Posted 5/23/2008 2:11 AM (GMT -6)

My advice is to get a doctor who you feel comfortable with.  Your gastro doctor will become more familiar to you than your family doctor.  He/she must be available to see you immediately if you need it and willing to try many different combinations of meds rather than just telling you to ride it out when you know you don't feel right.

Most importantly, get yourself healthy as quickly as possible so you can get back to doing all the fun stuff I'm sure you were doing before you got sick.  The biggest thing I've learned both in life experience and on this website is that while this disease can be debilitating, it does not have to be the end of your world.


dx UC Dec. 2001
currently in remission
Meds: asacol 6(400mg)/day
         entocort 3(3mg)/day
         canasa 1(1000mg)/day
         looking into probiotics

Posted 5/23/2008 6:20 AM (GMT -6)
Thanks everyone it is a great help knowing there are a lot of people just like me going through the same thing,and that i always have you to talk to and understand just what it's like,hubby very unsure at moment does not know what to do,so not really doing anything so not much help there will keep looking and learning as there is much i don't understand but will.
  Diagnosed 22.5.08 with Lft sided U/L
  Meds Predfoam 20mg 2x day
  Mesalazine 400mg 2x day

Posted 5/23/2008 8:19 PM (GMT -6)
I totally agree with BumTum - I've been a member of this site for about a week and I already feel I've learned 100x more than what I learned from my doctor.  I wouldn't necessarily say he doesn't know what he is doing or isn't concerned, this forum is just seems to be a very easy way to share thoughts/feelings with others who know exactly what we are all going through.  I was diagnosed with left sided UC in November 2007, and I guess all I can say is I've had a lot of good days, and a fair number of bad days too.  Fortunately, my "bad" days have not been that bad, compared to what I think alot of other people experience.  The only thing that really bothers me and I'm still struggling with is going from the mentality of being able to eat whatever I want with no consequences, to now having to be cautious about anything. 
Good luck and keep your spirits up!
- Diagnosed with moderate left-sided colitis - November 2007
- Colazal 3 (3 times daily)
- Probiotic

Posted 5/26/2008 5:47 PM (GMT -6)
Lambkins-- There are a lot of spouses that are members of this site so your husband can always come on here himself and chat with those that are in the same boat as him. It might help him to better understand how to help you and to help him deal with your being diagnosed with Ulcerative Colitis.

UC is a tough disease because there really isn't any visible/physical ailment and it's hard to understand what someone who has it is going through. It was very frustrating when I was diagnosed because everyone kept asking me to describe the pain and how I felt.

This is a great forum and very helpful.

Good luck
Age 18
Diagnosed September '01 : Remission since July '02
Asacol- 4 pills 3xday
Azathioprine- 75mg 1xmorning
Centrium A-Z multi-vitamin
Took Remicade 3 times, BIG FAN!!!!
Have Taken: Prednisone, Flagyl, Zantac (for acid reflex)

Posted 5/27/2008 9:08 AM (GMT -6)
Hey Lambkins. It's overwhelming isn't it, but you will learn how to deal with it. My advice for you would be to cut out all junk food. Junk food contains high levels of refined sugar, white flour, trans fat and polyunsaturated fat, salt, and numerous food additives; at the same time, it is lacking in proteins, vitamins and fiber, among other healthy attributes. Make your body do as little work as possible for digestion and allow it time and energy to heal itself. Please take all your meds prescribed to you, but don't forget about adjusting your diet.
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.

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