Nutritionist-is it worth seeing one?

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iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 5/18/2008 3:42 PM (GMT -6)   
I have an appointment with a dietician on Wednesday after work to devise a meal plan that will help my inflammation flare ups from the colitis AND Ibs. I also wanted to see her for my migraines as well as weight issues. Is it worth seeing a nutrionist? She does have knowledge as to how to help people with UC, IBS, etc. Its not covered by insurance and she is charging me 75.00 per session. What do you guys think?
 
Heather
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


Squattie
Veteran Member


Date Joined Jul 2005
Total Posts : 669
   Posted 5/18/2008 5:07 PM (GMT -6)   
Hi Heather,

I work with a nutritionist over the phone. Mine got me up and running real nice through diet and supplements. She has crohn's and hasn't had a flare up in over 7 years. She couldn't take the traditional meds, so had to do lots of research on her own. I would highly recommend a nutritionist, or at least I would highly recommend her! yeah
.....Squattie


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 5/18/2008 5:22 PM (GMT -6)   
Great question, Heather. I am interested in this as well.

Squattie, if you read this, could you let us know whether the info you got more than what you could find online or in books? I went to a nutritionist a few times and once I compared what she told me with notes I had taken at a UC seminar, I realized that she didn't tell me anything new. Do you think that you get information that is specific to you, personally? Or is it just about UC in general?

Heather, $75/session seems like a fair price. I would only be skeptical of someone who asks you to pay in advance for a bunch of visits. Also, personally, I am always worried about whether supplements are going to interact with my drugs in some bad way. You could always ask your doctor about that.

Will you let us know how it goes? Thanks!!
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.
Alternative treatments I have had success with: Acupuncture, Hypnotherapy


iluvsunflowers15
Regular Member


Date Joined Apr 2006
Total Posts : 395
   Posted 5/18/2008 5:31 PM (GMT -6)   
Thanks for your advice. I actually told the nutrionist that I will not take the supplements without my doctor's approval. I am truly looking to change my diet to feel better, lose weight, and be a happier person. In addition, I am afraid the supplements will interact with my medications. I will keep you all posted! Thanks! :)

Heather
Colazal 750 mg 3x3 daily
6-MP 50 mg (2) daily
Miralax-when needed
Rowasa-when needed
Been diagnosed with UC for 5 years


Crohny93
Regular Member


Date Joined Mar 2008
Total Posts : 118
   Posted 5/18/2008 5:32 PM (GMT -6)   
Hi Squattie,
It is such a coincidence because I have been looking for a nutritionist for my UC. However, I couldn't really find one with UC background/specialty, they all seem very broad. Since you mentioned that you speak to your nutritionist over the phone and she has UC, that sounds like someone I have been looking for EXACTLY. Do you think you can give me her information, and perhaps I can give her a call? My e-mail address is angel_virgo93@yahoo.com
Thank you so much, I would sooo appreciate it.

Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 5/18/2008 6:48 PM (GMT -6)   

My GI's office actually has a nutritionist that comes in every other week.  I saw her after the pred left me lugging around extra weight that I couldn't lose.  (It's hard to diet when you can barely tolerate any fruits or vegies.)  She devised a UC friendly diet that worked with my particular routine.   stuck to the diet for about 3 months (this is 2 years ago now) and felt much better physically - but because my body did not tolerate the pred well - I barely lost any weight.  So I stopped.  However - this past winter I noticed that the weight was finally starting to drop so I went back on the diet she gave me and lost all that pred weight within 2 1/2 months.  I feel great and now I just stick to her plan on a daily basis with a few snack cheats here and there and am maintaining my weight perfectly and my UC is behaving itself.

I definitely think it's worth a consultation.  I only saw my nutritionist twice - but it was well worth it.


KTM


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 5/18/2008 7:47 PM (GMT -6)   
my doctor just suggested i look into a dietitian. he suggested contacting CCFA and they haven't found anyone for me. I went to one when i was first diagnosed but they had no idea about UC. if anyone knows one near RI or one that can work over the phone that knows all about UC, let me know below - sorry i dont want to hijack - just really desperate for one here.
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


VegasGuy
New Member


Date Joined May 2008
Total Posts : 9
   Posted 5/18/2008 9:07 PM (GMT -6)   
When I was first diagnosed my GI out here in Las Vegas sent me to see a nutritionist. This was just shortly after being diagnosed, so I really knew nothing about the disease. Well, I got to my appointment with the nutritionist and started talking to her. She had absolutely no clue what UC even was, so I had to tell her what little I knew. She ended up coming up with a broad diet she thought I should try and stick to, so I did for a few months. During that time I did more of my own research online and it turned out that half of what she suggested was actually not all that good for me.

I hated that GI for how impersonal he was. I hated him more because his ideas behind teaching me about UC involved having me talk to other people (like the nutritionist who had never known about the disease) and by handing me pamphlets. I ended up going 4 to 5 LONG years without ever going back to a doctor.

Anyways, my suggestions are that if you do go to this nutritionist make sure to double check everything he/she suggests.

Squattie
Veteran Member


Date Joined Jul 2005
Total Posts : 669
   Posted 5/19/2008 8:02 AM (GMT -6)   
Good Morning All,

My nutritionist is on the internet and you can Google her. Her name is Debbie Sarfati. I'm very pleased with her. She did do a specific program for me. What I appreciate about her is that she knows how nutrients act in the body, and how your body organs work. She even studies the casings that vitamin capsules are made of. She also does cooking classes and shopping classes (for good food). She does overall health, but you can bet she started out looking for the answer to her crohns. She sure has helped me with mine. I haven't had a hospital stay in over two years (whereas I was going in about 2 times a year), and I think I've only seen my doctor a couple of times to just check in, so to speak. Give her web site a read and decide for yourself.
.....Squattie


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 5/19/2008 12:10 PM (GMT -6)   
A wife of a friend that's a nutritionist took it upon herself to sit down with me and advise me. With all the research I've done over the years, she didn't tell me anything I hadn't already heard and told me several things I knew were detrimental to IBDers, in my experience. I wouldn't pay to see one unless he/she was an IBD sufferer with experience successfully treating/managing his/her own health.

Rather than spend money on sessions with a nutritionist, there's plenty of invaluable information out there in multiple IBD diet books. Check some out from your local library and you'll be well-informed without paying a dime.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 5/19/2008 4:37 PM (GMT -6)   
There is a lot of good nutrition info for people with IBD on Dr. Andrew Weil's website. There's a good explanation of an anti-inflamation diet and also a lot of info about which supplements and herbs combat inflammation.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.
Alternative treatments I have had success with: Acupuncture, Hypnotherapy

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