stopping remicade - has anyone done it?

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ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 5/19/2008 3:08 PM (GMT -6)   
hi...my GI and I both believe remicade is dong little for me. has anyone had any experiences with stopping it? I've asked this in the past here, but noone seems to ever comment...
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


goodguys75
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/19/2008 3:23 PM (GMT -6)   
I HAD 3 TEATMENTS AND THEY DIDNT SEEM TO HELP TOO MUCH...SO MY DR JUST STOPPED IT, NO PROBLEMS THAT I CAN REMEMBER, BUT IT HAS BEEN 5 YRS..

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/19/2008 3:58 PM (GMT -6)   
As far as I know, there's no need to taper. You can just stop, and if it isn't helping there wouldn't seem to be any reason to continue.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


gela
Regular Member


Date Joined Jun 2005
Total Posts : 133
   Posted 5/19/2008 6:22 PM (GMT -6)   
i stopped it but i would suggest that you get the antibody test to see if you have antibodies built up from it.  if you do, then you definately need to stop.  i'm on humira now.  too soon to say if it's helped or not.
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/19/2008 6:49 PM (GMT -6)   
i stopped it when it wasnt' working, i didnt' taper or anything, and i don't remember any withdrawal or anything like that.

princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 5/19/2008 8:58 PM (GMT -6)   
I quit it and I got some energy back and all my joint pains went away. BUT, 1 month later, I started a bad flare :(
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08


snickers0506
Regular Member


Date Joined May 2008
Total Posts : 63
   Posted 5/20/2008 7:14 AM (GMT -6)   
I had 4 treatments a couple years ago and stopped and went to 6 mp.  No problems.

40 yrs young
dx UC (pancolitis) Dec 03 then re-dx to Crohns colitis April 04 then re-dx again to UC Dec 07-currently taking no meds and in remission

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