probiotics and fun-guy!

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damo123
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Date Joined Jul 2007
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   Posted 5/19/2008 2:57 PM (GMT -6)   
I don't want to bring up a controversial topic again but I'm about three weeks into intensive probiotic treatment and the results continue to amaze me. I'm about to go two days in a row with just 1 BM each. That last happened on the 15th / 16th September 2005!
 
Over the course of the last week my digestion has improved enormously - the gas has gone, the burbing is gone, not even a murmur from the bowel not a hint of bloating. I've eaten sugar, burgers, chocolate, dairy, wheat over that period and its like I have my old system back. What further amazes me is other problems that have suddenly cleared up. I feel great, my concentration is excellent, I'm sleeping better even my eyesight has suddenly become real sharp.
 
Either this is just some freak event or the probiotics have brought about a major change in my body. I presume if it is as a result of probiotics that I must have had some bad fungi growths in my body
 
I don't claim this to be a cure for IBD (I'm still in remission for about 8 months) but it would seem to be a major breakthrough for my IBS.
 
I guess I'm wondering has anyone had similar success with probiotics especially curing and improving non - digestive issues like brain-fog, headaches etc.
 
I haven't used any anti-fungal med. I've been thinking about it but truth be told I'm afraid it will upset the current blance I seem to have reached.
 
Interested in others thoughts.
 
D
 
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


NuffinButtTrouble
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Date Joined Mar 2007
Total Posts : 679
   Posted 5/19/2008 3:49 PM (GMT -6)   
Excellent!

It's great to hear more good news, I wish I could say probiotics did the same but unfortunately I can't. However, I have noticed good results with culterelle...what probiotics are you using?

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 5/20/2008 6:13 AM (GMT -6)   
Damo, that is awesome that you are doing so well! I wished I could say the same too but hey, if it's working for you then super!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


lemonhead
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Date Joined Dec 2007
Total Posts : 1028
   Posted 5/20/2008 7:58 AM (GMT -6)   
Damo, what probiotics are you using???? Please tell. I use Dr. Ohira's 12 plus and I really don't seem to see a big difference. Also, how many are you taking. Those directions say to start with a loading dose of 8/day, then taper down,....that would get really expensive at 35 bucks for 90 pills. If you have a brand that you like, please share. I will try anything to get where you are!!
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


damo123
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Date Joined Jul 2007
Total Posts : 714
   Posted 5/20/2008 8:29 AM (GMT -6)   
I'm in Ireland so the brand names may differ. But bascially I've been filing my gut with

Acidophillus, L.Casei Immunitas and Bifidobacterium lactis.
 
I take slighlty more than the dose they advice.

It needed 3 weeks to work and during that time my BM worsended and the gas was really bad. I then got a die off reaction for 2 days but woke up the next day with perfect stools. Right now things are great. I had a sour feeling in my stomach and intestines for about a year. Thats gone now and I really feel very healthy in there.

I was also taking Asacol during that year. I've given that up and I think it has really helped my stomach.

D


Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


princesscolon
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Date Joined Apr 2006
Total Posts : 733
   Posted 5/20/2008 8:32 AM (GMT -6)   
Please share which ones you are using. I have not found one I like, or that likes me, yet.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08


damo123
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Date Joined Jul 2007
Total Posts : 714
   Posted 5/20/2008 8:34 AM (GMT -6)   
For me it was the intensity of use that brought about the change. I was only taking them now and then when I felt bad. And when I did they made things worse and I gave up. But this time I just kept taking them through the bad times. They seemed to reach a critical point and then it was like BOOM...big change to stomach and bowel habits.
Asacol and Iron as Needed. <I've fallen back into unhealthy ways and really enjoying it, burb!>
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 5/20/2008 8:56 AM (GMT -6)   
I think it's sad that someone's reluctant to share a wonderful success story on this forum because it might be perceived as "controversial," i.e. something besides drugs and surgery.

That said, this is great news, Damo. I have also had great success with probiotic therapy. In fact, I give regular use of a potent probiotic most of the credit for bringing me out of two years of pretty much constant flaring and misery after my diagnosis.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


damo123
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Date Joined Jul 2007
Total Posts : 714
   Posted 5/20/2008 9:08 AM (GMT -6)   
Well it does seem that anytime one mentions the fungus connection or SCD the next thing you know it theres 30+ posts debating the issue and having totally missed the point. I've posted before on this issue and quite frankly I didn't like the reation. On one occassion a regular member on here actually said that it was becasue "your male that you don't see the theory is wrong". Another regular member said I was in "denial with myself". My reluctancy comes from such replies.

