Depression normal?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/20/2008 8:32 AM (GMT -6)   
Hi everyone! I saw my gi this morning, and i am back on meds after trying to go it w/o  meds since the birth of my daughter 1 yr ago.  I am on 40mg pred, and 75mg 6mp.
 
I have really been holding everything in and not really talking to my husband or family/friends about how i feel as im sure they are just as tired of hearing it as i am about talking about it. Anyways, after just having a second child, i stopped my meds to breast feed. Had two breast lumps removed (benign) and really wanted to try to go it med free, tho, i think somehow i didn't realize that maybe i was fooling myself. I KNOW that i should be on meds, or i will be sick. I just don't want to be SICK anymore.....im tired of the meds, im tired of the doctors (which w/ other medical issues seems to consume my time). I just want to be well and take care of my family/kids the way i should.
 
I am finding it hard to cope w/ the fact that i need meds again, which is stupid since i have had UC for almost 5yrs now. I became depressed w/ the original dx, but put things back together and got on w/ my life. I don't get why im feeling so depressed about it now. (im actually crying while writting this post, which is rediculious!)
 
I feel horrible all the time, have lost all the baby weight and then some (5'7 and 95lbs) and have no energy or strength to do anything.
 
Anyways, just wanted to know if others have depression related to their uc that comes and goes?? I hope w / the meds i will be feeling better soon and i will be making an appt. w/ a nutritionist today to, to help me gain some weight.
 
Guess i just really need to connect to some people. I could really use a "buddy" or two right now to help see me through this sad
 
thanks, and i hope u all are feeling (mostly) well! shannon
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone (tho currently not on UC meds)
percocet 5mg 3x day
potassium 3x day
 


Mike W
Regular Member


Date Joined Aug 2006
Total Posts : 89
   Posted 5/20/2008 8:47 AM (GMT -6)   
Sorry to see you aren't doing well Shannon. I'm sure the prednisone will kick in and you'll be feeling better soon. I'm actually have Crohn's but I'm on 75mg of 6MP as well.

I was on it for a few years and it really helped me, so I'm sure it will help you too. I stopped taking it b/c my wife and I were thinking about having a baby but things have just blown up on me so I'm back on it, plus 20mg of prednisone as well. I called in sick to work today, and I'm feeling depressed as well, so you're not alone. I have also cried today, first time for that in years.

I don't want to deal with this either, I am going to try gluten free or SCD diet once I get things in order.

Well, take it easy. You'll feel better soon, I'm sure!

Mike
Diagnosed in 1999.
No surgeries.

Age : 31

Currently on 75mg 6mp , 20mg prednisone and probiotics.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 5/20/2008 8:58 AM (GMT -6)   
Hey, Shannon. I'm sorry you're feeling depressed. I have been too--I've just had bouts of crying every once in a while since my flare started a couple months ago. I acutally cried last night because I had an accidnet. I've cried b/c I can't live "normally," I'm always on meds, I can't follow the career paths that I originally wanted to/can't follow my dreams, I'm a burden on my family, etc.

I hope you're feeling at least somewhat better. *hugs*
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa (caused side effects), Proctofoam
Digestive Advantage (Crohn's & Colitis), 2 pills/day
Calcium chews
 


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/20/2008 9:21 AM (GMT -6)   
Thanks to both of you! Im sorry that u both are stuck where i am right now to!!! I know things will be better, so im just not sure why it hit me like this...thanks for sharing, it's good to know that others understand how im feeling.

ps, mike, i think it might be different for men (maybe lowering sperm count)??, but i took 6mp though most of my pregnancy including the trying to concieve stage. Im not sure how it works w/ a man taking it, but if u guys have not, u should consult a perinatologist (high risk pg doc) who will know much more about how 6mp would affect an embryo comming from the man's side...good luck!

comedydork, im sorry u had an accident last night! i hope that things settle down for all of us soon! hugs, shannon
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Mike W
Regular Member


Date Joined Aug 2006
Total Posts : 89
   Posted 5/20/2008 9:40 AM (GMT -6)   
Hi Shannon. Thanks for the message. I've talked to a few doctors about it and done some research and it's not really a concern for men as for as the baby's health. There is a possibility of a lowered sperm count, but not really that either. We were just trying to be extra careful, but I guess it wasn't a great idea.
Diagnosed in 1999.
No surgeries.

Age : 31

Currently on 75mg 6mp , 20mg prednisone and probiotics.


