Is this possible??

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UC spouse
Regular Member


Date Joined Feb 2008
Total Posts : 70
   Posted Yesterday 10:21 PM (GMT -6)   
My husband recently had a colonoscopy. This is a year from when he was diagnosed with pancolitis. He has never been in remission, until now...we think.

I feel so nervous typing this, b/c I don't want to jinx anything. The good news is in his recent colonoscopy, they found that my husband no longer has pancolitis! They said he has proctosigmoiditis.

Is this possible? Can he ever go back to having pancolitis? Does that mean my husband has finally reached remission after a year, he is still going to the bathroom at least 5-6 times a day compared to 10-12 times a day.

Also, his doctor told him to stop Colazal cold turkey. Does that sound right?

Thanks for your input!
Husband diagnosed with pancolitis in May 2007 at the age of 31

Predisone 40 mg for two months-every time weaned off, symptoms came back, Mesalamine(substitute for Rowesa)enema for 21 days-didn't see results in 14 days so stopped taking it, symptoms seemed to get slightly worse.
Xifaxan-on and off
Current meds. : Humira, Colazal 12/day, Probiotic-Align, Fish Oil
Has never gone into remission


quincy
Elite Member


Date Joined May 2003
Total Posts : 30504
   Posted Yesterday 11:25 PM (GMT -6)   
Hmmmm, stop Colazal cold turkey.....sounds like the doc is being a turkey...
you don't even have to ask if it doesn't sound right..I'm in shock.

UC starts in the rectum and spreads upward....heals down from that . The rectum is the last to heal. The fact that he's doing so well is awesome.
I think he should consider to go back on the enemas to help deal with the rest.

I guess the doc is hoping the Humira will deal with the rest of it.....

Your husband's call whether to go off the Colazal or not.
He could maybe taper one pill every 2 weeks until he's off it.
If his symptoms increase in any way....go back up.

And did I mention to add the rectal meds again? He's improved a LOT and should be able to recognise changes in symptoms if they should increase...different when one is cearly healing than when one is in an accute state of a flare.

Keep us posted.
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted Today 12:33 AM (GMT -6)   
Although (from my understanding) Colazal is designed primarily to do its thing in the earlier stages of the colon, I don't see ANY reason to stop it. If I were you, I would most defiantly be getting a second opinion. There is a good chance that its the Colozal you can thank for reigning in the colitis in the main part of the colon (and keeping it there most likely).

I have to side with quincy, your GI is extremely suspect or screwed up...
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted Today 5:01 AM (GMT -6)   
Your husband has a history of Pancolitis so if he is to flare severely again, he has that potential of it spreading thru out his colon again. The terms they use in describing the severity (Pan., left sided, Procto etc) is just a placement in which the area has the most activity at the moment.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted Today 6:51 AM (GMT -6)   
Generally we stay on 5-ASA's even when on biologicals such as Remicade or Humira. The doc's advice doesn't seem to make sense to me, and I'd definitely be asking for his reasoning on this.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted Today 7:20 AM (GMT -6)   
I'm sorry to say, but your husband is not in remission. He is defnitely on his way... but if he still has inflammation (i.e. proctosigmoiditis), he has not yet reached remission.

I am with Quincy... rectal meds, rectal meds, rectal meds! Everything she said is absolutely correct.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted Today 11:42 AM (GMT -6)   
Is 5-6 times of BM's/day normal for him? Is that what it was before he got sick, because if not, he likely still needs meds...of some sort at least to treat the inflammation that he still does have...glad his pancolitis has improved, keeping fingers crossed he's on his way to a full remission (but he'll likely need meds for that and probably for maintenance, it depends on the doc).
 


:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)

Post Edited (pb4) : 5/21/2008 11:49:14 AM (GMT-6)


slim18996
Regular Member


Date Joined Apr 2008
Total Posts : 99
   Posted Today 6:56 PM (GMT -6)   

Stopping the Colazal may be your doctor's way of finding what is causing the improvements.  You say your husband is on Humira and he was diagnosed one year ago.  I am just assuming so correct me if I am wrong but I would guess he wasn't put on the Humira till just recently and has probably been on the Colazal longer.  If this is the case your doctor may be trying to decide if the Colazal has anything to do with the improvements or if it is all credited to the Humira.  Your husband should be able to stop the Colazal without any adverse affects such as quiting cold turkey on something like Prednisone.  The only possibility would be the signs of things getting worse in a few days prompting you to call him at which time he may determine that the Colazal is needed.  If not then there is no reason to be taking that medicine and if the price of it is comparable to Asacol he is saving someone a bunch of money.

Since you have posted in your sig that no improvement was noticed with the enemas he may be using that as a precursor for not using them again.  Sounds like whatever he is doing may be having some improvements, if you have questions don't be afraid to ask your doctor to explain.  He should be able to give a reason for everything he is doing.  I would definitely stick with him, he must be doing something right.  Half as many BMs beats twice as many.

John


  • Diagnosed with UC 2003 (but had sympoms as far back as1993)
  • Hospitalized 3/08 for sepsis, 7 days ICU due to complication brought on by prolonged use of steroids
  • Current status = flair (no remission in five years)
  • Prednisone 40 mgs
  • Asacol 1200mg three times a day
  • Protonix 40 mg twice a day
  • Levbid 0.375 twice a day
  • Calcium 600 mg

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