Back to the probiotics. I really think it needs intensive treatment to overcome the bad bacteria. I should also add that I was on and off probiotics for a good bit before I stepped up my regieme. So maybe its a long term thing you need to keep up.

Probiotics seem to regulate my IBS. I hope they do something to my IBD too. I think they benefit everyone with stomach and bowel issues. Mine actually taste like strawberry-candy. It's the first time I've ever eaten something that tastes nice and is actually very good for you.
Med free for a bit as I needed a break from Asacol
 
Probiotics
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


rdm
Regular Member


Date Joined Apr 2006
Total Posts : 229
   Posted 5/20/2008 9:09 AM (GMT -6)   
I am curious, what is the dose i.e. the number of bacteria per day you take ? Personally, if the probiotic is working I would not take a specific anti fungal.

damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 5/20/2008 9:29 AM (GMT -6)   
I'm not sure of the number...the dosage is in term of how many cartons or how many supplements...i work it as follows:

Day 1: Normal dose
Day 2: 1.5 x dose
Day 3: Double dose
Day 4: Normal dose....etc

It's only when i started at higher dosage that the stomach got better. It's funny but I feel that the probiotics are helping my stomach first and foremost and then that the bowel is being helped as a result of this.
Med free for a bit as I needed a break from Asacol
 
Probiotics
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


bookworm21
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Date Joined Mar 2008
Total Posts : 1766
   Posted 5/20/2008 10:01 AM (GMT -6)   
damo, what is the actual name of the probiotic you're taking? I know you're in Ireland, but maybe if I google it, I can figure out what it's called in the US.
I'm glad that it's working really well for you!
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa (caused side effects), Proctofoam
Digestive Advantage (Crohn's & Colitis), 2 pills/day
Calcium chews
 


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 5/20/2008 11:17 AM (GMT -6)   
Activa Bioyoughrts
Danone Bio-drinks
The Acidophillus is just a fruity sweet

I try and take them between meals and not with hot food cos the heat kills the bacteria.

The first thing to get better for me was my taste. It was like "wow i cldnt taste how good the food was for the last while".

I've also spaced on my diet. I eat the same amount but rather than have 3 big meals i just eat something every hour. I'm actually eating more than I was but the bowel and stomach seem to like the fact that theres never too much too breakdown.

My digestive system is far from normal but at least now it has the space to breathe (quite literally with the extra bacteria)
Med free for a bit as I needed a break from Asacol
 
Probiotics
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


Mike W
Regular Member


Date Joined Aug 2006
Total Posts : 89
   Posted 5/20/2008 11:40 AM (GMT -6)   
Hi Damo. So basically you're getting the probiotics from yogurt, not pills? Interesting. I have a batch of SCD yogurt fermenting right now. I'm hoping it helps...
Diagnosed in 1999.
No surgeries.

Age : 31

Currently on 75mg 6mp , 20mg prednisone and probiotics.


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 5/20/2008 12:02 PM (GMT -6)   
Damo,

the fact that you experienced die off means that the probiotics was doing it's job in killing off bad bacteria (and maybe candida as well). Stick to your regime and don't go crazy with 'bad' foods...so you can keep things under control; I really think you're onto something here...I am also using Bifidobacterium lactis, but for enemas (though you can add it in powdered form, to drinks). There is hope for us...

Thanks for sharing.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 5/20/2008 12:11 PM (GMT -6)   
NBT / rdm / lemon,

I'm taking 2 million of the Acidophillus. I'm not sure how much of the others I'm taking. Is 2 million Acidophillus a day enough if you are trying to boost your good bacteria.

If the good bateria must not only populate the bowel but also kill the bad bacteria doesnt it follow that you need a lot higher dosage than you would normally. Surely in any war some of the good bacteria will get killed as well - or am I watching too many army movies?

Mike,

I'm getting half from pills (supplements) and half from dairy. I thought this was a better approach than relying solely on pills or diary.

I'm half tempted to come off the probiotcis and see if my IBS worsens - in the interests of science!!

