and that was when my colon was in really bad shape. My doc early on told me I had IBS and I do remember having urgency issues.

33 year old female
Dx'd 4 years ago
Indeterminate Colitis, probably UC; precancerous polyps
Meds: Remicade, Prevacid, Lialda, Lexapro, Iron, vitamin


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 5/14/2008 5:32 PM (GMT -6)   
Mine hit suddenly. I remember having really bad cramps one day, then they went away. Soon after I filled the toilet with brilliant bright blood. It scared the you know what out of me. I got a colonoscopy and my first GI told me that I had UC. He said it looked very much like damage done by E-Coli...

When I first got UC I can remember having cramping and mucous, but never the urgency issues I have now. Now-a-days as I age and have had this disease for so long, I have extreme urgency sometimes.... I always remember back to the "care free" days before my UC...wow the things we take for granted!! nono
33 yr old male. UC for 14 years. 5mg pred (tapering off), 12 pills Asacol per day, Dicyclomine (for cramps), 0.5 - 1mg Atavan per day (anxiety), Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!)


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 5/14/2008 10:11 PM (GMT -6)   
MBX5 my colitis hit all of the sudden too but without urgency. Now the urgency has gotten worse when my flares aren't under control.
                                                                                         
28/M/TX (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; no blood!
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other players: food combos, enzymes, good posture, chewing more, etc.


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 5/14/2008 10:46 PM (GMT -6)   
I had IBS and h-pylori and that was sort of the preamble to UC. My cousin is married to someone with UC and he had problems all through high school and wasn't diagnosed until his 30's. I think having symptoms before can kind of depend on whether you saw the doctor right away
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/15/2008 7:07 AM (GMT -6)   
I never had troubles either before being diagnosed. One day while I was at work, I had to run to the bathroom with D - thought it was something I ate. Then it happened the next and then the next along with some abdominal pain. I thought it was the stomach "flu". Then came the blood. Nope, I never even had an inkling of stomach issues even as a kid.
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 5/15/2008 7:33 AM (GMT -6)   
According to my mother I never had a solid bm as a baby or child. I have had digestive problems as long as i can remember, bad bm's, pain.... I had my first EGD at 7, dx'd with ulcers at 8, Gerd at 9, ect ect...

So yes. I had lots of symptoms for many many years. I was sent sick everyday of grade school. they tried to hold me back in 5 and 6th grades due to missed days but luckily i kept my grades up and they coulndn't justify keeping back an honor student.

It's part of the reason i have never been comfortable with the dx of UC. I don't understand how someone who suddenly has symptoms out of the blue has the same disease as me, who has always had symptoms. I don't get it.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, 150mg Imuran, no more pred after two years!!!!
Prontonix once daily for acid reflux, zofran twice daily for nausea
Remicade started 3/1/08...just had 3rd infusion


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/15/2008 10:06 AM (GMT -6)   
I had an iron gut for years.... no D, no blood, regular bm's, everything was fine. Then, about 3 months after childbirth, I noticed mucous on my stools... then the D started, then the urgency, then you all know the story from there! But prior to that first sign of mucous, absolutely no problems/complaints about my bathroom habits.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


snickers0506
Regular Member


Date Joined May 2008
Total Posts : 63
   Posted 5/15/2008 1:28 PM (GMT -6)   
I had issues maybe about the year or two before, some bleeding, I had a sigmoid and the dr said it was just roids. Then I got hit bad Dec 2002 and ended in the hospital 6 times in a 6 month period. Not fun. Now I'm lactose intolerant (never was before). I attribute that original flareup to jalapeno peppers. When I first had bleeding before the first big flare I had been eating a ton of them. Then right before the big flare I ate a giant bowl of nachos covered in them. Needless to say I make absolutely sure nothing I eat has them in it or even has its juice on it.
40 yrs young
dx UC (pancolitis) Dec 03 then re-dx to Crohns colitis April 04 then re-dx again to UC Dec 07-currently taking no meds and in remission


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 5/15/2008 1:29 PM (GMT -6)   
A year before UC, I had a hemi or fissue and some constipation issues. And two years before UC, I was anemic. But no other problems.
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa (caused side effects), Proctofoam
Digestive Advantage (Crohn's & Colitis), 2 pills/day
Calcium chews
 


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 5/15/2008 9:09 PM (GMT -6)   
Prior to his first actual flare and subsequent diagnosis it is my opinion from all the years we have been together he was dealing with a tolerable IBS situation. He just felt that was his normal bowel habits along with hemmoroids that gave him some discomfort and bleeding and never really delved into it. So I think there were warning signs of some sort that went undiagnosed for a long time.

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07  Oct 07 feeling quite normal most days.  150mg Imuran  Zero mg prednisone   12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month

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