VegasGuy
New Member


Date Joined May 2008
Total Posts : 9
   Posted 5/20/2008 9:41 AM (GMT -6)   
I am often depressed because of my UC and other related problems. I quit working a few years ago to try and deal with a UC flare I was having. That alone was hard because at the time I was 24 years old with a great career lined up. I was a Project Manager for a pretty big company, responsible for many multi-million dollar projects, had a company vehicle with a company gas card (that would be great right about now), had a salary position, and best yet they worked with me when it came to my health. They knew about my disease and worked stuff out to where if I was feeling especially sick I could just work from home (before leaving work each day I'd upload all my work to a private website that I could access from home). In the last year I was there I probably worked from home a good 75 days that year. I honestly wasn't sure how they felt about that (they always said they were perfectly fine about it) until the day I told them I would be quitting. about an hour later I got a call from the corporate headquarters in California. It was the owner of the company on the phone. He asked me what was up and I told him. We talked for a bit and then he said he'd get back to me in a few hours. A few hours later he called back and offered me a deal. The deal was that I'd come work out of the corporate office on a 20 hour a week schedule (could mostly be all done from home). I told him there was no way I could afford to live down there while working part time and he told me that wouldn't be a problem because he'd rent me a place with full utilities paid. I gave that a lot of thought but about a week later (was having a really bad time with my health) I told him I'd have to pass. He kept in touch with me for almost 2 years after that just to see how I was doing and would always let me know that once my health was better he'd have a position waiting for me.

Deciding to leave really sucked.

Not being able to work since then has really sucked. I loved working and I miss it.

Living life extremely broke while constantly being sick really sucks.

Spending the last 3+ years in basically a constant "flare" (I've had periods of time when I felt good....usually while on prednisone) has really sucked.

All of those things have had me depressed off and on. Knowing I'll most likely be sick until the day I die gets me really depressed. A lot of small things even make me depressed basically because it just seems like you're stuck in a rut and can't get out.

Being depressed most likely is something all of us feel. How depressed we feel most likely largely depends on how sick we are and how good of a support structure we have around us.

(Sorry about my work situation ramble. When I'm depressed, which I have been lately, I find that just "talking" to people helps. Even if it's about something stupid. Oh, the owner of my old work didn't stop contacting me because he forgot about me or anything. He actually had a tragic accident and passed away a year or so ago. Great guy. Wish the world had more people that cared like he did.)

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/20/2008 9:44 AM (GMT -6)   
Well, im glad to hear that u already are aware of the info mike. i know all about being extra careful..lol..i stopped my meds when i went into preterm labor w/ my baby and really wanted to breast feed the baby, so i have been off since (a yr now), which i know was a good move for the baby, but i should have gone back on meds when i was done.

anyways, i hope u are feeling better soon!
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 5/20/2008 9:38 PM (GMT -6)   
I went off meds after having UC for years too, like you said, I was tired of being sick, tired of meds! I think it's normal. Add in the exhaustion of having a baby, flare-ups, and life in general, and it can be tough. The first thing to do is forget about the mistakes you made, and move on. I have occasional depressing days, but not long periods of feeling depressed. (Last time on Pred I was a basket-case so it may be that, when did you start it?) If you feel like you can't get away from the depression then you should talk to a doctor about it. Hope you are feeling better. :)
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 5/21/2008 1:07 AM (GMT -6)   
Well, I've lost everything except my spirit to this darned UC.

Like VegasGuy, I've been in constant flare for just over 3 years now. (Flared Feb 2005)

So far, I've lost my home, my partner, two jobs, an awesome club DJ career, a great deal of money, quite a few friends and can't forget the 3 years of my life this thing has taken.

When I think like that, it used to get me down. Now, not so much. When I was at my worst, I got the balls together and went to see a counsellor who deals with chronic illness. BEST thing ever. Really helped me work out how to get through that dark and rough patch.

There's a stigma that seems to go along with counsellor's, as if u have to be a loon or crazy person to seek their help. Once u get over that and do it, things seem to look so much brighter. Friends and family can only take so much, and they can only offer support, very few can actually help you find a solution.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 623
   Posted 5/21/2008 7:57 AM (GMT -6)   
Seek help. If you feel overwhelmed or depressed, there is no shame in that. After all, you have a chronic illness that affects every aspect of your life! To imagine you could deal with that on your own is making it really so much harder than it has to be.

I've struggled with depression for over 20 years, and I take medication daily that helps me so very much. I fortunately don't have nearly the level of colitis that so many of you poor folks are dealing with. The medications I take for that really, really help.

I fought going on antidepressants for a long time, but I finally was convinced, and it was such a blessing. I knew I was a strong person, but I could not fight my brain chemistry.

Again, there's no shame in seeking help. The shame is continuing to suffer when you don't have to. Treating depression is among the most successfully treated ailments. Why should you suffer if you don't have to?

I feel just awful for all of you suffering because I know how much of life I lost, how truly horrible my existence was when I was in the throes of depression. Don't let another day go by without seeking help for your depression. You are worth it!

