diagnosed today

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lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 5/22/2008 10:01 AM (GMT -6)   
 
 Hi have just got back from having first colonoscopy to find i have lft sided U/C sad .The consoltant said that 50/60% of colon is affected and have been started on
 Predfoam 2x aday and Mesalazine 400mg 2tabs 2xday.How quick should meds kick in have
got to go back in 6weeks but other than that he did not say much,any good advice for a newbe confused   
  
  Diagnosed 22.5.08 with Lft sided U/L
  Meds Predfoam 20mg 2x day
  Mesalazine 400mg 2x day


quincy
Elite Member


Date Joined May 2003
Total Posts : 30406
   Posted 5/22/2008 10:51 AM (GMT -6)   
Hi....I don't think you're on quite enough oral 5ASA, but that can be increased if you need...1600 daily is a good start.

The predfoam will help with the rectal/sigmoid inflammation.

You should see improvement over the next 2 weeks...are you supposed to stay on the predfoam for the full 6 weeks or eventually go to once a day?

Hang tough...it'll take you a while to get symptoms controlled..

Please don't miss any of your oral meds...

Keep us posted as to how you're doing.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/22/2008 10:57 AM (GMT -6)   
I agree that your Mesalazine dose seems low for a flare; if you don't see any improvement in a couple of weeks, go ahead and call the doctor as it may need to be increased.

One thing almost all of us do is to take a good probiotic formula. You can get them at health stores or most pharmacies. They replenish the normal "good" bacteria found in healthy colons and help prevent infection from pathogenic organisms such as clostridium dificil when we're flaring.

We're here to support, so welcome to Healing Well. There's a lot of good information both on the message board and in the resources linked above.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/22/2008 1:48 PM (GMT -6)   
Hello,

You have found a very supportive site!

I agree w/Quincy, I think you may need more oral Mesalamine, check back w/your Doc in a couple weeks if not getting better.

With the e's I have found I have started to get better in 3-5 days.
Beth, 32 ~ small flare - hoping caused by aspirin
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


BumTum
Regular Member


Date Joined May 2006
Total Posts : 304
   Posted 5/22/2008 2:08 PM (GMT -6)   
Hang tough and check this site everyday. You'll learn so much more than your doctor will ever tell you. It will get better.
  • Pancolitis since 5/06 at age 50, IBS since childhood
  • Degenerative Disc Disease/Spinal Stenosis - L4 and L5
  • Prescribed: Asacol, Atenolol, Zoloft, Synthroid, Menest, Crestor 
  • Prescribed: Xanax & Hydrocodone as needed
  • OTC:  Probiotic 15-35, Multi Vitamin, B Complex, Turmeric, Fish Oil, Biotin
 
 
 


GangGreen
Regular Member


Date Joined Apr 2008
Total Posts : 44
   Posted 5/23/2008 1:11 AM (GMT -6)   

My advice is to get a doctor who you feel comfortable with.  Your gastro doctor will become more familiar to you than your family doctor.  He/she must be available to see you immediately if you need it and willing to try many different combinations of meds rather than just telling you to ride it out when you know you don't feel right.

Most importantly, get yourself healthy as quickly as possible so you can get back to doing all the fun stuff I'm sure you were doing before you got sick.  The biggest thing I've learned both in life experience and on this website is that while this disease can be debilitating, it does not have to be the end of your world.

FEEL BETTER :-)


dx UC Dec. 2001
currently in remission
 
Meds: asacol 6(400mg)/day
         entocort 3(3mg)/day
         canasa 1(1000mg)/day
         looking into probiotics
 


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 5/23/2008 5:20 AM (GMT -6)   
Thanks everyone it is a great help knowing there are a lot of people just like me going through the same thing,and that i always have you to talk to and understand just what it's like,hubby very unsure at moment does not know what to do,so not really doing anything so not much help there will keep looking and learning as there is much i don't understand but will.
  
  Diagnosed 22.5.08 with Lft sided U/L
  Meds Predfoam 20mg 2x day
  Mesalazine 400mg 2x day


cpaarchie
Regular Member


Date Joined May 2008
Total Posts : 79
   Posted 5/23/2008 7:19 PM (GMT -6)   
I totally agree with BumTum - I've been a member of this site for about a week and I already feel I've learned 100x more than what I learned from my doctor.  I wouldn't necessarily say he doesn't know what he is doing or isn't concerned, this forum is just seems to be a very easy way to share thoughts/feelings with others who know exactly what we are all going through.  I was diagnosed with left sided UC in November 2007, and I guess all I can say is I've had a lot of good days, and a fair number of bad days too.  Fortunately, my "bad" days have not been that bad, compared to what I think alot of other people experience.  The only thing that really bothers me and I'm still struggling with is going from the mentality of being able to eat whatever I want with no consequences, to now having to be cautious about anything. 
 
Good luck and keep your spirits up!
- Diagnosed with moderate left-sided colitis - November 2007
- Colazal 3 (3 times daily)
- Probiotic


UChick
Regular Member


Date Joined Jun 2006
Total Posts : 170
   Posted 5/26/2008 4:47 PM (GMT -6)   
Lambkins-- There are a lot of spouses that are members of this site so your husband can always come on here himself and chat with those that are in the same boat as him. It might help him to better understand how to help you and to help him deal with your being diagnosed with Ulcerative Colitis.

UC is a tough disease because there really isn't any visible/physical ailment and it's hard to understand what someone who has it is going through. It was very frustrating when I was diagnosed because everyone kept asking me to describe the pain and how I felt.

This is a great forum and very helpful.


Good luck
Age 18
Diagnosed September '01 : Remission since July '02
Asacol- 4 pills 3xday
Azathioprine- 75mg 1xmorning
Centrium A-Z multi-vitamin
Took Remicade 3 times, BIG FAN!!!!
Have Taken: Prednisone, Flagyl, Zantac (for acid reflex)


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 5/27/2008 8:08 AM (GMT -6)   
Hey Lambkins. It's overwhelming isn't it, but you will learn how to deal with it. My advice for you would be to cut out all junk food. Junk food contains high levels of refined sugar, white flour, trans fat and polyunsaturated fat, salt, and numerous food additives; at the same time, it is lacking in proteins, vitamins and fiber, among other healthy attributes. Make your body do as little work as possible for digestion and allow it time and energy to heal itself. Please take all your meds prescribed to you, but don't forget about adjusting your diet.
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.

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