Most people who have surgery do have a good quality of life, and I've seen very few people ever say they regretted surgery. So it's not the end of the world and there is life after colectomy. Prednisone is a seriously bad drug to be on long-term, and it sounds like you've not had much luck with other medications either. Pred usually becomes less effective over time also, so it may not provide you relief forever.
I agree with Sue. Talk with a surgeon, get an opinion from another GI if you think that's appropriate, read up on the subject, then decide what's best for you. I do remember how I felt when my GI said "I hate to see you lose your colon over such a short segment with UC." Fortunately, Remicade has put that off for me, but it still may be in my future.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.