Mayo Clinic info on UC and alternative medicines

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/21/2008 9:25 AM (GMT -7)   
 
I thought this was interesting, some of it is pretty basic, but they touch upon topics discussed here, such as diet, probiotics, depression and even accutane.
 
Just wanted to share.


Beth, 32 ~ small flare - hoping caused by aspirin
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 5/21/2008 10:35 AM (GMT -7)   
It was interesting. It's amazing how differently it can affect everyone. When I'm in remission, I can eat anything except salad. Maybe 5 out of 10 times I will be running to the toilet within an hour of having a salad. When I'm in a major flare, everything bothers me, I think it is just food in general.

Nobody in my family has any IBD issues. I'm the lucky 1st.
I've never lost weight or had a fever from UC.

It also says that 90% of us will never develop colon cancer, which is higher than I thought. YAY!!!!!
It lists the different categories of UC. I wonder what mine would now be considered. Didn't see mine there. I started out with lower left sided colitis in the beginning. After my last 2 year flare I was told it now involves 3/4 of my colon. Is there a name for this?????
And lastly, I find it interesting that the first medication it lists is Sulfasalazine, which has been my godsend. Most doctors don't even try this. (I know, everyone is probably sick of me singing it's praises) but it's what has proven to work the best for me. I only wish I had insisted that my GI put me on this before. I wasted 2 long years in the worst flare and she put me on Asacol which didn't do a darn thing. I wonder how much sooner I would have gotten into remission if I was put right back on the Sulfasalazine..............Too late to worry about that now, I'm back on the med that works best for me now, but at what price did my colon pay?????
Good artice, thanks for sharing that Beth
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema 2 x a week. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
 


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 5/21/2008 11:17 AM (GMT -7)   
This is a great article! Thank you for sharing, Beth!
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/21/2008 11:44 AM (GMT -7)   
Donna, I was put on sulfasalazine first it really helped me, it did bother my stomach some but I took it w/meals and was ok. I eventually went to asacol and was good.....but i'm hypersensitive to them so can't take them anymore.

Funny how our bodies are so different, I eat salad pretty much every day but give me a coffee when I am flaring and I end up w/a lot more bm's.
Beth, 32 ~ small flare - hoping caused by aspirin
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 5/21/2008 11:55 AM (GMT -7)   
It is funny how it affects everyone so different. One thing I have to have everyday is 3 cups of tea. And I'm not talking about decaf. I'd rather cut off my left arm than go without my tea, and the tea doesn't bother me at all....I said I can eat pretty much everything, but I am a picky eater and I don't like hot, spicy foods. But, I definitely eat whatever I want, except the salad, if I do want a salad real bad, I'll have one, knowing that it might be a problem..........
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema 2 x a week. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, February 25, 2018 4:41 AM (GMT -7)
There are a total of 2,933,074 posts in 321,819 threads.
View Active Threads


Who's Online
This forum has 160488 registered members. Please welcome our newest member, Tanika.
262 Guest(s), 0 Registered Member(s) are currently online.  Details