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/21/2008 8:37 AM (GMT -6)   
My last flare I got depressed. In talking with my GI he said that prednisone can cause depression so I let it go unchecked figuring it was just one more side effect of that drug. This flare went on for over 2 years and I finally opted for surgery. Six months out of surgery and in excellent health I was still depressed and sought help. Turns out that prednisone did not cause my depression, chronic illness did. I went on antidepressants and within 3 weeks my depression lifted. I stayed on them for 4 years at my doctor's advice. She said that I needed to take in account the time I was sick (2.5 years) plus the amount of time I was in recovery (1.5 years) and the sum of that was the length of time I needed to be treated. At the 4 year mark I successfully tapered off of ADs and have been fine since. Whether or not you choose to go on medication you should at least seek treatment with a counselor who works with the chronically ill.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/21/2008 9:00 AM (GMT -6)   
wow, u guys were busy while i was gone! LOL

Im actually feeling a little better today (day two on pred), however, i did not sleep more than 4 hrs last night (even after taking ambien cr). I am totally wired, at least my house will get clean!

Im so thankful for all of u to share ur stories. I hope that u all can seek some comfort w/ me in knowing that alot of us suffer w/ depression.

I did seek counceling after my dx 5 yrs ago, but have not since. Im not sure if i was just having a bad day in general or what.

Vegasguy, im sorry to hear all that this danm disease has taken from you! It's ashame that your boss was lost to a accident, as he sure sounded like a great perosn!

Anyways, i am glad to report that today i am feeling better, physically and emotionally. I hope it keeps up that way!
and like many of u, i like to "talk" to when things are bad, so if u all want to keep the thread going, i don't mind chatting.

hugs, shannon
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 5/21/2008 7:06 PM (GMT -6)   
hey, i was really depressed on monday - but once the week gets going and i keep busy, talk to friends and family, you can really turn it around - its part of dealing with this condition - and all the medicines i am convinced have some effect on me in regards to emotional stability - once you get informed about stuff and research something that is bothering you - i find you start to feel a little bit better about it- although we can never be in control with tis condition, we can be more comfortable and ready to deal with what it throws at you... good luck, and healingwell is awesome for making you feel better if you put a post - everyone here is so supportive and there is so much to learn from each others experiences
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax

Post Edited (ThePostModernIrony) : 5/21/2008 7:14:36 PM (GMT-6)


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 5/21/2008 7:22 PM (GMT -6)   
Shannon, I'm sure that by now you know this is a great place to vent about UC. We all understand and have our days when we are so fed up with this disease. I'm in remission now and still on occasion get so darn depressed over the fact that I have to take these 11 pills a day (between my meds and supplements) and Rowasa enemas twice a week. Sometimes I just don't want to take them anymore. But, then I tell myself to just "suck it up". I stopped taking my meds before and enjoyed a very long remission, but it came back to bite me in the Butt. So, I probably will not stop taking them again, but I am SICK of taking them. And I feel kind of guilty saying that because there are so many people who can't get into remission and here I am complaining about all the darn pills, but I am lucky enough to be in remission. We all have our days, eventually we get over it, what other choice do we have, right? It's just something we will have to live with the rest of our lives unless some EINSTEIN comes up with a cure, other than colectomy....When I do start to get down about it, I just remind myself that there are alot of people out there that are worse off, and not just those with UC.............
Try to take your pred early in the day if possible. If you take any at night, it will definitely interrupt your sleep. Glad you're feeling a little better, keep thinking positive. Good Luck
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema 2 x a week. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/21/2008 7:51 PM (GMT -6)   
Aw Shannon ((((((((((((((((((HUGS))))))))))))))))

Counseling is a really good option, you don't want depression to get out of hand (trust me), it's very common when dealing with a chronic illness that depression and even anxiety will come into the picture, but the best way to deal with either/both is as soon as you recognize it talk to someone and get the appropriate care for it, especially with having 2 little ones, they need you.

I'm so glad you came over to this board and that you've gotten so much wonderful feed-back, sometimes we don't realize that just getting some responses can do a world of good for both sides, I find it very therapuetic to put my troubles aside and give words of encouragement back to others, and I'm sure you do as well, same with the rest of the group.

Hang in there, you've always got us.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/22/2008 9:27 AM (GMT -6)   
Thanks again everyone! Today is day 3 on the pred. Yesterday i was feeling better physically, but today having a rumbling stomach, pain, ect. I slept about 4 hrs last night (thanks to the pred), but im eating everything in site (thanks to the pred, lol)

I do find that my mood is better tho, so i assume i was just having a hard day that day, maybe when i was confronted by my doc as to why i had not been on my meds for so long!!!

I have been keeping a food journal and hope to see a nutritionist next week!

Anyways, im so happy i found HW, and that all of you have been so welcoming! pb and i go back about 4-5 yrs from another board that recently shut down and i hope to be making some other friends here to!

hope you all have a good day and are feeling well!!!!! shannon
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 19, 2018 6:06 AM (GMT -6)
There are a total of 2,953,043 posts in 323,964 threads.
View Active Threads


Who's Online
This forum has 162049 registered members. Please welcome our newest member, feyi.
316 Guest(s), 6 Registered Member(s) are currently online.  Details
NicHostetler, 81GyGuy, sandyfeet, Bull101, Pratoman, Union98