Posted 5/18/2008 3:12 PM (GMT -6)
Definitely do the Canasa twice a day....and continue it until you call the doc and request Rowasa.

You need the rectal meds.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Posted 5/18/2008 4:28 PM (GMT -6)
Hi Judy,

All this is happening after i tapered from 20mg of Pred to 15mg of Pred..I mean a small change in the Bowel movement and some inconvinience. By the way I'm taking Lialda 4 pils/day as one dosage and not Asacol.
And from the bowel i noticed small change in color(little brownish, not sure if blood is there..)..Just wondering if it is due to Lialda..But surely i noticed a change after tapering down to 15mg on the 7th day from 20mg (for 10 days)..Docter advised me to taper down to 10mg and 5mg in one week instead of 10days.
Yes i wil try to add Canasa suppository and see how it goes..
Is it advisable to stay at 15mg even i noticed small change in bowel movement or call doc and request
for increasing it back to 20mg. Lots of confusion and pain with this disease...We are really lucky
that the people in this forum are responding very actively and helping people like me.

quincy: I will check with my doc about the enemas.. How touch it is to use enemas..? I did tried Canasa and it is very simple process to keep it.
I don't have any idea to use enemas.

Thanks for all your responses.
Posted 5/19/2008 6:17 PM (GMT -6)
Hi Judy,

Is staying on 20mg of Pred for long time advisable?
If my Doc says goback to 20mg and stay there is worth doing or request him for Rectal medications
Looks like today i feel the difference in my symptoms. Some kind of inconvinience after tapering down to 15mg.
What do you suggest?

Thanks in advance
Posted 5/20/2008 5:24 PM (GMT -6)
Helo Judy,

Yeah i started noticing a small amount of blood and mucus in the stool today morning.
Looks like symptoms are coming back.
I called my Doc and left a message. Waiting for hi call.
If he calls tomoroow and asks to go back and stay on 20mg for some days..is it advisable?
is 20mg of Pred is high dosage?
I'm very much concerned about this Pred dependncy....is it normal that this can happen in some cases or is it happening only for me?

Please do respond ..I'm very much scared of this...Your advise is very helpful for me

Thanks in advance...
Posted 5/20/2008 8:10 PM (GMT -6)
Hello !!

Can anybody please respond to my previous questions?

Thanks for all you time
Posted 5/20/2008 10:24 PM (GMT -6)
Hi Happy.  My advice is if you found the Canasa helpful, stick with them.  I personally did not like Canasa because it seemed to make me have more diarrhea than before, but the enemas take some getting used to and I wouldn't quit something that seemed to be helping.  I don't think 20mgs of Pred is that much, from what I understand, the very highest doseage is 60mgs.  I was steroid dependent for about a year, the only way I got off the steroids was by myself and my UC got worse.  At the time, I could not stand the side effects of the drug and didn't care (as much) about my UC.  I do not reccommend you changing any doses of meds without your doctor's approval. 
 
Ok about the scalp; it may be Psoriasis, I have sores on my scalp when I am flaring, to me it means that my inflammation level is high.  I saw a dermatologist and she gave me a medicated foam which worked for a short while.  Have you shown them to your GI?  I used to only talk about my butt to my GI, but now I know it's useful to tell them everything else going on as well, some things are UC related and I would have never guessed.  If you have any other questions, just ask.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08

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