D
Med free for a bit as I needed a break from Asacol
 
Probiotics
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


Bigphule
Regular Member


Date Joined Dec 2007
Total Posts : 137
   Posted 5/20/2008 2:06 PM (GMT -6)   
I really need to quiz my Dr. on this stuff. He had me go off of Digestive Advantage Chrones and Colitis while I was flareing but now that I seem to be on the mend I wonder what his thoughts would be about restarting or even getting on some of the "better" stuff like Damo is taking.
Diagnosed UC 12/2007
 
 
Prednisone 15mg x 1/day ~ On going recent change 4/3/2008
 


princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 5/20/2008 4:09 PM (GMT -6)   
damo123 said...
Back to the probiotics. I really think it needs intensive treatment to overcome the bad bacteria. I should also add that I was on and off probiotics for a good bit before I stepped up my regieme. So maybe its a long term thing you need to keep up.
That's correct. I was lucky enough to get in on a phone conference with Natasha Trenev of Natren, a respected authority on probiotics. She talked about how once your digestive system has deteriorated to the point you have IBD, you require a much higher therapeutic dose than the average person or say someone with IBS. Her recommendation was for 7-10 billion colony forming units per day. Once you have your IBD in remission and aren't experiencing symptoms, then you'd cut back to a maintenance dose, but anyone with a history of IBD would be wise to plan for permanent probiotic supplementation.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 

Post Edited (princesa) : 5/21/2008 8:13:51 AM (GMT-6)


damo123
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Date Joined Jul 2007
Total Posts : 714
   Posted 5/21/2008 2:58 AM (GMT -6)   
Princesa,

So how much probiotic should be taken per day in terms of millions of cells like they quote on the Acidophillus supplements. They say 2 million for a normal dosage. I presume thats way too low?

D
Med free for a bit as I needed a break from Asacol
 
Probiotics
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 5/21/2008 9:25 AM (GMT -6)   
Sorry, I was in a hurry when I posted and left out "billion" (edited to correct) - the recommendation for IBDers is 7 to 10 billion CFUs per day. Everything I've read regarding viability and dosage is expressed in colony forming units, so I'd assume they're using "cells" in place of CFUs.
 
Here are some articles that might interest you.
 
What you want to know about probiotics
 
Microbial Ecology and Probiotics in Human Medicine
 
Probiotics Guard Gut Against Stress
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 5/21/2008 10:37 AM (GMT -6)   
wow 7 billion.....so an IBDer probably ned 3-4 times the dosage of a non-IBDer.

I presume too much probitic cant cause other problems?
Med free for a bit as I needed a break from Asacol
 
Probiotics
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 5/21/2008 3:21 PM (GMT -6)   
If you look at the VSL#3 studies they were giving a couple trillion cfu! As far as well can tell everything suggests you can't overdose on probiotics. Also, they tend to multiply very rapidly and our body has a few hundred trillion bacteria, so a few billion is not overwhelming and yet it still has significant effects. Being in the millions sounds small, but it may still help, especially if it is the right type (different strains or manufacturers may be better than others). Also, some align to the colon wall, but most exit through the stool.
Pancolitis '04
Mild flare
Taking Rowasa, Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Iron


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 5/21/2008 3:49 PM (GMT -6)   
Just out of curiosity, how many yogurts are you having per day, damo? I usually have one DanActive or Activia per day plus two Digestive Advantage.
I called the Digestive Advantage people about how much bacteria is in one pill, and I think they told me 25 mg. Anyone have an idea of how much that is in per cell/CFU?
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa (caused side effects), Proctofoam
Digestive Advantage (Crohn's & Colitis), 2 pills/day
Calcium chews
 


rob_uk
Regular Member


Date Joined Jul 2007
Total Posts : 32
   Posted 6/10/2008 1:08 PM (GMT -6)   

damo how are you doing now? hope your still good.

i've been taking almost a double dose of pro biotics for just over a week now, it seems to be making me worse so far. i feel like i should stop taking them but i'm hoping it will get better soon and be worth it.

should i stick it out and hope it gets better like it did with you?

can taking more than the recomended dose be bad for you?

thanks, rob

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/10/2008 3:51 PM (GMT -6)   
lemonhead said...
Damo, what probiotics are you using???? Please tell. I use Dr. Ohira's 12 plus and I really don't seem to see a big difference. Also, how many are you taking. Those directions say to start with a loading dose of 8/day, then taper down,....that would get really expensive at 35 bucks for 90 pills. If you have a brand that you like, please share. I will try anything to get where you are!!

I saw the biggest difference when I took 5 of those, took a small nail to poke a hole in them, put them in around 30-40ml distilled water in an enema bottle, shook them up good, put them in the other way, and turned myself upside down so it could get to all my colon.  Been doing this for several weeks now every two or three days. Stopped my 2 month bout of the big D.  I'm gonna try going down to just one or two shortly and see how that does.  They are expensive....
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed

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