how long after pred taper for joint pain to go away?

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/22/2008 11:33 AM (GMT -6)   
for the past three weeks, it is just hard to walk, my joints really hurt, stairs are hard to do. I talked to my Nephrologist and he said it was the pred masking it.........but I am so sick of this.  I do the treadmill for 30 min a day, I need to keep active, once I get moving I am ok, but if I sit for any length of time getting up is so difficult and I walk really really slow.  It is kind of embarrasing.  I try to stretch in my cube for a few seconds before walking out of it......I shuffle.....uuugh!
Beth, 32 ~ small flare - hoping caused by aspirin
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 5/22/2008 8:16 PM (GMT -6)   
my last taper I had some ankle pain and back pain that was manageable that went away in two weeks or so....I didn't have any major joint pain that I can remember.
Jessica 26/F 40mg pred taper
dicyclomine 10Mg before bed
Citalopram 20 MG
Colazal 3X3/day
Culturelle once daily
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/23/2008 7:59 AM (GMT -6)   
you're still on pred, right? I hate to tell you--- it's gonna get much worse before it gets better! My joint pains lasted about 2 months after I took my last dose of pred. And once you're actually off the stuff, the pains seem to get worse! It's horrible- I shuffled around too! You feel like you're about 100 years old. I've always started at 60mgs too, & tapered over the course of months.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/23/2008 8:09 AM (GMT -6)   
uugh, not the news I wanted but at least I know what is in store for me. Thanks for your responses!!!

Still @ 5mgs of pred daily probably until July when I can go to 5mg every other day, then hopefully get off of it in Oct.
Beth, 32 ~ small flare - hoping caused by aspirin
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/23/2008 8:33 AM (GMT -6)   
It took me about a full year to lose the joint pain after my last dose of pred. I was on varying dosages for 2.5 years. It's hard and it hurts but keep pushing through it. Engage in exercise, I think that helped me.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/23/2008 11:18 AM (GMT -6)   
thanks Suebear! I have been walking about 4-5 days a week and will be adding some more weight resistance to my workout. Now that my appetite is finally under control and the pred tapeworm (jk)that was in my body is gone for now, I hope to lose some weight and then begin pilates again. I just don't want to put too much strain on myself w/the weight gain (like to lose 10 to 15 of the pred pounds first)
Beth, 32 ~ small flare - hoping caused by aspirin
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 5/23/2008 3:45 PM (GMT -6)   
I work go the gym 2-3 times a week (including running/swimming) and I never have joint pain from Pred.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26
Remicade

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