Just got back last nite from the Dominican Republic, it was awesome.......except for on Tuesday I had a bm and it had blood in it, some of it had some blood clots in it too. I have been having 2-4 bm's a day, which is more than regular but I was on vaca eating and drinking much more than normal. Most of those bm's had blood not as much as tuesday but still I am very worried. I had a colonoscopy on 4/04/08 which showed no inflammation but hemmies which I knew I had.
I do not think this is hemi blood (I don't really have any hemi pain, I did before the trip). One other thing is that I took aspirin on that Friday and Saturday just before tuesday, could that have caused it? My Nephrologist was worried about my edema on the plane ride.
This totally sucks, I hate this effing disease I am just so down right now (plus battling kidney disease). I am so scared that I am failing on Imuran (been on 5mgs of pred for 3 weeks now) 2 weeks before the flare, so I think that means I am.
What do people do when they flare on imuran? I have some steriod e's I started last night and will call my GI if not ok by Wed. I am just so scared..........what if remi doesn't work, either? I want a family, I don't want surgery, I hate all of this.
I need you guys! My husband just says, oh you'll be all right.........but the odds are not in my favor anymore.
Beth, 32 ~ Major Flare Sept/Oct 07 ~ in remission
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!