how many of you keep track of stuff (meds, food) on a calendar?

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ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 5/21/2008 8:19 PM (GMT -6)   
I finally broke down and got a little daily planner i keep next to my desk. I write down meds, any health concerns, and any different foods. It helped when i went to the doctor to remember all i had been through because i usually try to forget the bad weeks. I feel like its kinda empowering in a little way. Opinions? Glad I am finally doing it if it lasts. I know food diaries sound intimidating - but if you have your food down to a schedule for the most part like me during the week, you can leave all that out.
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), Remicade - 6 treatments, prednisone boo 10mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart right now), astelin (nasal spray) as needed, allergy shots, fosamax


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/21/2008 9:12 PM (GMT -6)   
I used to keep mine all organized on an Excel spreadsheet. I'm the same way, and will downplay and underestimate symptoms if I don't track.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 5/21/2008 9:27 PM (GMT -6)   
I don't keep track of my food, but I have been writing down how many BMs a day I have and if I have any bleeding, mucous or other increased symptoms from my norm. It's nice for me in a way to look back over the past few weeks and see how I'm doing and try to figure out if there are any patterns to the madness that is UC. I also keep track of when I start any new meds or supplements.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


ddneilson
Regular Member


Date Joined Mar 2008
Total Posts : 21
   Posted 5/21/2008 9:40 PM (GMT -6)   
I've been using a Google-docs spreadsheet to track meds/BMs/consistency/etc (I'll only note food if I'm "bad") for the past 2 months now. I'm finding it very handy.
Universal Colitis since 09/2003
Current Meds:
Asacol (800mg 3x daily),
Prednisone (40mg/day) again <sigh>,
VSL #3 (2-4 packet/day),
Calcium Supplement,
Multivitamin


KaseyF
Regular Member


Date Joined May 2008
Total Posts : 65
   Posted 5/22/2008 7:17 AM (GMT -6)   
I just started last week but I use google calendars to track mine and it seems to be working out. I'm freelance and constantly hopping to different jobs, so I need something that's available on the internet since I'd rather not carry around anything else in my already heavy purse.

On the calendar, I input everything with the time it happened and color code it for food, medicine, BMs, medical issues. So it's easy to view everything at a glance.
27 years old, Female, NYC
Diagnosed with severe UC on May 13, 2008 (though I'd apparently had it for years.)
500 MG Sulfalazine x4 a day


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 5/22/2008 7:24 AM (GMT -6)   
I bought something called a memory minder personal health journal. It has spaces to write everything you are taking....one column for prescribed things and another for herbal supp. there is room to write down what you eat, and there is a column for every part of the body and you fill out the parts that are bothering you.
And you can rate how badly they are bothering you. I also record bm's consistancy of bm and anything out of the ordinary. I love it and it really helps me out.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/22/2008 8:07 AM (GMT -6)   
I just have a notebook, I keep track of medicines, Dr. visits, stuff the Dr. says. It has been very handy.
Beth, 32 ~ small flare - hoping caused by aspirin
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 5/22/2008 9:58 AM (GMT -6)   
Yup. I have a little calendar in my purse that tracks my pred dose, appointments, and if something "remarkable" happens that day.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Getting close to remission!?!?!
 
10mg pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/22/2008 10:16 AM (GMT -6)   
I just started my food journal this week. I don't track my meds as they are the same and i take them every moring. But i find that as im keeping the journal, i tend to eat more (tho im on pred to) and eat better, as i plan on taking it to a nutritionist and don't want to get slammed for all im putting in my body!

good luck w/ ur journal! shannon
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 5/22/2008 12:00 PM (GMT -6)   
I kept a food/symptom diary before I was diagnosed.

I do, however, have the rectal med (salofalk) and Estradot (estrogen patch) scheduling on my calendar and change it if necessary.

I keep my meds and supplements in pill "minders".

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


bowelsafire
New Member


Date Joined May 2008
Total Posts : 12
   Posted 5/22/2008 1:38 PM (GMT -6)   
I have been keeping a log of all medications, and signicant events concerning my UC since December 2007.  In addition I have graphed the number of bowel movements and medications so that each time I visit the Doc he can look at the graph as we discuss next steps in the attempt to bring the UC into remission.  So far the graph is a success but the remission is not.
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