Bratcat is scheduled for her 3rd Remicade treatment on Tuesday. She did OK with the first two. Felt better after the first one, didn't feel much of a change after the second. Not sure if they helped alot or not (they didn't make anything worse). The past couple of days she has been complaining about body aches. Not just joints. I guess muscles also. Tonight she complained about "hot flashes". She joked that she must be going through menopause (since her period is a few days late and she is very regular). She is slowly tapering prednisone each week by 5mg (we check in with the doctor every week).
Could this yucky feeling be because it is almost time for her to get her Remicade infusion? I know the prednisone is taking its toll on her.
Hopefully she will feel better by the end of the week. Her junior prom is on Thursday.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 50 mg prednisone
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!